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rob77 #359453 10/02/09 09:26 AM
Joined: Jun 2008
Posts: 75
M
mez Offline
Apprentice_AS_Kicker
Offline
Apprentice_AS_Kicker
M
Joined: Jun 2008
Posts: 75
Oh Rob, I'm so sorry to hear this, It makes me feel so guilty & sad Because I'm doing so well on Humira, Just want everyone to do well on it too.
I have no answers my friend, I just hope somebody out there does.
Mez

rob77 #359454 10/06/09 05:50 AM
Joined: May 2008
Posts: 33
F
Member
Offline
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F
Joined: May 2008
Posts: 33
Oh no, what a crapper! It must be so frustrating to be responding so well in one way to the meds and at the same time be responding so badly. It can really suck at times.

Hopefully the next plan of action works for you.

Lee

Joined: Mar 2009
Posts: 185
rob77 Offline OP
First_Degree_AS_Kicker
OP Offline
First_Degree_AS_Kicker
Joined: Mar 2009
Posts: 185
Thanks Lee and Mez..... I am very confused/ frustrated/lonely? and depressed at the moment. I just don't know whats gonna happen. Back to nsaids which are simple and ok.....also back to chronic pain and disabled person. but keep thinkin about later down the track and AS progression..... anyways. kickas... wooo.
Rob

rob77 #359456 10/07/09 06:07 AM
Joined: Mar 2009
Posts: 232
Second_Degree_AS_Kicker
Offline
Second_Degree_AS_Kicker
Joined: Mar 2009
Posts: 232
Hi there

Did simpioni get discussed? Did they say no benefryl?

Ge'ez.

Hope you found smooth whiskey to take the discomfort out of the comfort.

Joined: Mar 2009
Posts: 185
rob77 Offline OP
First_Degree_AS_Kicker
OP Offline
First_Degree_AS_Kicker
Joined: Mar 2009
Posts: 185
Hey..
Simponi isn't in Austalia yet... and the reaction was in my blood apparently .(anaphylactic reaction too). the doctors at the hospital are goin all House MD on the situation...but they def did not want to continue with it. i go back on the 19th for more bloodwork and talk about possible pre medding with something to counter antibodies if i go on remicade next... arrrgggh. Nsaids and Scotch is much more simple. Rob

rob77 #359458 10/07/09 07:05 PM
Joined: Aug 2009
Posts: 78
G
Apprentice_AS_Kicker
Offline
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G
Joined: Aug 2009
Posts: 78
Hang in there. You aren't being a "wuss" at all, what you are experiencing is just not normal!! You will find something that works, I know you will. I had to skip my 5th Enbrel shot this week due to sinus infection. . .

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