Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Hi all!

Its been a long time since I've been here. Sorry for that.
Life just insists on getting in the way of living, if you know what i mean.
If you don't remember me you probably remember my spelling. You should do what my wife does and think of it as a code you have to break.
So much has happened, my two kids live in different area's in the USA and Dorothy and i still live in the UK.
I still need a new knee, AS is up and down, mostly down and to give me a break I thought I would set myself on fire last year. It was not good but unbelievably I'm 90% recovered, some parts of my system seam to work OK.
I have been trying to change my meds for years now and I have finally been accepted to go on ETANERCEPT (ENBREL) I was just wondering if any of you kind people would have any feed back for me.
I hope you are all well and as pain free as you can be.
Thanks Hugh

Hi Hugh and welcome back. Thanks for the update.

I'm glad to hear you'll be starting Enbrel. The best advice I can give you is to wash your hands very frequently; basically, before touching your ears, eyes, nose or mouth and prior to eating. It can take some time for these meds to take effect, but often people feel some change for the better quite soon after the first shot. It's odd to give oneself injections (I hope they're giving you the 50mg autoinjector - its much easier), but you'll get used to it.

I hope it helps you as much as it has so many others.

Hugs,

Hi I have no advice or knowledge of enbrel, but welcome back! I'm new here and this place is truly saving my sanity.

Peace

Thanks for the reply
I can see why they did not want me on this last year, because of the burns.
They are also keeping me on my normal meds until I start getting some improvement. I was a little worried about stopping cold turkey. I've done that before, when I got down and was sick of taking pills. Not a good idea and i suffered for my stupidity (yet again)
I can slowly drop the dose as I go along. I see that this is not the case fro all of us. Doesn't it seam you get completely different info and treatment dependant on were you live and what doc you have.
My relatives in Germany have a friend on these meds and he has been on them for over 9 years. Yet my doc's say this is a newish drug. It really pisses me off when doc's withhold the Truth or part of it for there convenience or worse they do not think you can cope with the full story. Sorry for the rant.
They once told me I had to change my meds as they were now very expensive. I believed them until I happened to speak to a vet and he told me he used the drug all the time for horses with rheumatism and it cost Penni's.
Always get another opinion!

I will try and stay around this time and greatly appreciate your input

Thanks Hugh

Hi Hugh,
Welcome back sorry to hear of the rough time you have been having stick around this time.


Kevin