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Joined: Oct 2006
Posts: 2,001
Major_AS_Kicker
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OP
Major_AS_Kicker
Joined: Oct 2006
Posts: 2,001 |
I saw the physiatrist today who prescribed a pred taper for me to see if we can get some of this stuff to quiet down and get me some relief.
Day 1 is 6 x 10 mg and then I taper from there.
This is a new one for me and I haven't decided if I want to take them or not. Anyone want to chime to in with pros and cons. What side effects can I expect? How much will it help?
My MRI is scheduled for next Thursday, so I won't take the pred before then. I don't want to squelch any inflammation which might be present and show up on the MRI. We NEED to find some inflammation in me.
Karen
I cannot make the universe obey me. I cannot make other people conform to my own whims and fancies. I cannot make even my own body obey me.
Thomas Merton
Hope is the thing with feathers that perches in the soul - and sings the tunes without the words - and never stops at all.
Emily Dickinson
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Joined: Sep 2001
Posts: 8,397
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 8,397 |
Karen,
That pred. taper has kept me out of the hospital several times. Within two days I was better. But it is not for everyone. My wife,R.N. has seen some bad side affects. So be careful.
Br'er Lon
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Joined: Aug 2008
Posts: 570
Sergeant_AS_Kicker
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Sergeant_AS_Kicker
Joined: Aug 2008
Posts: 570 |
Hi Karen, I've done more pred tapers for my asthma than I care to count! The nice thing is that it's short-term, so those side effects won't last. I do notice that the first day gives me great energy, so I've done some excellent house cleaning during tapers.  You can get irritable and stuff like that, but it's not going to cause moon face or anything in that short a time. The pills taste horrible, and you will want to eat when you take them, too -- they can be hard on the stomach. If it will help kick-start your body into feeling better, I say go for it. Good luck!!!
In the depths of winter, I finally learned that there was in me an invincible summer. -Albert Camus
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Joined: Oct 2006
Posts: 2,001
Major_AS_Kicker
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OP
Major_AS_Kicker
Joined: Oct 2006
Posts: 2,001 |
Thanks, Lon. What bad side effects? I want to have a good idea of what risk I'm taking. I realize that "bad side effects" only happen to a small percentage of people, but it's nice to know.
Karen
I cannot make the universe obey me. I cannot make other people conform to my own whims and fancies. I cannot make even my own body obey me.
Thomas Merton
Hope is the thing with feathers that perches in the soul - and sings the tunes without the words - and never stops at all.
Emily Dickinson
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Joined: Oct 2006
Posts: 2,001
Major_AS_Kicker
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OP
Major_AS_Kicker
Joined: Oct 2006
Posts: 2,001 |
Irritability is a side effect. What else? How long can I expect these things to last? Unfortunately, I'll be taking these right at the beginning of the semester, so I need to know if and how I'll be impaired.
Karen
I cannot make the universe obey me. I cannot make other people conform to my own whims and fancies. I cannot make even my own body obey me.
Thomas Merton
Hope is the thing with feathers that perches in the soul - and sings the tunes without the words - and never stops at all.
Emily Dickinson
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Joined: Aug 2008
Posts: 570
Sergeant_AS_Kicker
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Sergeant_AS_Kicker
Joined: Aug 2008
Posts: 570 |
I never noticed any side effects except mild irritability. How many days are you tapering?
In the depths of winter, I finally learned that there was in me an invincible summer. -Albert Camus
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Joined: Aug 2003
Posts: 2,717
ironchef
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ironchef
Joined: Aug 2003
Posts: 2,717 |
ktl, aloha
pred...one set of doses, may turn down some of the inflammation.
pred's not sumptin' ya wants to be doing on a regular basis...it's an 'emergency'...
once in a while sort of thing.
it will depress your immune system (a good thing- that's why it works)...mood swings
maybe yeah over a couple of weeks, but that cataracts, weight gain (huge), osteoporosis...they all take some time to happen...those are long term effects.
good luck
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Joined: Oct 2006
Posts: 2,001
Major_AS_Kicker
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OP
Major_AS_Kicker
Joined: Oct 2006
Posts: 2,001 |
I cannot make the universe obey me. I cannot make other people conform to my own whims and fancies. I cannot make even my own body obey me.
Thomas Merton
Hope is the thing with feathers that perches in the soul - and sings the tunes without the words - and never stops at all.
Emily Dickinson
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Joined: Feb 2008
Posts: 484
Warrior_AS_Kicker
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Warrior_AS_Kicker
Joined: Feb 2008
Posts: 484 |
Hey FINALLY I get to help YOU!! I'm very happy about this one...
Pred I started at 100mgs day one then day 2 50mgs taper 5 mgs every 7 days. I think it was about 2 and 1/2 months or more in length. I felt better on day 2 thank god because I had severe activity with both UC and AS at the same time. It was truely a miracle. Pred just knocked my disease activity on its butt. The amount of energy I had, I sorely miss. It was incredible. I needed on average 5 hours sleep and was happy to get up. I slept 2 hours once and didn't need to sleep any more! My doc said he couldn't go over the list of side effects because its too long. I did experience some acne, large appetite, I believe in life that there are very few reasons to get mad, and I havent been MAD in years. BUT after a while I would have to tell my girlfriend that I feeling on edge. That NEVER happens to me. So ya there were mood swings. Long term pred is hardly prescribed anymore because harmful side effects become significantly more probable. You most likely don't have to worry about that. I stared my last pill down and said "you were great to me but good riddance" I think that statement sums it up.
Hey, somebody stole my quote! - Me
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Joined: Feb 2008
Posts: 484
Warrior_AS_Kicker
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Warrior_AS_Kicker
Joined: Feb 2008
Posts: 484 |
Wait, I can't prescribe calcium/magnesium pills, but you need to supplement. I took at least 1000MGS calcium/333MGS magnesium a day along with Vitamin D about 2000 IU... wait I just read 6 days taper.... Thats very short. Eat some calcium haha...
Hey, somebody stole my quote! - Me
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