Kickas.org Forums Ankylosing Spondylitis General Discussion Helpful Tips How far can you push your body with as?

electric, aloha

hey...perhaps you need a new, more 'with it' doctor...

first off...indocin is one of the oldest, harshest and nastiest Nsaids on the market...it can cause ulcers all by itself
in a short time period ( some people take it for years) :shrug: indocin is also associated with depression and suicide.
there are newer (still bad, but not as bad similar meds) and anyone who prescribes indocin without a tummy protector
med is just not doing right for you...trust me on this i took tolectin for thirty years and two indocin almost killed me.

secondly...prednisone is just not something intended for maintainence...and, as a young woman, you've got to
be apprehensive about the osteoporosis to follow the bone-sucking action of steroids...AND steroids are well
known to cause mood swings, hostility, and aggressive behaviors...and it pastes your immune system.

thirdly...methotrexate is a 1950's chemotherapy med...many experience chemotherapy nausea and tummy distress
with mtx...it's a very toxic substance...AND DON'T GET PREGNANT !

fourthly...flexeril is muscle relaxer and highly soporific...anyone who says you can drive after taking a big flexeril
is just plain NUTS ! Personally i don't take any pain meds, muscle relaxants or neurontin until after i'm in the
house & my excursions by auto have been completed for the day...i will not 'just run out for ice cream'

pain meds are quite rightly useful for taking the edge off pain...nothing takes it away.

i started the back problems abbout 1964; first saw a rheumy about ten years later and his ever growing dosages
of tolectin(which i do NOT recommend) let me have a half-normal sort of life...I was strong then and pushed myself
(far down that river in egypt) way beyond the beyond...never even took a sick day till 1989...just hobbled on.

life is precious...exercise and stretching are so necessary to live thru this thing.
you're entitled to some relief,
i so hope you get it
best,
aloha Ben

yes they had me on all them drugs for months and months i gained weigh from steriods, and nothing seems to help anyway so i took myself off all drugs. when they told me i could bleed to death on all those meds i quit and said i'll take my chances with the di. i was on like 8 pills at the same time i thought that was just to much.then the next dr wanted me on embrel, and i quit going to the dr's all together.yes i am a little bull headed, special when i feel like a test animal. but that dr was also very rude i dont like rude ppl either! when the first dr put me on all those meds he told me it was alright to drive, guess he was wrong about that to the day after i started taking them i had my kids in the car and was involved in a wreck, my fault. if they would have tested me i would have got a dui for those meds, i did not know that til after it happened. thank goodness they did test me.

I understand completely... your story seems identical to mine except that I don't have children and I've let it go on far too long. I've spent too much time trying to explain myself to people that will only give me 5 minutes and now even I'm questioning my sanity. I don't know what to suggest to prevent that or I would have done it myself but hopefully just knowing someone else feels the same might help.

Sharon

Quote:

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steroids are well
known to cause mood swings, hostility, and aggressive behaviors...and it pastes your immune system.

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Agree 100%, experiencing that now, for the second time. No more steroids for me - ever.

hi, and yes it does seem like i spend more time explaining myself to ppl, and they still dont seem to understand even my husband, he says he does but i just dont think anyone fully understands unless they feel it for themselves. i bet you get the same replys as i do,(it could be worse) i like that one. or something like that! lol they wouldnt say that if they had to live with the day in day out never ending pain. but then on the other hand i dont like ppl felling sorry for me either! i just want to deal with it the best i can and move on with life, it just a little harder to do with as and ra. but life must go on!

Hi
I know where u r coming from with not wanting people to feel sorry for u, i am very much like that myself. I guess it must be hard for people to know how to treat me sometimes, i like people to show they care, but try treating me like an invalid or feeling sorry for me and i am having none of it! I guess just wanting to get on my life is my way of dealing with things. For me its the only way! I dont like havin to keep explaining myself either!
take care
heather

You did such a good job with this answer.

I would LOVE to be off the Prednisone but it seems I am "stuck" at 5 mg. After I get this kidney thing figured out, I am going to try it again. One mg. per month to get as low as I can. My dr. says every mg. makes a difference.

Hope you are doing well.
Possi