Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group I am a little frustrated..

Sorry to hear all you've been thru! Back when I used to be on here a lot someone called it the Spondy Monster. Think that's a good name for it. It's very frustrating to say the least. Some days worse than others. Can relate to the "I just want to be normal" feeling. Just want my old life back, the one I had when I could depend on my body. Hope you feel better soon! Peace&Light

missed you too! but knew you were healing up that achilles tendon and so glad to hear how nicely it is coming.

good luck to your daughter as well on the new med, been hearing a bit about it on here recently. sounds promising,

sue

So glad your surgery was a sucess, but sorry to hear your AS pains are worse. As Lon said, it could just be down to being more active now the tendons are better.

I don't have AS, but can really relate to wanting to feel normal! Have had various health problems since an early age, and envy people who only see their Dr once a year! I sometimes wonder how it would feel like to get through a day without symptoms and fatigue, being able to get up and go as soon as the alarm goes off, not having to take various meds every day, and in my case also take insulin shots 4 times a day Have had type 1 diabetes since I was 5, so virtually all of my life, and it doesn't really bother me now, but other people seem to make such a big thing of having to inject 4 times a day! To me, it is like brushing your teeth, just something you do every day

The thing I really hate is that "healthy" friends think I am a hypochondriac, and don't understand that I am more prone to infections and suffer worse from them due to the diabetes. They will come into work every day when they have a cold, and I need to have three days off work to recover! They think I give in too easily; just wish they knew what I went through

Any way, keep up the good healing work, and I hope your AS pains settle down soon

Emma.

diabetes runs on both sides of my family and i am insulin resistant so i understand the disease a little, though i know type I can be a whole different kettle of fish too. and even if your "healthy" friends don't understand, we do

sue

hey just putting in my 2 cents.. well more like my well wishing. hope your feeling better now. we are all amazingly strong. we go through stupidly unfair pain... but .. have learnt to look on the bright side of life

big hugs!!!

Sonja

Hi Tamara,
Good to hear you are back on your feet. Sorry the AS is being a pain. If you are feeling "not normal" you are in good company with all of us! LOL some weeks I put on the grocery list "new body for Mum". So far no one has found one in the local supermarket. i hate how every time I sigh or grunt or moan with pain just doing the "normal stuff" in life my partner jumps and says whats wrong and I say just hurts thats all he gets so worried and doesn't seem to understand that there is always somewhere that hurts.
Take care

I had my Rhuemy appt. and it went as I expected.. He and I both feel I am only getting about 20% out of the Enbrel..He wants to try Humeria or Simponi.. I asked about the over $3000 of Enbrel in my fridge??? Anyway.. We are going to continue on the Enbrel for 2 more months re test re take labs just to see.. Lon yes you are right the body has to get going again and that could be why it is so stiff and painful.. So ok 2 more months we will try this.. I guess I just had really high hopes that the Enbrel would work great and the surgery would be great and Yeah I would feel fantastic and be all better.. HAHA.. nice dream not back to reality and fighting AS!
Thanks all for listening!