|
Forums33
Topics44,198
Posts519,920
Members14,186
| |
Most Online11,978 Nov 21st, 2025
|
|
Administrator/owner:
John (Dragonslayer)
Administrator:
Melinda (mig)
WebAdmin:
Timo (Timo)
Administrator:
Brad (wolverinefan)
Moderators:
· Tim (Dotyisle)
· Chelsea (Kiwi)
· Megan (Megan)
· Wendy (WendyR)
· John (Cheerful)
· Chris (fyrfytr187)
|
|
If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
|
|
|
|
Joined: Jan 2010
Posts: 2,105
Major_AS_Kicker
|
Major_AS_Kicker
Joined: Jan 2010
Posts: 2,105 |
I'm going through a nasty aggravation of upper back pain at the moment - not helped by not being able to take NSAIDs because of a flare of gastritis. With me it does come in flares, so doesn't have to be there all the time. It also is definitely aggravated by the way I use my body.
Thanks Inkyfingers for that link to exercises. I do some of that stuff, but really good to see some other things that can realistically be done during the working day that will help.
So for me its a combination of trying to use my body better, and keeping inflammation down, and just being aware that it does come in phases and flares. Right now, like you though, it hurts like h**l.
|
|
|
|
|
Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
|
Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
Great stretches Louise. I sent em off to my physio, though they are pretty much what he gave me to do last Wed (after my horrendous costo flare) - with LOTS of breathing exercises thrown in. He advised doing every hour. Must say that I feel better already. cemc - also had a gastritis attack with projectile vominating - mind you I had taken an antiinflammatory...  Sigh.
MollyC1i - Riding OutAS
|
|
|
|
|
Joined: Oct 2007
Posts: 1,731 Likes: 1
Diamond_AS_Kicker
|
Diamond_AS_Kicker
Joined: Oct 2007
Posts: 1,731 Likes: 1 |
Mike, first of all I'm so, so sorry for your loss. My heart just goes out to you. It must be such a hard time right now. I hope you are getting as much caring support as you can, although I know there's nothing that can take away the heartache. But in terms of your physical pain, my back pain would last several weeks, or a few weeks, or even a few days. One thing I forgot to mention that helps is massage. For a while I did not ever get massages, because I had had some bad luck in the past and the massage therapist would massage a bit too heavily, and I would end up feeling achey. Since my diagnosis, I found someone who is very gentle and works with me to get it right. I should go more often but it is expensive, but money well spent! Getting massages more often but shorter in duration may be just the thing for you! Best wishes for you,
______________________ Jan
|
|
|
|
|
Joined: Nov 2011
Posts: 7
New_Member
|
OP
New_Member
Joined: Nov 2011
Posts: 7 |
Thank you all who responded to this! I am so glad that others have experienced what I'm going thru (I mean that in a kind way, of course!), because I had no idea what had brought this on so suddenly - my partner of 18 years died of cancer a few weeks ago and I was beginning to think it may have been "all in my head"...
Any other suggestions would be appreciated. I'm so sorry for your loss, Mick.  My daughter and sister passed away this year, and I will say to you that grief definitely makes it more difficult to pay attention to the needs of one's body. PM me if you want to "talk". I am so sorry to hear of your losses, too, Erika - this type of pain is so much more "painful"...I'm available, too, for you.
|
|
|
|
|
Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
|
Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
So sorry to learn of the news of your partner Mick - missed your earlier note. Many sympathies -
Molly C (France)
MollyC1i - Riding OutAS
|
|
|
|
|
Joined: Feb 2011
Posts: 1,968
Captain_AS_Kicker
|
Captain_AS_Kicker
Joined: Feb 2011
Posts: 1,968 |
So sorry for your recent loss Mick. I am still reeling from 5 family death's in 2 month's myself. While stress doesn't help, it is probably just the nature of the beast. I have had this disease for a long time and have experienced all of the above and tried all of the above. Mine is constant now and I do what I can to feel comfortable. I take Percocet, Humira and Sulphasalazine and take bath's and have a heating pad and do stretching. It is full time work. It didn't used to be all of the time except for in the winter. Now it is winter and I can't stand to go outside of the house. I just freeze up. We have tried to sell our home for the past 4 year's and we have only had two looker's. We want to move somewhere hot because that is when I feel the best. Dry and hot! I feel like a normal in that kind of weather. I am where it is damp and wet and cold 10 month's out of the year. You are not alone in this.
Pea Diagnosed with A.S. 29 year's ago. Diagnosed with Fibro 10 year's ago. Remicade, Intrathecal Pain Pump 2013
|
|
|
|
|
Joined: Feb 2010
Posts: 1,127
Steel_AS_Kicker
|
Steel_AS_Kicker
Joined: Feb 2010
Posts: 1,127 |
Hi and welcome. I too am sorry for your loss and wanted to add to what everyone else has said. No it is not all in your head. I have a terrible time with my upper back of late. I know from ct scans that there are issues with my upper back but am still questioning if it is the arthitic changes that are causing the pain or if it has to do with the way I have changed my posture to relieve some of the lower back pain, not to mention the falls from dodgy knees. Or all of the above. But you are definately not alone.
All the best.
|
|
|
|
|
Joined: May 2010
Posts: 25
Member
|
Member
Joined: May 2010
Posts: 25 |
I have a similar thing too. Everyday for the last year or so about 10 o'clock in the moring get a burning/aching/tingling feeling off the spine just below the should blades. Lasts the rest of the day. Wake up the next morning feeling ok, then comes back full force. I've had it before, but it was intermittent. Now it's constant. Nothing relieves it at all. Hot showers feel the best. Keep up the fight. So sorry to hear about your loss. Jason.
Working twice as hard to work half as fast since 2002.
AS, HLA-B27 positive, Vitamin D challenged, and many fun surprises along the way!
JP
|
|
|
|
0 members (),
724
guests, and
278
robots. |
|
Key:
Admin,
Global Mod,
Mod
|
|
|
|