Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group I hate my stupid body!!!!

I can't say thank you enough for all the replies. It's making me cry reading them all & knowing that people really understand & that at the end if the dày, I am here, I have an amazing little boy & family & the rest I can deal with as it comes. It does get me down but this place gives me strength & the positivity to know I can handle whatever comes.
I am going to look into moving bubs cot closer to our room so I can get to him quicker & don't feel like I'm letting him down. I also haven't told my maternal health nurse about my troubles to date but after reading all the advice, I am going to. Then I can get Some help & enjoy the best medicine of all, my baby boy. I had been keeping my struggles to myself, not even telling my rheumy, feeling like I was failing as a mum but I realise now that that's not the case & am going to get whatever support I can to make
things better & happier.
Thank you everyone, this site really does save me!!!

I am on the influximab (remicade), i've been on it for about 2years. We tried to get through the pregnancy without it but I got so sick (mainly the crohns) they were worried I'd lose bubs so I had 3 doses over the last 12 weeks of the pregnancy. I had my next dose the day after I had bubs & every 6 weeks since then like normal. It has always worked fairly well for me, I tried humira first but had no improvement & in conjunction with prednisolone it works well until I flare. And since bubs I've been in constant flare. My rheumy has tried a few different things but basically she said I had to wait it out with pain meds. She has always been good to me & has been my only rheumy since I was diagnosed at 19 but has admitted that she doesn't think she can do much more as there is no cure as we all know. I'm not sure if I should stay with her or maybe start looking for a new doctor with new ideas on how to help? She is always great in not questioning my pain & need for pain meds so I'm worried another doctor may not be as understanding in that respect. I've also been given the option of starting methotrexate injections, does anyone have any experience with them? Did they help?

Oops spelling mistakes. I'm on infliximab : )

All the others told you the good stuff. I'll tell you that it's a wonderful thing taking care of your little bub and you are doing the best you can right now. Sounds like a bit of early postpartum depression going on. It's normal and should pass. But if you are still feeling this way in a couple to 4 weeks, let your doc know. Right now, I think it's more the problems with your health that are driving the PPD feelings. So let your doctors/nurses know how much you are struggling so they can help you. Hugs to you on the new bub. We would all like to see pictures <hint-hint>.

I'm on Methotrexate. I think it helps with peripheral joints, but not much for the spine or SI joints.
Make sure you are taking folic acid.
I found that having the baby's cot in my room to be really helpful. We even co-slept. I know it doesn't work for everyone, but it might be worth a trial. Remember that you are going to need to make modifications to the "normal" baby stuff anyway.

Hello Leah,

Congrats on the healthy baby boy! This is a life change for the good... my Mateo is now 3 1/2 years old. We cannot have another, but do so much enjoy my time with Mateo.

Regards to the body... hopefully you find something that helps with the AS. I do not know how you manage the AS, but there are many different options, best advice I can give is to become knowledgable about AS and find the best treatment option.

Life may not always be easy, but it is worth sticking around for and enjoying with the little one.

If your mother is worried and you can see that, best to confide in her and talk. may help to vent some with her.

Take care,

Tim

Congrats on your new bundle of joy!!! Your baby loves you and knows that you are there and you will get better and you will be the most amazing mother because you will be able to appreciate the smallest things that so many take for granted. I am so happy for you and wish you many mazel tov's (congratulations) for both you, your family, and your new bundle of joy!!!!

Hugs,
Cubsgirlfan

I'd love to put up some pictures, if I knew how? Can someone please tell me how to do it?

Hi Leah,

Here is the information on putting up pictures:

In order to add an image as an avatar or signature, you must have the image already available on a web server and reachable by a URL. This can be an image on your own personal web page (depending on your privacy settings). If you don't have the image uploaded anywhere on the web already, then you can upload it to a free image hosting site, such as Photobucket or ImageShack.

Once you have a url link to your image, click the My Stuff menu found on any page. Click My Profile, scroll down, and enter the URL (with image tags) into the signature box, or, paste a direct url into the 'URL to your avatar' spot. Then click the Submit button at the very bottom of the page.

We ask that you keep your images relatively small. As a rule, please do not exceed 600 x 125 pixels (or 300 x 200 pixels) and/or 35k for a signature image. This will ensure that the forums load quickly for all users. The dimensions for an avatar are 65px wide x 75px tall.

If you can't manage it on your own, use the Contact Us link (found in the bottom right-hand corner) and email us your pic as an attachment and I'll take it from there,.. just please understand that it may take me a few days.

Hope this helps!
mig