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30yrvet #386806 04/08/10 09:58 PM
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AS Czar
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AS Czar
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You're WELCOME!

Joined: Jul 2004
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Originally Posted By: Bleecker
John, again - you convey the idea that fasting is a proven remedy for AS.


He very clearly stated it was his opinion based on his experiences...as already pointed out by our lovely admin Mig.


Originally Posted By: Bleecker
Maybe a moderator can tack on a kind of "this is the opinion of the individual submitting this post and does not necessarily reflect either medical consensus or the opinion of Kickas.org "

I think the same should apply to a post urging use of some drug, biological or otherwise, as standard for somebody with AS.
Let the site put a polite disclaimer. Otherwise our site appears to endorse that view.


We already have a disclaimer posted on the main page of this website:

"*Medical Disclaimer*:

KickAS and its contributors are not legally liable for the content, information or opinions expressed herein.
Nothing communicated in any KickAS.org discussion forum should be construed as medical advice, regardless of the source.
Knowledge shared at KickAS.org is of a personal and not professional nature. Points of interest gained from this site should be discussed with your physician or specialist before making any change to your course of treatment.
In pregnancy, a low carbohydrate diet is potentially harmful to fetal development. Everyone needs a diet that meets their nutritional needs. If in doubt consult a qualified dietician."


Everyone here knows this is the internet not the doctor's office and most are mature enough to research their own treatment options and discuss them with their primary healthcare provider.


Chelsea smile

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Kiwi #386811 04/08/10 10:29 PM
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OK

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Very_Addicted_to_AS_Kickin
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ahhh, tea yes
coffee, bleck! sick (sorry Dow and all the other coffee lovers on here) laugh2

i've had "blood sugar issues" most my life, maybe all my life; been prediabetic at least 10 years now according to blood work. think i've got the food thing mostly figured out to maintain my blood sugar (i can feel when i eat right and when i don't), problem is, as the insulin resistance gets worse and worse, its been a moving target, always relearning how to eat, always having to reduce my sugar and now complex carbs further and further.

with that said, sounds like you too can just listen to your symptoms and eat accordingly.

for me, my blood sugar does seem the most "fragile" in the AM (important to eat right away upon waking and to eat exactly the right things).

if you want to keep eating the toast and marmalade, maybe a little nut butter on there too, or eat an egg with the toast and marmalade. i find that the right balance of fat, protein, complex carbs, and even just a little sugar work the best for me. a typical breakfast for me is: some combination of a bowl of total cereal, 1/2 banana or small clementine orange, 1/2 slice whole grain bread w/ a tablespoon of peanut butter, an egg. and a nice big mug of ginger tea, yum.

and one of the most important parts of my "diet", walking! it really helps the body process the sugar so much better.



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
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no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Very_Addicted_to_AS_Kickin
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fasting:

i've watched others around me do this for at least a day with seemingly little difficulty. from those experiences, i think a lot of people's body's seem able to handle it. i also teach biochemistry, and if a person's insulin is working properly, should be able to handle a fast, for days.

however, if a person has diabetes, prediabetes, insulin resistance, hypoglycemia, fasting can be uncomfortable at best, dangerous at worst. that's my comments from being a biochemist, reading about and teaching this in class.

now my personal experience. i've had blood sugar issues my whole life, been prediabetic for awhile now, have been able to prevent the diabetes thus far, through diet, exercise, and weight management, though its also a challenge. when i don't eat for too long, i develop migraines and just feel really out of it. even fasting 12 hours for blood tests (lipid profiles, blood sugar) is really difficult. much easier if i go to bed right away after i stop eating. and get the blood drawn ASAP after waking up. so that night i sleep as long as possible. so even "fasting" 12 hours for medical reasons can be very difficult for some of us.

there is another reason why i feel someone should not fast. i have gastritis. if i don't eat regularly, the gastritis flares and i have a lot of pain. if i eat regularly, whenever i start to get hungry, normally no problem. i needed blood work done yesterday morning, didn't go to bed right away after eating last meal of the evening, so had to take mylanta before bed, and when i got up. and today, my stomach is still a bit messed up. so if someone has gastritis or an ulcer, i think that's another reason why fasting could be dangerous.

doing a liquid diet (broths, juices, jello) to prepare for some procedures is a little easier for me.



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Sue22 #386863 04/09/10 03:14 AM
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There is no generally accepted reason that fasting should be beneficial. Yes, there are individuals with AS that are sure it has helped them. That's as far as it goes.

