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Joined: Aug 2007
Posts: 8
New_Member
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OP
New_Member
Joined: Aug 2007
Posts: 8 |
I am interested in trying LDN and am fairly certain my doc will script it for me. How can I get more information on it? I have read about its use for MS, but not as much for AS or inflammatory arthritis, etc. Also, I believe there are some drugs you cannot be on while taking LDN?
Any info appreciated!
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Joined: Feb 2006
Posts: 1,483
Silver_AS_Kicker
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Silver_AS_Kicker
Joined: Feb 2006
Posts: 1,483 |
Hello
There are only a few of us trying LDN right now. Unfortunately there is no real Data out there on AS and only limited on RA. I am trying it for its effects on the immune system and AS is an Immune system disease.
I know you cannot be on any narcotic pain killers, or alcohol and LDN. AS far as I know that is the only real restriction. I would hesitate with the biologics and mtx as well.
No families take so little medicine as those of doctors, except those of apothecaries.
Oliver Wendell Holmes
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Joined: Jul 2007
Posts: 378
Fifth_Degree_AS_Kicker
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Fifth_Degree_AS_Kicker
Joined: Jul 2007
Posts: 378 |
How about this http://www.ldninfo.org/also PM Barngoddess84 - she is a wealth of info on this subject Brian
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Joined: Aug 2007
Posts: 8
New_Member
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OP
New_Member
Joined: Aug 2007
Posts: 8 |
thank you for the replies.
I don't know if it will be an option for me- I am on Enbrel, Imuran, and methotrexate, morphine, and my disease shows no signs of slowing down.
But I will read further.
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Joined: Jun 2006
Posts: 1,873
Lieutenant_AS_Kicker
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Lieutenant_AS_Kicker
Joined: Jun 2006
Posts: 1,873 |
hey, sorry I'm rather scarce these days and don't write much when I show - been having family issues. www.lowdosenaltrexone.orgwww.ldners.orgyou have to get off of all narcs and narc-derivitives. I've never heard anything about alcohol . . .  uh-oh . . . hope you can try it! It's helped me a ton.  , Bridget
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Joined: Aug 2007
Posts: 8
New_Member
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OP
New_Member
Joined: Aug 2007
Posts: 8 |
BarnGoddess - thank you.
Are you taking any other meds in addition to the LDN?
I wouldn't have a problem getting off the Avinza (24-hr release morphine). I am on a very small dose.
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Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
>> "alcohol and LDN"<< Hi there drizzit. I asked that same question of Dr Lawrence, http://www.ldnresearchtrust.org/ Dr Lawrence opines 'no probs' in moderation. I have a drink of wine, usually white wine, every evening 'cheers'. Molly Keeping on Keeping on
MollyC1i - Riding OutAS
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Joined: Jun 2006
Posts: 1,873
Lieutenant_AS_Kicker
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Lieutenant_AS_Kicker
Joined: Jun 2006
Posts: 1,873 |
hmm lemme see . . . I'm on Neurontin 1200mg which helps with depression etc and (supposedly) with pain (i'm not convinced of that) Cymbalta 30mg for depression and pain (works great on depression, can't say it does anything for pain - but those 2 are for neurological pain) and Amitryptiline and Trazodone for sleeping (I'm the worst kind of insomniac - I also use 3 OTC sleeping pills - I have to rotate them) , Bridget also I'm on birth control pills for Endometriosis (and, well, for birth control)
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