Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Spasms and Sneezing - Doubling over groin pain.

Last night I woke up to Doubling over groin pain in my pelvic sacroiliac joint . Today it's still paining but not as bad as it was during the night. Could I have done something seriously wrong, in my sleep to this joint. (I put my clavical out a few times in my sleep, over the years.)

I have had spasms of pain in this area, progressively getting worse over the last year. Sneezing feels as if my whole leg and pelvic joints are being ripped apart. What am I to do, when I don't know when this pain is going to happen?

I have pain in my lower back and the pelvic sacroiliac joint all the time. Still waiting to see the new Rheumy, and my GP will not prescribe pain medicaiton. The low starch diet works, but doesn't stop the pain a 100%. My left sacroiliac joint is now starting to act up also. Well I have to get up and walk.

Hugs
Gerri

Gerri, you are describing my early A/S symptoms to a tee. When I was in my early twenties (I'm 38 now) my S.I. joints were always flaring up and to this day, although not as bad, coughing or sneezing would give me tremendous pain from my hips to my chest and the spasms went with every one of them. The spasms were so bad they would actually stop my breathing at times. Years later I still get the painful spasms brought on by a cough or a sneeze but my S.I. joints are'nt effected anymore. All I can tell you is that over time A/S and it's symptoms do mello off and you may be experiencing the worst of it now.

Hang in there kiddo,
Steve

Hi Steve

It's good to hear from you. Is your AS being controlled by medication or diet? Do you have other arthritis, as well as AS? I understand after the fusing stops, so does the pain.


For me the pain for AS and my different arthritis can be quite bad. This morning about 4 am I was up taking a hot bath, and doing my exercises.

It doesn't pay to go off the Low starch diet. (We were celerbrating.) My daughter had just graduated from a Bachelor of Science in Nursing (Honours). We were to her graduation, last Thursday. We had to pass by Defasco Steel, and the Sulfer fumes were extremely bad. For 4 days I have also had severe earaches. I am not sure which is worse the pain in my back,sacroiliac, or pain in my ears.

I wish I wasn't so allergic to sulfa, sulfites and sulfates, I might be able to get some help, from the use of pain medication. Because of my allergies my GP(s)will not prescribe any pain medication.

I am going to see my GP today, I believe he will be changing my Blood Pressure medication. Since putting up the amount of my Ramipril, little over 3 weeks ago, I have had really dry eyes, dry mouth, and dry throat (which is also starting to become sore).

Thanks Steve for helping me understand about AS. It's very hard with Central Auditory Processing Problems,to understand my doctors. The help from you and others from this site and the "Athritis Society", has been very informative, and supportive.

If I need my self esteeme lifted, I come here. I am so thankful to have my Kick AS family here for me, only they know the pain, the AS sufferer, suffers.

Hugs

Gerri

Hi Gerri-so sorry to hear about your SI joints acting up. I've had problems w/my si joints for 6 years now. They constantly flair and when it gets really bad, I go and get the steroid injections to each side. My doc believes only to give 3 injections a year so I wait thru the pain sometimes bcz I'm afraid I'll use up my 3 injections for the year and start flaring again.

Also, in the beginning, I went to a PT therapist who was really great. He would pull on my leg so hard, I would almost come off the table I was lying on. He pulled and twisted and eventually the si joint was adjust and pain was realieved immediately. Only last few weeks, but I just kept going back for adjustments and massage and heat and tens unit treatments.

Good luck, and if you need stronger meds, don't be afraid to ask for something. You deserve to be painfree.

donna

Gerri,
With AS being different for a lot of people it is hard to say how much yours will improve. As for me my S.I joint pain was almost unbearable while they were fusing. To sit on anything, including car seats, for more that 10-15 minutes was all I could do. Even now that they are fused, I still have to be careful where I sit, to hard and I have to stand up and move around. Sneezing and coughing are my worst enemies. I have learned what makes me sneeze and how hard I sneeze and that helps. But if one sneaks up on me it is a good 30 seconds before I can breathe again. Coughing is the same way. I try to watch for the early signs of a sneeze or a cough coming on, the itchy nose and so forth. My rheumy has said I can take Claritin, so during allergy season I keep a lot of it around. I was in a car wreck 7 years ago ( I have been diagnosed with AS for 5 years, and now that I know what AS is and the symptoms, I showed signs of AS since I was 17, I am 38 now) that caused my neck to fuse together before my SI joints had fused. My neck is completely fused, and I still have a lot of pain in my neck, muscle spasms and joint pain. I asked my rheumy about it and he said that fusion doesn’t always bring relief from the pain. So I guess what I am saying is watch for signs of what brings on the spasms, sneezing, coughing, and exc. and learn to avoid them, and when you cant avoid them, prepare for them. Claritin, Cough medicine, a little extra muscle relaxer before bed (with Dr.’s permission.), and that should help.

Best of luck,

Brett

Thanks Brett

You must read my message "I am very thankfull for all the good pleople here...."

I am so very lost and don't know right at this moment how to communicate with anyone.

I do appreciated your comments. Any non-medical help that will help the pain and the symptoms of AS, will be greatly appreciated at this time.

Hugs Gerri

Hi Donna

The Tens and the Acuhealth, all sound so very good right now????

You must read my message "I am very thankfull for all the good pleople here...."

I am so very lost and don't know right at this moment how to communicate with anyone.

I do appreciated your comments. Any non-medical help that will help the pain and the symptoms of AS, will be greatly appreciated at this time.

Hugs Gerri

Hi Gerri,

I'm so sorry you have to deal with this in addition to your pain. I get so frustrated myself trying to deal with this disease and trying to understand it. I just want to let you know I am here for support. Wanda

For instance, I thought I was replying to your other post "I'm very thankful for all the good people here" I'm sorry, my head is on backwards today. I don't know how to move this to the other post. Does anyone else feel like they are losing their mental abilities?

Hi Wanda

Sitting at the computer this morning all of a sudden I sneezed. The pain was so bad. Trying to control the pain I held very tightly onto my left groin. I couldn't breath, it sure took my mind off of the other issues I was trying to deal with today.

Thanks for caring. Hugs Gerri