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Joined: Jun 2010
Posts: 545
Veteran_AS_Kicker
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OP
Veteran_AS_Kicker
Joined: Jun 2010
Posts: 545 |
Five foot nothin' and 97 pounds soaking wet, but she made it through the surgery. So that will reduce her pain, anyway.
If she survives the hospital stay she'll likely be discharged directly to a hospice; her abdomen is full of metastatic tumors, and good palliative care is about all Medicine has to offer at this point.
It wins us a little time to prepare for the trip, but I've accepted we'll be taking it soon.
I want more than anything for her to be pain free and joyous when she goes.
Thank you all for the prayers. Please keep 'em coming.
Shalom,
John
  Author: Mayan Solstice: A Novel of 2012 ( http://www.createspace.com/3420054) If you would know a man, observe how he treats a cat.- from "The Door into Summer" (1957), chapter 1 (Robert Anson Heinlein) Love is the condition in which the happiness of another person is essential to your own. (again, RAH)
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Oh that's GREAT news, Johninco! I'm sure you're very relieved... 
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF  
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Joined: Jan 2009
Posts: 4,501 Likes: 1
Supreme_AS_Kicker
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Supreme_AS_Kicker
Joined: Jan 2009
Posts: 4,501 Likes: 1 |
John, there is a lot to be said for good palliative care, too. Gives family members the chance to impart love, blessings, thoughts and more love to each other. I hope your family is blessed in a special way in the days to come. Hugs to you, John.
DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
glad your mom made it through surgery so you have a little more time. our family's experience with hospice has been very good. both of my husband's parents had hospice over the last few years, one at home, the other in the hospital. i've heard nothing but good things about hospice care. she should be in good hands. you and your loved ones are in my thoughts and prayers. 
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Jul 2003
Posts: 2,962
Presidential_AS_Kicker
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Presidential_AS_Kicker
Joined: Jul 2003
Posts: 2,962 |
Hi John,
I'm glad to hear her surgery went well. I will be keeping her, you and your family in my thoughts. Have a safe trip over there.
Take care,
James
HLA-B27+, JRA diagnosis in 1981, re-diagnosed as AS in 1988. Also iritis, colitis, and psoriasis. NSD + low carb helps me. My health makes it hard for me to post in a timely way.
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
John, I'm sending white light and love your mom's way. I'm glad she came through the surgery so well and am sure she will get wonderful care in hospice.
Hugs,
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
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Joined: Jun 2006
Posts: 1,873
Lieutenant_AS_Kicker
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Lieutenant_AS_Kicker
Joined: Jun 2006
Posts: 1,873 |
Pain-free prayers on their way! Are you going to be able to visit her in person?
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Joined: Jun 2010
Posts: 545
Veteran_AS_Kicker
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OP
Veteran_AS_Kicker
Joined: Jun 2010
Posts: 545 |
Bridget,I want to go down there but we're debating. Until my VA and SSDI come in we're getting by on one small income, and we're talking a 1600 mile round trip and an unknown number of days in a hotel, eating out all the time.
She might not last a week, or she could be around a couple of months. Unfortunately, we couldn't possibly afford two round trips.
I don't really know what to do.
Author: Mayan Solstice: A Novel of 2012 ( http://www.createspace.com/3420054) If you would know a man, observe how he treats a cat.- from "The Door into Summer" (1957), chapter 1 (Robert Anson Heinlein) Love is the condition in which the happiness of another person is essential to your own. (again, RAH)
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Joined: Apr 2002
Posts: 12,465
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Joined: Apr 2002
Posts: 12,465 |
John, I'm so sorry to read that your Mom is so very ill, yet relieved that the surgery should help to reduce her pain.
A little time can be a real blessing when you need to make decisions but I realise it must be an added worry and upset when you are at such a distance from her, and trying to decide on travel. I've heard that hospice care is really the best.
My thoughts are with you,
mig
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Joined: Jan 2009
Posts: 4,501 Likes: 1
Supreme_AS_Kicker
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Supreme_AS_Kicker
Joined: Jan 2009
Posts: 4,501 Likes: 1 |
Sorry you can't make both trips. What would extended family think if you were to travel now, see her alive and enjoy her company for a couple of days but be unable to attend the inevitable services? Sorry if this sounds blunt, but funerals are for the living, the deceased is no longer there for they have gone on to their reward.
When my grandmother died, I was 2 weeks from going home (1500 miles away) to see her, knowing she had only weeks to live. I didn't have a chance to speak with her. When my father died, I was fortunate to have spoken with him the day before he passed away. I lived 500 miles away. When my grandfather died, I had just come home to see him (drove 500 miles). My mom (his daughter) took me to the hospital that night to see him and he was just barely conscious. I talked to him for a bit, held his hand for a long time and hugged him goodbye. We left and he died later that night.
Of the 3 experiences, I regretted the first one the most. Being there only for the funeral was tough. I wanted to speak with her, hug her, hold her hand and help her any way I could as she left this world for the next, something that is impossible at a funeral.
If you cannot travel, maybe talking on the phone will be helpful. Maybe someone in the family that lives nearby has a laptop with a webcam? If you have the same, maybe a video conference would be good? If the family isn't openminded enough to understand that if you can make only ONE trip that you'd like it to be while your mom is alive, then I'm very sorry. Many hugs and prayers for you and your family in the weeks to come. And I apologize if I came across as less than understanding of your plight. I truly don't intend to sound that way.
DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9
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