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If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
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Joined: Dec 2011
Posts: 16
New_Member
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OP
New_Member
Joined: Dec 2011
Posts: 16 |
Have any of you experienced this? I am having such issues with my memory and weird things related to it. The other day I was looking at a plate of spinach and I called it shrimp. Literally, I was thinking in my head "spinach" and it came out shrimp! I have also misplaces keys (not really unusual), and cannot make the word that I am thinking come out of my mouth. My fatigue is increasing tremendously as well. I was diagnosed with AS in 2006, thanks to an amazing opthamologist, and was on Remicade, but can't go back on because of reactions, but soon to start Enbrel. Sorry to rant, this is my first post. Thanks all.
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Joined: Sep 2011
Posts: 526
Veteran_AS_Kicker
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Veteran_AS_Kicker
Joined: Sep 2011
Posts: 526 |
I can't remember the last time I forgot. shrimpach, don't worry about it, its called brain flatuance.
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Joined: Apr 2011
Posts: 58
Active_Member
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Active_Member
Joined: Apr 2011
Posts: 58 |
when did you stop remicide?
also, is your neck stiff a lot? do you have any rashes that are unexplaned on your neck/head area? any infections @ all? even months ago
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Joined: Dec 2011
Posts: 16
New_Member
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OP
New_Member
Joined: Dec 2011
Posts: 16 |
I had pertussis in November, I feel like my neck is always stiff, but no rashes.
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Joined: Dec 2011
Posts: 16
New_Member
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OP
New_Member
Joined: Dec 2011
Posts: 16 |
Oh, and I stopped remicade over a year ago.
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Joined: Sep 2011
Posts: 526
Veteran_AS_Kicker
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Veteran_AS_Kicker
Joined: Sep 2011
Posts: 526 |
A lot of this may be stress your feeling over other issues. You might consider writing these events down with time and dates included with the episode. Keep these as reference so when the doc asks " how have you been? '
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Joined: Dec 2011
Posts: 16
New_Member
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OP
New_Member
Joined: Dec 2011
Posts: 16 |
Thank you for the feedback; that is a good idea. If I remember it.
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Joined: Sep 2011
Posts: 526
Veteran_AS_Kicker
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Veteran_AS_Kicker
Joined: Sep 2011
Posts: 526 |
keep a small notebook in your pocket ( with pencil) very important not to forget the pencil.
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
not being able to find the right word, worse and worse the older i get. at first it drove me crazy, then i got used to it, can compensate pretty well now. the biggest challenge is when i need to teach and can't find the word. it used to embarrass me, but now, i let the students give me the word. when i can remember all the "big" words and its the little words i forget, i realize the students know i know my stuff and am just having a senior moment. i'm only 48 and i really noticed it in my late 30s, early 40s, around the time of perimenopause.
i do find that the more tired i am, the worse it is. you mention fatigue. it may just be simply a manifestation of that.
do you notice that it is worse when you are more tired and better when you are less tired? i do. so i try to make sure i'm not sleep deprived on the days that i teach. of course pain often has other plans for us. so i just try to get as much sleep as i can.
and the only way i don't misplace my glasses, keys, etc is to always put them in the exact same place. i have a spot on my bookshelf at work for my glasses and my keys and glasses go on a shelf in the foyer when i get home. otherwise it would be hopeless!
Last edited by Sue22; 01/23/12 06:29 PM.
sue
Spondyloarthropathy, HLAB27 negative Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.) LDN/zanaflex/flector patches over SI/ice vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K. chiro walk, bike no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Sep 2001
Posts: 8,397
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 8,397 |
Shammy, I would take this serious enough to get an x-ray of yowhat is your brain. and a good eye exam. I have no idea from here what is up. but if you have insurance, get checked out. what is your blood pressure?
keep us posted, please
I keep the New Covenant, when I fail....I am pulled back into place by HIM.
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