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Joined: Jun 2003
Posts: 157
First_Degree_AS_Kicker
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OP
First_Degree_AS_Kicker
Joined: Jun 2003
Posts: 157 |
well my issues do not seem to stem from lyme. blood tests are negative. my next investigation will be celiac disease since it has a neuropathy component. so far i've looked into lyme, diabetes, MS, and thyroid disease with all negative results. if it's not that, then i will resign myself to the undifferentiated spondylitis dx.
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Joined: Dec 2005
Posts: 809
Ninja_AS_Kicker
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Ninja_AS_Kicker
Joined: Dec 2005
Posts: 809 |
I think that undifferentiated spondylitis is better than getting a dx of "mild inflammatory arthritis".
Look on the bright side here, with that dx you have a reference for treatment. Are you on the NSAIDS?
The other thing is that you can get cracking on an exercise program that will keep your spine flexible.
Personally, I think it is good news that you have tested positive to these things.
Maggie
Today is the first day of the rest of my life
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Joined: Jan 2006
Posts: 386
Fifth_Degree_AS_Kicker
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Fifth_Degree_AS_Kicker
Joined: Jan 2006
Posts: 386 |
gidday,I,d like to wish you luck with your pursuit ...its nearly an impossible situation to deal with until you know..it must be very frustrating.Best wishes to you.jude2
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Joined: Nov 2003
Posts: 8,190
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2003
Posts: 8,190 |
well that IS good news, but I know it is frustrating not knowing for sure..
That is what me and my immunologist are doing is trying to eliminate one thing at a time..
Keep us updated,
Lisa
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Joined: Sep 2004
Posts: 329
Fourth_Degree_AS_Kicker
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Fourth_Degree_AS_Kicker
Joined: Sep 2004
Posts: 329 |
So more tests for you. I don't know which is more frustrating, not knowing or going through more tests. Good luck, I hope they can give you an anwser soon. Keep us posted.
Debora
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Joined: Aug 2003
Posts: 2,717
ironchef
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ironchef
Joined: Aug 2003
Posts: 2,717 |
hiker, aloha did you have the lyme antibody test or the western blot (did you have any bands come back 'reactive' ?) undiferentiated spondyblah is an inflammatory arthritis, btw. best aB 
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Joined: Jun 2003
Posts: 157
First_Degree_AS_Kicker
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OP
First_Degree_AS_Kicker
Joined: Jun 2003
Posts: 157 |
it was western blot. i had reactive bands for OspA which is a protein used in the vaccine. all other bands were negative.
IgG and IgA blood test came back negative for celiac disease. next is an endoscopic biopsy and 24 hour urine test. if these come back negative, i'm going to try an elimination diet.
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