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Joined: Dec 2009
Posts: 15
New_Member
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OP
New_Member
Joined: Dec 2009
Posts: 15 |
Hi everyone!
I went to a new Rheumatologist a few months ago.
I was trying to address the recent information about Nsaids that was presented in Chicago.
While I was trying to push that agenda, she made sure that she had eye contact with me and told me firmly that "we have No medical treatment for AS".
She said that the evidence on Nsaid therapy was slight at best.
She said however TNFs can help us feel better so we can use them. I have more to say however I will post later.
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Joined: Nov 2011
Posts: 256
Third_Degree_AS_Kicker
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Third_Degree_AS_Kicker
Joined: Nov 2011
Posts: 256 |
Wild. And my doctor wants me on the meds because they can keep me from becoming fused in her opinion. When even the doctors themselves have such differing opinions on our options, it makes me even more determined to have a go at it on my own.
Iritis first diagnosed in 1991, presently recurrent and steroid resistant.
Tested HLA B27 positive in 1996.
AS diagnosed October of 2011.
Putting most of my eggs in the NSD and exercise basket, using only TENS, massage, heat and ice, and NSAIDS (sparingly) for pain. Drops for iritis as flare necessitates. Looking back I feel I would have been diagnosed with AS years ago, if I had found a rheumy earlier than 2011.
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Joined: Apr 2011
Posts: 105
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
Joined: Apr 2011
Posts: 105 |
Scary to say the least "we have No medical treatment for AS" if she said "we have no cure for Ankylosing Spondylitis" the former is crazy talk the latter is true.
I spent months before Christmas seeing as many Scientist, Rearchers and Dr's I could and not one ever said that we have no medical treatment. They may of all not had the same point of view but they never conveyed hopelessness to me.
I found way more luck with Dr's under 45 years old. Hope you can find someone to help you.
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