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Nov 21st, 2025
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If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
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Joined: Apr 2011
Posts: 105
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
Joined: Apr 2011
Posts: 105 |
Im in my 30's, look way different and disfigured now than yesteryear(one example = bad AS neck) Im happy that I finnaly have a awesome rheumatologist that makes me feel 40% better than what I was use to. Of course systemic disease sucks. However 'Think about what you have, not what you dont have'.
At this point Im more pissed about the bone on bone pain, than what I look like. Try to never be embarassed. Remember your not alone.
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Joined: Jul 2010
Posts: 1,191
Steel_AS_Kicker
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Steel_AS_Kicker
Joined: Jul 2010
Posts: 1,191 |
I have only had arthritis for 2 years so I forget when I go to hop out of the car to run in the store and get something that I can't hop out anymore. Then I hobble for 10 steps until things get limber. I don't like it either but it's not that big of a deal, most people are thinking about themselves and think very little someone else's ailment. Don't be embarrassed and we are all here for you. Take care.
Diet change has improved my RA. I feel best eating raw veggies and some fruits and avoiding grains, sugars, nightshades, beans and dairy. Sed rate dropped from 65 to 19, but it took over a year. www.fatsickandnearlydead.com excess fat/oils = pain for me recipes for raw food on Youtube "raw food romance" and "healing josephine" Josephine is in remission from RA after two years by change diet/exercise
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Joined: Oct 2001
Posts: 2,576 Likes: 5
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Joined: Oct 2001
Posts: 2,576 Likes: 5 |
Oh, most definitely. I hate being stared at because of what the disease has done to me as far as my incredibly bent posture and the way I walk. Most times I do my best to ignore it, but sometimes it is impossible to do so, and every once in a great while I'll run into one of those truly special idiots who make sure I know just how odd I look. Always a treat. Luckily my great friends and family make me feel so loved that I'm able to handle being out in public with aplomb, but every once in a while, I am reminded just how much this disease truly sucks.
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Joined: May 2010
Posts: 25
Member
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Member
Joined: May 2010
Posts: 25 |
This disease certainly has it's stages and events. Once your warmed up for a lot of us you function with pain, but mostly look normal. People all my life of been telling me to correct my posture, which was for me was impossible without a lot of pain. It caused me so much pain. After a long road trip or sitting on the couch for an extended period I look very disabled when I get up and start moving around. Most of my TRUE family and friends accept me and realize what I am going through. So yes it's embarassing at times, but mainly because of ignorance. Hold your head up. Jason.
Working twice as hard to work half as fast since 2002.
AS, HLA-B27 positive, Vitamin D challenged, and many fun surprises along the way!
JP
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Joined: Nov 2011
Posts: 11
New_Member
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New_Member
Joined: Nov 2011
Posts: 11 |
I try to hide it at work, but its hard when I take those first few steps. Some days are better than others.
RF- HLAB27+
Dx AS 2011
Symptoms since 2008
Humira started 12/2011
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