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Silver_AS_Kicker
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Your opinions are just as valid as everyone else's John. The point is that you present them in such an overbearing way that you manage to offend every other person who doesn't happen to agree with you.

But you go further.

Then you actually insult us, you belittle and demean us. You have, on many occasions insinuated that we are less enlightened than your holiness, Dragonslayer.

Furthermore, your supposed credible research that you have provided is completely undermined when you source "experts" who channel Atlanteans. Atlantis doesn't exist, it never did. It is merely a passing reference in some ancient Greek texts from a time when fanciful beliefs in Dragons and Gods throwing thunderbolts were commonly accepted as "facts". Deriving your medical knowledge from such sources refutes your entire argument.

Your passion for trying to convince every person alive that they are idiots for not following your advice and bowing at your feet as one of your acolytes is so far over the line that it is shocking that the admins support and defend you.

The diet itself is just fine. If people want to try it, there isn't reason for them not to. Cutting starch out of your diet shouldn't be harmful if you take care to avoid malnutrition, it sounds as benign as any of the other plethora of diets out there.
If only you could accept that this is your choice and you happen to agree very, very strongly with Dr. Ebringer's body of work, this would never have become an issue.

Yet you insist that you are right and only you are right. All others are put down and it is childish to pretend this isn't so...the truth of it is all over the internet.

You have been on this particular crusade for years now. You have been driven off of other sites because of it and yet you continue to behave rudely and push your views on to others.

For some reason, the admins tolerate this bullying behaviour and actually come rushing to your defence if anyone dares to question you, no matter how polite or courteous the questions might be worded.

I'm disappointed to see what is becoming of this wonderful site. I didn't come here to engage in debates about the NSD, I thought that is why you have your own forum dedicated to it. When I post something that Mig deems more appropriate in another forum, it gets moved. You and your followers have free reign of the entire site and spout your views in every single conversation.

If you want to claim to have the credentials to back up your claims and give out medical advice, then you better be able to back that up. Otherwise, you are most certainly breaking a number of laws. Of course, there are more qualified people in here to comment on what is or is not illegal but I suspect you are dancing on a very thin line.

In my opinion, anyone who tries to bully someone or pressure them into avoiding actual doctors or adopt any particular treatment plan over another should be banned.

You can edit my comments all you like but it isn't going to change anything. Too many people are becoming upset by your behaviour and if the admins refuse to do anything about it, I hope that you will give this whole issue some thought and start behaving responsibly.

You are just one man with an opinion. Please accept and respect the fact that there are several billion of us out here who may or may not agree with you and your particular beliefs.

Chris

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Originally Posted By: DragonSlayer


Fasting is NOT "problematic" for SOME people willing to eliminate their AS symptoms--



No John, what this actually says is that of the people willing to eliminate their AS syptoms, some of them will not have any issues with fasting.

The implication is that everyone else who doesn't agree must belong in the category of those who are not willing. Please don't insult my intelligence by denying it - you wouldn't have written it if you didn't mean it and you have written in many ways, many times before.

Also, your frequent use of all caps, is generally considered to be rude and aggressive behaviour that is banned on most other sites.

While I'm on the subject, taking people's comments out of context to create straw-man arguments is pathetic. Any reasonable person can easily go and look at the comments as they were intended to be heard but you and others like you, rely on the fact that most people are just too preoccupied with other things to care enough to check the source.

What you don't seem to get is that you drive more people away from the NSD than you have ever encouraged to try it. If your intention is to help others and educate them out of a sense of compassion, it isn't coming through in your posts.

If only you could stop pretending that you are more qualified than actual doctors, who have taken the time to get an education - which can be in excess of twelve years worth of study.

My personal opinion is that you should be ashamed of yourself and this site should make great efforts to distance itself from your opinions.

Your behaviour is anything but enlightened and I pity those who willingly choose to call themselves your acolytes.

That is my opinion and I do not claim to have any credentials to back it up. All I have is a mind and a heart and a driving need to stop you from destroying this site.

Chris

Kiwi #386906 04/09/10 07:00 AM
Joined: Jun 2008
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Silver_AS_Kicker
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Most of us also don't make a habit of brow-beating everyone else who doesn't accept our own personal treatment plans.

We don't insult people who don't accept our beliefs.

We don't bully others or try to convince them to stop going to their doctors either.

DWK #386907 04/09/10 07:09 AM
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gl with it kicking the AS.i hope you find some relief sooner rather than later. grin

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