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#454763 10/22/11 09:33 AM
Joined: Sep 2001
Posts: 40
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IFFOT Offline OP
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Joined: Sep 2001
Posts: 40
Hello all,

I was diagnosed with AS around 10 years ago and having started almost immediately on a low starch diet (as one of Prof. Ebringer´s patients) I manageded to completely control my main symptoms: joint, back pain and Iritis. However, something which ocurrs time and time again over the past 3-4 years is glue ear or Otitis Media. My doctor said he didn´t think it was autoimmune related, but I am not sure how he could have known that. It doesn´t seem to usually turn into an infection - just have this feeling of blockness in my right ear. It's particularly irritating as I am a musician and need my ears to be working perfectly. Oddly, when I went for a hearing test recently, it came out as normal, though my feeling is that I cannot hear upper partials in my right ear as in my left. For instance when I rub my fingers together near my right ear, it sounds dull, as opposed to my left ear where I hear it cleanly. I cannot think of any reason why I should be getting repeated bouts of this and have begun to wonder whether like so many unexplained symtoms, it could be HLA related. Does anyone have any advice? Currently the only treatment available is a saline solution spray for the nose and an otovent, where you blow up a balloon with the nose! Funny but true....

IFFOT #454767 10/22/11 10:22 AM
Joined: Jan 2010
Posts: 839
Ninja_AS_Kicker
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Ninja_AS_Kicker
Joined: Jan 2010
Posts: 839
http://en.wikipedia.org/wiki/Temporomandibular_joint_disorder

maybe this will help. i too thought it was otitis, but things were different in fact.


34. Some rheumys say AS stage 1-2 some others say USpA
Also UC - rectocolitis.

UC curently in remission since feb 2011.
AS/USpA remission march-aug 2011. Flare - sept-nov 2011 (antibiotics). Remission now...

Modified NSD/SCD. Cook your own !
____________________________________________________________
Mesalazine-Salofalk 500 mg/day

And the list of my medication has become verry short after some years on this diet smile
Joined: Jul 2011
Posts: 128
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Journeyman_AS_Kicker
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Joined: Jul 2011
Posts: 128
I have had ongoing problems with my ears for many years. I would get a feeling of them being blocked up, sometimes I couldn't hear properly and sounds were distorted and rumbly. The doctor said my ear drums were bulging and that I had inflamed eustachian tubes due to a virus, but it went on for years. I would feel dizzy and nauseous sometimes as well. It went away when I stopped eating gluten, along with my asthma.

I still sometimes get discomfort or itching in my outer ear now, but I think that is a separate problem of a chronic low level infection(swimmers ear).


Symptomatic since 1996
Gluten free since 2008
Paleo since 2010
NSD since 2011

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