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Joined: Jul 2009
Posts: 296
Third_Degree_AS_Kicker
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OP
Third_Degree_AS_Kicker
Joined: Jul 2009
Posts: 296 |
Hello all i'm new here and been told i've got AS. i've been on sulfasalazine and its not working very good. now doc is leaving me on that and adding methotrexate. took first dose last week and didn't feel good first few days all day and then just afternoons and had no energy. does that go away after awhile?
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Joined: Sep 2001
Posts: 2,762
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Joined: Sep 2001
Posts: 2,762 |
Hey Dennis First Welcome Aboard!! I have taken MTX on and off during my battle with AS. It has the same effect on me as those you describe. I hate the stuff!! It does little to nothing for me, yet the docs throw it in there whenever they feel that I am using to many steroids to control my pain. With the MTX I can feel like crap and still hurt, so I guess that is the bonus...  I hope that your doc also put you on some Folic Acid to go with the MTX. This wil help control your liver enzymes which can go off the charts while you are on MTX. Good Luck!
Keep Kickin'AS Chris 
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Joined: Dec 2008
Posts: 5,231
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Joined: Dec 2008
Posts: 5,231 |
Welcome to AS, Sooner!
What dose of mtx did you start on? I am on mtx but starting with a very low dose and increasing very slowly to minimize the possibility of side effects.
Wendy
Rheumatoid Arthritis
Methotrexate, Celebrex, Plaquenil
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Hi sooner and welcome to KA...it's a wonderful place for those dealing with AS, full of great people and information!  I'm on Methotrexate and Enbrel...when I first started taking the MTX, I felt the same way but gradually my body got used to it and now it doesn't bother me at all...make sure that you take your folic acid with it, like Chris said, it will help keep your liver on track and help with other side-effects too....I hope you feel better soon and again, welcome to KA!!
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF  
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Joined: Jul 2009
Posts: 296
Third_Degree_AS_Kicker
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OP
Third_Degree_AS_Kicker
Joined: Jul 2009
Posts: 296 |
Life is short stop and smell the roses
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Joined: Jul 2009
Posts: 296
Third_Degree_AS_Kicker
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OP
Third_Degree_AS_Kicker
Joined: Jul 2009
Posts: 296 |
yes doc did put me on folic acid. but i messed up yesterday was not supposed to take it the day i take my mtx.
Life is short stop and smell the roses
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Joined: Nov 2002
Posts: 6,928 Likes: 3
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2002
Posts: 6,928 Likes: 3 |
I hope it helps you. I tried the pills and the injections but they just didn't work for me. My hubby is taking it now and has been on it 6-8 weeks and is seeing results. He is happy. He takes the Folic Acid every day except MTX day. He is still on 4 pills a day. Will probably go up at the next dr. appt.
He tried it before but it didn't help. I am so glad it is helping now. I hope it helps you.
Blessings.
Possi
![[Linked Image]](https://www.kickas.org/images/flowers/Smilingsun.gif) Possi ********************************************************* RUN WHEN YOU CAN, WALK IF YOU HAVE TO, CRAWL IF YOU MUST, JUST NEVER EVER GIVE UP! "A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS." "A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."
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Joined: Dec 2008
Posts: 5,231
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Joined: Dec 2008
Posts: 5,231 |
Okay - so 15 mg, which is the standard dose I think. Did you build up to this slowly or did your doc put you on that level straight away? It seems as though you are less likely to get side effects if you increase slowly.
Wendy
Rheumatoid Arthritis
Methotrexate, Celebrex, Plaquenil
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
sooner...like Wendy said, if you're tapered up on MTX, you're less likely to suffer as much from the side effects...my rheumy started me off on 5 mg. and then did a liver panel and raised the dose the next week and then repeated the raising of the dose and the lab work weekly until it reached the max that my body can handle, evidently this was decided by my lab results...since then, I've stayed at 20 mg. and when that didn't stop or slow down the forward progression of the disease, Enbrel was added to the MTX...I still haven't seen a difference but I go back to my rheumy next week...but definitely make sure that you take prescription strength folic acid, it helps so much with the side effects, I can tell when I forget to take it...hang in there... 
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Jul 2009
Posts: 296
Third_Degree_AS_Kicker
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OP
Third_Degree_AS_Kicker
Joined: Jul 2009
Posts: 296 |
started out on that dose along with 2000 mg of sulfasalazine
Life is short stop and smell the roses
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