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Joined: Apr 2011
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han Offline OP
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Hello, im new! ive had AS for about 10 years and im only 26, sometimes its really bad and something its bareable but its always there, for years ive been convinced that something to do with eating was not helping my symptoms as flare ups would be often after heavy meals (christmas dinner) and id find myself very bloated.

Recently after being fed up with doctors constant denial that food isnt helping, Ive researched and found the Carol Sinclair book/

today Im starting my new low starch diet, i love food so its going to be a real challenge

any tips or hints would be most welcome

thank you Hannah


Hannah
26
Diagnosed aged 16
From the UK
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Ninja_AS_Kicker
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good luck to you hannah.

first just read the book, then try what it says there. if you have any specific questions i am sure we are a lot here to help you.


34. Some rheumys say AS stage 1-2 some others say USpA
Also UC - rectocolitis.

UC curently in remission since feb 2011.
AS/USpA remission march-aug 2011. Flare - sept-nov 2011 (antibiotics). Remission now...

Modified NSD/SCD. Cook your own !
____________________________________________________________
Mesalazine-Salofalk 500 mg/day

And the list of my medication has become verry short after some years on this diet smile
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hi

others have said, and im no expert but i agree, try going NSD right away. carol starts i think by cutting most starches but still ate potatoes for first year or so. personally i would b getting 0 relief if i did this. others can tolerate LSD but everyone is diff.
the only other thing would be, as u will read, test EVERYTHING!! no point in doing a diet when u could b eating the starch without knowing.

remember carol is in uk therefore, some things that r always safe for her may not be safe for u due to differences ingredients/growing and storing methods.

good luck

Last edited by sunnypower; 04/26/11 05:05 PM.

AS & Fibro. NSD + no sugar
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Very_Addicted_to_AS_Kickin
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one thing i've found to make a diet easier for me to do is to find a few things that i absolutely love that i can eat on the diet, that are perfectly safe, then whenever i'm having a craving for an old food, i eat one of my favorite safe foods instead.

i too love food, and this trick has saved me many a time.
its still hard sometimes, that's for sure.


Last edited by Sue22; 04/26/11 05:13 PM.


sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Hello!

I am new too. Carol Sinclair's book greatly aided my search for minimizing pain! Within 5 days of adhering to her diet I was no longer waking at 5am in screaming pain. In fact, I am on week three and sleeping in to my alarm now!

Also, move, move, move. Walk, swim, gentle stretches, etc. Don't stop.

This website is a godsend. People living with this condition who are trying varying things are an incredible gift! Also a wonderful support system. Hang in there and I hope you receive similiar if not better results from the low starch diet!

Ann

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Hello, Ive read the book and ive been on the diet for about 3 months now all had been going ok. The trouble is im hungry a lot of the time.It seems that modified starch is used a hell of a lot,got caught out with brown sauce the other day frown
But its worth a real good go.
Personally i like to balance it out with meds.

Good luck.

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naj Offline
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Hi and nice to meet you! It is great to have you here.


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Very_Addicted_to_AS_Kickin
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when left really hungry, i've found eggs to be very satiating, though i had to cut back recently because my food sensitivity testing came back mild positive to eggs, but if you can eat them, a good choice.

also "good fats" like coconut, nuts like almonds (if you can eat them), etc also help curb my appetite. fatty fish like salmon too. avocado if you can do that.



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Joined: Apr 2011
Posts: 22
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han Offline OP
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I live in the UK, can anyone tell me where I get the iodine testing stuff from? and how it works?


Hannah
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Diagnosed aged 16
From the UK
Joined: Oct 2007
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naj Offline
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Hi han,
I'd suggest you go 'round to the chemist, there did I say that right? Here in the U.S. I'd say pharmacy. Iodine used to be commonly used as an antiseptic for cuts and scrapes, but not so much these days, so you may have to ask. Also, there's always amazon.com!

http://www.amazon.co.uk/Iodine-Tincture-First-Antiseptic-2%25-Preferred/dp/B000V4RPRQ/ref=sr_1_7?ie=UTF8&qid=1303915900&sr=8-7

For me, starting out, it was helpful to not worry so much about iodine testing and focus on very simple foods: eggs,fish, greens, berries, almonds, water and tea without milk or sugar. Later on I added a wider variety. Definitely iodine testing is helpful, but just thought I'd add my experience in case that helps, too.
: ) Best wishes!


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