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Nov 21st, 2025
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John (Dragonslayer)
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Melinda (mig)
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Administrator:
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If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
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Joined: Nov 2003
Posts: 8,190
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2003
Posts: 8,190 |
Well Im another Oxy user but like Brad said about the patent I use to get 60 of them generic for about $25.00 for the name brand they want about $200.00 and I cant do that because thats for 1 month for me...I also do tramadol,cymbalta, and Fentanyl Patches.
I have been looking for an alternative and the likely ones will be methadone or morphine not sure if my Doc will flip out or not but he knows I need them. I am also doing Remicade treatments but have not had one in 4 months because I owe them money so...
I know that it has to be hard for you trying to provide for your family and having all these issues and God knows disability doesnt pay the bills..I am on it but thank goodness I have a husband that works and I have the luxery of staying home but it still isnt easy.
I hope we have helped and welcome!
Lisa
Speak kindly, Live simply, Care deeply, Love generously, and BLAH, HA, HA, LOUDLY! every chance you get.
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Joined: Jun 2010
Posts: 3,865
Royal_AS_kicker
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Royal_AS_kicker
Joined: Jun 2010
Posts: 3,865 |
Sorry you feel so crappy. I'll give you my pain regimen. I swim every day for at least 30 minutes - but usually an hour - even if it's just dangling around on a noodle. Most days I swim 1,000 yds, but when I started ALL I could do was dangle and noodle around. I take cymbalta daily, and also muscle relaxers every night, and narcotics for breakthrough pain. I took NSAIDS from age 9 to 49, but then developed a fatal allergy to NSAIDS and salicylates. Okay, that's my story. Hope it helps. 
ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009
Movin' it so I don't lose it!
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Joined: Oct 2010
Posts: 558
Sergeant_AS_Kicker
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Sergeant_AS_Kicker
Joined: Oct 2010
Posts: 558 |
Brad, I love your reply. I haven't been here in a while (hi everyone!) but have been reading a bit and catching up and your post jumped out at me.
Mad props.
Jason, nice to meet you. Sorry you're hurting. I take muscle relaxers, extended release pain killers, Celexa for the depression I couldnt fight any longer (also helps me sleep if I take it at night) and Tylenol. I have henious IBS so no NSAIDs for me. I can't reach spots to put patches or gels on so I use this bengay spray - helps a little. Finally found a PT who understands AS and am leaning some good gentle exercises - feels great to be doing something to fight the spondy monster.
I was on enbrel, then humira then simponi. Simponi was amazing until I had a bad reaction. Now I'm waiting to figure out what to do next.
Also bought a ghetto pool (huge inflatable - hope goggle earth doesn't update anytime soon!) and so like Erica did at first. Float on a noodle.
I had a seizure recently so I've just used up my brain power for the day. Take care!!
Good luck to you.
~ Holly
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