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Joined: Jan 2006
Posts: 3,016
Imperial_AS_Kicker
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Imperial_AS_Kicker
Joined: Jan 2006
Posts: 3,016 |
Hi all, just want to know of anyones diagnosis and experience with MS and AS. I now have the posibility of MS with the AS and would like to know more from those of you now dealing with both from symptoms to diagnosis to treatment.
Thanks gang
Cindy
" That which does not kill me only makes me stronger"
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Joined: Oct 2007
Posts: 1,731 Likes: 1
Diamond_AS_Kicker
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Diamond_AS_Kicker
Joined: Oct 2007
Posts: 1,731 Likes: 1 |
Sorry to hear that, Cindy! Let us know how it goes.
Jan
______________________
Jan
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Joined: Apr 2009
Posts: 1,576
Gold_AS_Kicker
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Gold_AS_Kicker
Joined: Apr 2009
Posts: 1,576 |
Oh Cindy, I'm so sorry you are having to deal with this! I have no knowledge here, just hugs. 
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kevin_A
Unregistered
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kevin_A
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Hi Cindy, Sorry cant help whys life never simple, Sorry to hear this Cindy. Kevin
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Joined: Jan 2009
Posts: 4,501 Likes: 1
Supreme_AS_Kicker
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Supreme_AS_Kicker
Joined: Jan 2009
Posts: 4,501 Likes: 1 |
Don't know anything, but want to pass along hugs. Sorry to hear this is a possibility.
DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9
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Joined: Sep 2001
Posts: 2,762
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Joined: Sep 2001
Posts: 2,762 |
Hi Cindy
I went through what testing that could be done for MS. I can't have the definitive MRI due to all the hardware in my back. But after an exam by a neurologist that specialized in MS I was given the all clear...for now.
The main reason that I was sent down that road was because of pain in my arms and legs that wasn't thought to be related to AS or PsA.
Keep us posted!
Keep Kickin'AS Chris 
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
Oh sweetie, that just so completely sucks. I hope they're wrong. We used to have a member out in BC who had both. Haven't seen her in a few years tho. I think Orch does, too. Warm hugs,
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
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Joined: Sep 2001
Posts: 8,397
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 8,397 |
Cindy,
I am sorry to hear that, but we still pray for the right meds and for good helath for you.
Michelle was linked ot that diagnosis recently..
My Rheumy told me that I had some some 4 word stuff that was affecting my hands and my mind.
Imagine that? lol
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Joined: Apr 2006
Posts: 2,371
Colonel_AS_Kicker
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Colonel_AS_Kicker
Joined: Apr 2006
Posts: 2,371 |
Hi Cindy, just had an MRI to determine if I have MS. Don't have the results yet. The MRI done in 2005 showed what was believed to be MS lesions. I have been going back and forth between MS and Lupus. I recently found out that my high definitive test (dsDNA)could have been my possible Porphyria acting up. I call Porphyria the messing link between MS & Lupus.
Your not alone
Hugs
Gerri
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
sorry to hear that, hope its not true! as kat said, orch has reported having MS as well, just went to look at one of his more recent running posts and in it he says an MRI shows it hasn't progressed. i don't have MS, but when i was reading all the info about LDN, the thing it really seemed to help was MS, more clinical studies for LDN on MS than for LDN on anything else. and LDN also supposed to be good for inflammatory arthritis autoimmune diseases. so LDN might be able to "kill two birds with one stone", so to speak, for you. just a thought. and LDN seems to cause so little if any side effects. from what i've read, if considering LDN for MS, they suggest 3.0 mg LDN as the dosage to try. let us know what they find out, thinking of you 
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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