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Oct 6th, 2025
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Joined: May 2010
Posts: 31
Member
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Member
Joined: May 2010
Posts: 31 |
I miss hanging out with my friends
I miss not being able to walk my dogs
I miss driving myself to school
I miss knowing what its like not to hurt
I miss sleeping without waking up in pain in the middle of the night
I miss my life
pink :))) "Give me strength, Give me courage" 
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Joined: May 2010
Posts: 774 Likes: 1
Magical_AS_Kicker
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OP
Magical_AS_Kicker
Joined: May 2010
Posts: 774 Likes: 1 |
oh man,this is a sad thread
love to all
john
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Joined: Jun 2010
Posts: 545
Veteran_AS_Kicker
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Veteran_AS_Kicker
Joined: Jun 2010
Posts: 545 |
In order of importance, I miss sex. I miss golf. I miss drag racing. I miss skydiving. I miss flying high performance aircraft. I miss being able to play on the floor with my grandkids. I miss camping.
That's the short list. I won't depress everyone with the long one.
  Author: Mayan Solstice: A Novel of 2012 ( http://www.createspace.com/3420054) If you would know a man, observe how he treats a cat.- from "The Door into Summer" (1957), chapter 1 (Robert Anson Heinlein) Love is the condition in which the happiness of another person is essential to your own. (again, RAH)
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Joined: Jun 2010
Posts: 3,865
Royal_AS_kicker
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Royal_AS_kicker
Joined: Jun 2010
Posts: 3,865 |
These were a few of my favorite things:
Sitting for more than 1/2 an hour
Driving
Hiking & walking with my friends
Digging & moving dirt around in my garden
Playing softball & volleyball
Crocheting & knitting
Writing letters with a pen instead of a computer
ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009
Movin' it so I don't lose it!
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Joined: Jan 2009
Posts: 313
Fourth_Degree_AS_Kicker
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Fourth_Degree_AS_Kicker
Joined: Jan 2009
Posts: 313 |
Wow. It IS a sad thread.
I miss:
--dating and the idea I could get married and have a family (5 years of suffering, I'm now 35 and still chronically ill)
--not having to worry about digestive failure ruling my life
--being able to eat without fear
--feeling clear headed and able to think
--having energy to go out at night with friends
--buying a house (too scared I might end up on disability and lose it)
--feeling like everyone else...not different...or set apart
--feeling healthy and stable
Those are my confessions. I'm starting a positive thread now..."Things you have gained from AS."
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
I miss doing things pain free.
Hell, I miss being pain free. I wonder if I ever was, actually.
I miss eating cake and other sweets without worrying about wheat content.
I miss having a choice about exercise, if you know what I mean.
Good question.
Hugs,
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
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Joined: Sep 2001
Posts: 6,248 Likes: 5
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 6,248 Likes: 5 |
I miss as Loz and Jeanna said just being comfortable in a normal setting.
I missed for so long the feeling of what is was like to run. I used to have dreams where I would run and felt so great the next day. Then I guess because the actuall sensation was gone I lost the ability to slip into that dream.
I know its childish but I loved throwing a baseball. I miss longtossing curveaballs to a friend or my borthers. At 47 I probably would be able to do it any more anyway but I miss it.
I miss being able to rough house and get hurt or bumped and bruised likenormall folk.
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Joined: Sep 2009
Posts: 1,236
Copper_AS_Kicker
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Copper_AS_Kicker
Joined: Sep 2009
Posts: 1,236 |
I miss being comfortable during a whole outing. I miss being spontaneous. I miss shopping without it feeling more like a chore, and a painful one at that.
Micki
Mom to 9
Dx'ed Ocular Herpes, Sept. '08
Dx'ed AS May '09, suffering on and off since 1979
Dx'ed Non-Hodgkins Lymphoma May '08, relapse Oct '11
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Joined: Sep 2001
Posts: 7,427
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 7,427 |
i miss swinging my children in the air in circles like a mad-bug!  Gianna my 16yr old was the only one that was able to enjoy this. my other 2 were thrilled with endless hugs and tickles though. they were much bigger babies so it was difficult. other than that..thats about it. i've tried to work around everything else. but my kiddos...thats the real fun stuff i enjoy. good post.  buggy
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Joined: Jul 2003
Posts: 2,962
Presidential_AS_Kicker
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Presidential_AS_Kicker
Joined: Jul 2003
Posts: 2,962 |
Hi,
Here are some of the things I miss.
Looking up, forward and behind.
Laying on my stomach.
Wrestling.
Offroading on a motorcycle.
Riding bicycles.
Going places without running into people (literally)
Not getting embarrassed easily.
Working.
Driving.
Not having to go to youtube to see an airplane flying.
Take care,
James
HLA-B27+, JRA diagnosis in 1981, re-diagnosed as AS in 1988. Also iritis, colitis, and psoriasis. NSD + low carb helps me. My health makes it hard for me to post in a timely way.
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