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Joined: Feb 2004
Posts: 854
Master_AS_Kicker
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OP
Master_AS_Kicker
Joined: Feb 2004
Posts: 854 |
Hi Friends,
Once again, my bowels, stomach, intestines, everything is hurting. I was in the hospital for the majority of the day on Friday, and contemplating going again. This is getting rediculous. My specialist that I have been seeing for this problem, is away until March 3rd. Of course, it is now that its acting up. I just don't want to be looked at, at the hospital like what the heck are you doing here today again! Ug. The doctor on Friday was really nice and because of him, i can get on the hospital network for my i phone. sweetness. will pass the time quicker now. This is the time where self employment sucks as... no working=no paying:(
Thanks for the support everyone, hugs to you who are in pain too.
Sam
And for all 'those' people out there who think that anti starch diet will cure all, I'm on it right now.
Samantha
A.S. Fibro Undiagnosed Chronic Fatigue
Live like nobody is watching, Love until you can't and Travel to the moon & back
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Joined: Dec 2008
Posts: 5,231
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Joined: Dec 2008
Posts: 5,231 |
Sam - I'm so sorry. That sounds so miserable. I have celiac, not IBS, but I understand the symptoms - they're fairly similar, and what a miserable thing it is. The cramping and sweating were pretty much as bad as the pain. Really hope it improves soon. Lots of hugs 
Wendy
Rheumatoid Arthritis Methotrexate, Celebrex, Plaquenil
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Joined: Apr 2006
Posts: 2,371
Colonel_AS_Kicker
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Colonel_AS_Kicker
Joined: Apr 2006
Posts: 2,371 |
Hi Sam, like Wendy after I was diagnosed with Celiac, my IBS symptoms pretty much disapeared. My doctor asked about my IBS, I told her I hadn't had an attack since following the Celiac diet.
Yes, I know your pain.
Hope you get answers soon.
Hugs Gerri
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Joined: Feb 2004
Posts: 854
Master_AS_Kicker
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OP
Master_AS_Kicker
Joined: Feb 2004
Posts: 854 |
Thanks Gerri and Wendy; I was tested for Celiac, since my relatives have it. I'm negative for it. I just want help! thanks for the support. it means a lot to me.
Samantha
A.S. Fibro Undiagnosed Chronic Fatigue
Live like nobody is watching, Love until you can't and Travel to the moon & back
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Joined: Feb 2010
Posts: 1,524
Gold_AS_Kicker
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Gold_AS_Kicker
Joined: Feb 2010
Posts: 1,524 |
Hi Samzee Nice to meet you. Hope you're soon feeling much better. 
KickAS and help others do the same!
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Joined: Apr 2009
Posts: 1,576
Gold_AS_Kicker
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Gold_AS_Kicker
Joined: Apr 2009
Posts: 1,576 |
Hi Sam, Hoping you are feeling better soon!! Have you taken sugar, fruit and dairy out of your diet too?? I know, "what's left" right? Pretty much bird seed and meat.  Just kidding!!! Take care! -Donette
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Joined: Feb 2004
Posts: 854
Master_AS_Kicker
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OP
Master_AS_Kicker
Joined: Feb 2004
Posts: 854 |
Hi Tinkerbell, nice to meet you too
Samantha
A.S. Fibro Undiagnosed Chronic Fatigue
Live like nobody is watching, Love until you can't and Travel to the moon & back
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Joined: Feb 2004
Posts: 854
Master_AS_Kicker
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OP
Master_AS_Kicker
Joined: Feb 2004
Posts: 854 |
Donnette, Yep; i rarely eat sugar and cant remember the last time I had dairy! I do eat fruit though. Not a lot. I'm more of a carrot and celery person!
THanks for the suggestion, Sam
Samantha
A.S. Fibro Undiagnosed Chronic Fatigue
Live like nobody is watching, Love until you can't and Travel to the moon & back
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
hi sam,
sorry to hear how bad you are doing. can't remember, have you had a colonoscopy to check for IBD?
for me, it all starts in my stomach; family history of ulcers, so far i've only had gastritis, painful but less dangerous.
once my stomach gets bad enough, then the bowels go too.
i kept a food diary for a few months to figure out what made my stomach better and worse because i really did see the connection.
for me the bad things were caffeine, dairy, underripe fruit, anything acidic (citrus, cranberry, sour / underripe fruits, rose hips). also for me eating frequent small meals was key. prilosec and mylanta and psyllium too.
i know my stepfather with crohn's is affected by certain foods, completely different than my list; for him its seeds and nuts and corn, any roughage that could plug up his colon where the crohn's is.
thus a food / symptom diary might be able to help regardless of what is wrong in the gastro intestinal area. especially if you notice some things bother you while other things don't. but i never could have figured it out by observation alone. that diary to look back on was so important. and even with that it took me a few months.
also psyllium seems to help both me with gastritis, step dad with crohn's. have heard others who find it helpful as well. maybe ask your doc about that? for me its good for both diarrhea and constipation and seems to sooth the stomach as well.
just some ideas which may or may not be suited to your particular situation.
just hope you feel better soon.
sue
Spondyloarthropathy, HLAB27 negative Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.) LDN/zanaflex/flector patches over SI/ice vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K. chiro walk, bike no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Feb 2004
Posts: 854
Master_AS_Kicker
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OP
Master_AS_Kicker
Joined: Feb 2004
Posts: 854 |
Thanks Sue. I will keep them in mind. i have started a food diary over the last month, but i think im going to keep it more active now! Good to think about. glad i'm not alone!
Sam
Samantha
A.S. Fibro Undiagnosed Chronic Fatigue
Live like nobody is watching, Love until you can't and Travel to the moon & back
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