Kickas.org Forums Treatments, Drugs and Alternatives NSD and diet-related; All hope in NSD

Hello,

I write from Spain and I apologize for my poor English.

My husband has AS for over 40 years ago. Too many years with pain and anti-inflammatories drugs. He is HLA B27 +

We have an only child. An intelligent and kind boy. 4 months ago began with the first symptoms. Knee pain in the buttocks and lower back. The analysis HLA B27 is also + for him.
He has to think now about their studies and their future. Not the best time to work on accepting a chronic illness.
This is really a great sadness for us. But that's life.

We are lucky to have found your website. It is full of knowledge, experience and generosity.
I researched a lot about NSD and we're at it since January 2012 (so far without removing yogurt or cheese). The natural antibiotic use propolis and bee pollen for vitamins .. No pasta, no potatoes, no sweetmeats, no bread, no cereal ....... Oops! This is very difficult for a boy 17. Ussually social life was linked to food full of starch: Pizza, Burger King, Kentucky friend chicken ...
So far the result is good but uneven. I'm trying to get the boy is aware of the relationship between food and pain.

Our NSD, now:

1 - Breakfast: natural orange juice, fruit (apple, kiwi, cantaloupe, strawberries
small pieces) with honey and walnuts with yogurt.

2 - break at school. Apple and almond flour biscuits and coconut (or nuts)

3 - Noon: meat (chicken, beef, pork) or fish (salmon, tuna ...) with salad (tomato, lettuce, olives and olive oil ...) + 1 fruit

4 - Dinner: broccoli or leafy greens or vegetables (zucchini, eggplant, peppers, onions ...) + fish or meat or ham + 1 fruit.

I welcome your comments about this. I trust that NSD can help us to a new life with AS but without pain.

Thank you very much for your commitment and generosity.

Health and good luck!

Maiga

WELCOME, Maiga:

I see that You have been doing a considerable amount of work already, and perhaps learned from Pello Zubiria's site? He is Basque, and has a Spanish language site that largely mirrors our own I believe but with some more emphasis on apitherapy (bee stings).

Your son's diet is not too unreasonable, but suggest eggs as a source of protein, also tofu for variety. Eggplant is a bit too starchy for most of us, and zucchini might pose some trouble, too. But especially the yoghurt and some cheeses can be the wrong foods, in the earliest stages of NSD.

It is very difficult to weed out all the offenders, some of these do not indicate so well with the iodine, but Carol's book is the best place to begin.

When I started NSD, it seemed to not work as well as I had hoped, and I once got myself into a major flare eating too much cheese and trying also to rely upon 'natural antibiotics.'

On this point, I really recommend the use of antibiotics, because they can help to make more of the 'fringe foods' available to us. For a longer-term solution, I would consider hitting this with some good agents after finding a cooperative physician; The Road Back Foundation has physician lists, but I do not know about Spain, in general.

I did have a very nice visit to Spain 20 years ago; someday will return to Alhambra and other nice places there.

HEALTH to Your husband and Your son and more to You for working so hard: Thank You,

John

Thank you very much, John

I am very glad that you quick reply. I have great admiration for you and all your work here.

I would like to know more English to understand the book of Carol. Maybe my son - he knows much English - he is prepared to take full advantage of this book and he teach many things to me.

I know the website of Pello Zubiria. I also feel a great admiration for his work. Thanks to him I have learned a little about NSD and I got here and I know kickas.

It’s true: eggs are a good source protein. This is also in our diet. I will continue researching to vegetables. Too bad the cheese is not allowed. We love the goat cheese and sheep cheese. It's great here in Spain

The next visit with the rheumatologist I will comment about antibiotics, but he probably will not agree.

Hopefully soon you decide to return to Spain and then visit the Mediterranean coast. We live in Catalonia. Here is also your home.

I will keep updated with our news.

Thank you very much again.

Health and luck!

Maiga

It may be that hard sheep cheese will be fine for your family.

There are two main reasons that cheese can cause us pain:

1. the milk sugar "lactose" can be slowly digested like starch
2. many people have an allergy to cow milk

Hard cheeses have less lactose than soft cheeses. Sheep cheese is better digested by many people than cow milk. So, that is why hard sheep cheese may turn out to be safe.

If possible, postpone serving the cheeses until your husband and son have started feeling better. Once their pain has decreased, it will be more obvious whether eating cheese has no effect... or if it makes them start to feel worse again.

Maiga, Welcome. Bless you for taking such good care of your son and husband.

I am new to all this myself and have learned so much from everyone on this site. So many people stress that what can or can't be eaten is individual to each person. So I suspect trial and error come into play some what.

Are you testing with iodine? That has really helped me to avoid starch.

Take good care

Thanks SJLC and thanks Alida1,

advice and guidance is very useful for us.

I think the diet should be a thing almost personalized. There is a different answer for each person for some food. This requires tons of patience.
The problem: mothers have a lot of patience but teenagers, they haven't.
I'm glad I'm on the right track, although sometimes discouraged when things don’t understand what causes the pain.

I hope to have strength and I want to continue working because I trust in the NSD.

Thanks everyone.

Health!

Maiga

Welcome Maiga! I wish we all had someone so lovely and concerned taking care of us. As to your comment that mothers have much patience, but teenagers have none. That is very true. Even if you are providing the very best diet and he is happily eating it, eventually he will be out with friends and have a slice of pizza or a bunch of fries. But if you manage to use NSD to get him to that low level of pain first, when he does eat that starch he will definitely make the connection that it causes him great pain. He will want to avoid it then.

I think it could be a great adventure to include him in the kitchen. Learning to make almond flour crusts for pizza and such. He may invent many new things for all of us to try!

Thanks Kancie,
Now my son is in a blaze. Five days with pain, now also in the sternum. He confesses: last week he ate chips. I think that little by little he understands the connection between starch and pain. But he is surprised. Just a little starch produces a week of pain? This has some logic?
When he understands this, he will work to diet with more conviction.

Thank you to all how have read and/or responded to this thread.

health!

Maiga