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Joined: Jan 2003
Posts: 98
Apprentice_AS_Kicker
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OP
Apprentice_AS_Kicker
Joined: Jan 2003
Posts: 98 |
Hi everyone,
It has been so long since I posted, I am ashamed of myself. But I have a question or two about bone cyst. It started about a year ago with just one on my left ankle, painful but tolerable. About two months ago it was hurting and swelling pretty bad, so I went to the doc. Now he says I have four just on that one foot and at least one on the other. They are really disrupting my being able to walk normaly. I was diagnosed 3 years ago, and thought I knew quite alot about AS, however I never heard of this. Second question, what can be done if anything? Thanks for any info you have.
Debbie
Debbie
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Joined: Dec 2005
Posts: 809
Ninja_AS_Kicker
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Ninja_AS_Kicker
Joined: Dec 2005
Posts: 809 |
Quote:
Hi everyone,
It has been so long since I posted, I am ashamed of myself. But I have a question or two about bone cyst. It started about a year ago with just one on my left ankle, painful but tolerable. About two months ago it was hurting and swelling pretty bad, so I went to the doc. Now he says I have four just on that one foot and at least one on the other. They are really disrupting my being able to walk normaly. I was diagnosed 3 years ago, and thought I knew quite alot about AS, however I never heard of this. Second question, what can be done if anything? Thanks for any info you have.
Debbie
Did he given them a name? I had a swelling when I had achilles tendonitis.
Today is the first day of the rest of my life
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Joined: Oct 2004
Posts: 503
Veteran_AS_Kicker
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Veteran_AS_Kicker
Joined: Oct 2004
Posts: 503 |
Hi
I am sorry to hear u r haing so much pain and have these bone cysts.
I am afraid its not something i know much about. Is there anything that can b done to get rid of them? Does the dr know what dr know whats causing them?
I really would b surprised if it wasnt possible it was AS related.
Good luck i hope u can get them sorted soon, and u can get some releif from the pain they r causing.
take care
heather
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Joined: Jan 2003
Posts: 98
Apprentice_AS_Kicker
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OP
Apprentice_AS_Kicker
Joined: Jan 2003
Posts: 98 |
I went to my GP with the pain and he is the one that found them. He just called it a bone cyst, of course that was about a year ago. When I went back with more pain in more places of the foot he x-rayed again and told me there were like 4 more. Still says they are bone cyst. I asked him if there was anything we could do and he said we would start with some blood work. Did that well over two weeks ago, and I have not heard a word from him. I do not know what blood work would tell him about cyst, however I am not a doc.
Debbie
Debbie
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Joined: Apr 2002
Posts: 12,465
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Joined: Apr 2002
Posts: 12,465 |
Hi Debbie, I've never had these myself, but would guess that anything to do with bone remodelling is likely related to your AS in some way. I think(?) I read somewhere in past that there's a 17% prevelance of developing these if one has a dx of AS, although my memory is not the best. Here is a link to eMedicine that might be of interest re: Bone CystsI hope your doc can find a way to help you... not being able to walk comfortably for any reason is a real hardship. mig
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Joined: Nov 2003
Posts: 8,190
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2003
Posts: 8,190 |
Hi Debbie,
I have not had issues with this, but I would think if you are having trouble with walking then you need to get some answers quick.
If it is a bone cyst..can it be drained or is it bone that needs to be filed down?
If it just with your feet have you thought about seeng a podiatrist?
Keep us updated,
Lisa
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Joined: Apr 2005
Posts: 1,167
Steel_AS_Kicker
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Steel_AS_Kicker
Joined: Apr 2005
Posts: 1,167 |
Debbie, don't wait for your doc to call you-call his office to set up an appointment to follow up on your test results. Then take it from there. In the meantime, do your internet research on this stuff and make a list of questions... 
Blessings, Sigrid
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