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Oct 6th, 2025
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Joined: Jan 2008
Posts: 8
New_Member
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OP
New_Member
Joined: Jan 2008
Posts: 8 |
I just want to extend a Warm Thank You to everyone making me feel so welcome here.It is such a relief to read the posts here and know I am not alone!
Although I have family members that "care",I don't think
any of them have a true conception of what my reality is.
I was always the "glue" that held things together.My husband is Bi-polar...he is on medication...but still has many episodes.My son is 18 and autistic.He is on a waiting list for a special vocational rehab school.My daughter just turned 6.
Sometimes my autistic son has the most compassion for me above anyone else.
I think my husband is in a denial phase of the entire situation.This has really placed a strain on my relationship with him.
The statement "walk in my shoes for a day" always comes to mind.Yet I am faced with the reality that there are many people who have it worse than I.
I just try to do the best I can.restless
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Joined: Nov 2003
Posts: 8,190
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2003
Posts: 8,190 |
Hi Restless,
You sound like quite a woman..you sure have a plateful and it sounds like as Moms do you are the glue that holds your family together.
I am sorry that things seem so bad right now and I know it doesnt help with your husbands problems and lack of support.
You are right though you have came to the right place..we do know what you are going thru "health wise" and we are here for you.
Welcome and jump right in.
Hugs,
Lisa
Speak kindly, Live simply, Care deeply, Love generously, and BLAH, HA, HA, LOUDLY! every chance you get.
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Joined: Feb 2004
Posts: 2,117
Major_AS_Kicker
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Major_AS_Kicker
Joined: Feb 2004
Posts: 2,117 |
Hi restless,
Your welcome here anytime to ask questions or vent a bit. We will try to answer any questions you may come up with as I am sure someone here has had a sympton you may question and if not there are most likely older post containing the information you are looking for.
We have all dealt with others not understanding and it appears you have been dealt more than any one person's share. I hope after the doctors get your pain levels to a place where you can tolerate them better that things around the home will improve. Extra stress can wreak havoc with the pain levels.
Brent
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Joined: Nov 2007
Posts: 1,763
Diamond_AS_Kicker
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Diamond_AS_Kicker
Joined: Nov 2007
Posts: 1,763 |
welcome... praise the Lord you are so strong! It is very difficult to be 'the sickest one in the family' but have to take care of everyone else non-stop! when my hubby gets one of his weekend migraines (most every weekend) it is almost a 'race' to see who gets the day off because of their 'sickness'. usually he wins and sleeps away while I'm left carrying the banner.... oh well! I know that one day I'll get my dues!! Otherwise, I'm learning to take it easy & slow down quite a bit when I'm in a bad flare....
take it easy & hang in there! see ya around!
~ Trudi: homeschooling mom to 6: 16,14,11,9,7, 6 mos
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Joined: Feb 2007
Posts: 152
First_Degree_AS_Kicker
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First_Degree_AS_Kicker
Joined: Feb 2007
Posts: 152 |
Quote:
when my hubby gets one of his weekend migraines (most every weekend)
Quick question... Does he drink a fair bit of coffee during the weekdays? Could be caffeine withdraw. If I waited too long before my first cup on Saturday morning or didn't drink enough to match my normal Monday-Friday consumption I'd get a nasty migraine by the afternoon. Just a thought.
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Welcome home!!!! 
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF  
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Joined: Mar 2002
Posts: 9,552 Likes: 10
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Joined: Mar 2002
Posts: 9,552 Likes: 10 |
I had similar issues when I consumed a lot of caffeine at work... "Weekend withdrawal".
I have now quit all caffeine drinks.... do eat an occasioinal chocolate.
Tim
AS may win some battles, but I will win the war.
KONK - Keep ON Kicking
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Joined: Mar 2005
Posts: 1,538
Gold_AS_Kicker
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Gold_AS_Kicker
Joined: Mar 2005
Posts: 1,538 |
I'm glad you found us. We're a friendly bunch, and try to help whenever we can. This is a great place to get questions answered, but it's more than that. You can come here for support when you need it, sympathy when you need it, or just a place to vent. You've got a lot on your plate right now, and my hat's off to you for being able to handle it all.
Janet
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