Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group kind of new

Sorry your in such pain. Your Doctor if he refuses to hear you about how much pain you are in is an idiot. That is being kind. If he refuses to even refer you to a rheumy just to check out the possibility of better treatment of med's then he is a dangerous idiot.

I like you can't remember what it is like not to be in pain. I will be like this always, such is my AS. I, if I were you, knowing how the pain affects me would still find a way to commute to another Doctor. The trip may hurt but its better than every day facing pain with no hope of better medical aid.

Maybe you could find the DOc's around you and make some calls or before going and see if they know anything about AS or who the most likely DOc in the area is to truly heop you. You don't want to waste a trip if the new guy isn't informed either but be proactivie and do something other than wait for your current fool Doc to smarten up.

Hey.... you didnt say where in VT you are living now?? I live in VT and just found a fabulous doctor who is taking new patients in Keene NH (very southern NH/VT) His name is Bartenhagen. He just Dx'd my AS about 6 weeks ago when every other RA and my own pcp said my lower back pain was not related to any of the other 'inflammatory processes' I had going on. I did test + for the gene HLA-B27
I am still trying to get the pain under control... I go back on the 13th of Jan.

Good Luck to you.. hope this helped!

~diane

i live in southern vermont, at the bottom of mt snow. only a half hour from new hampshire.i see the local country bumpkin doc, and its not enough. vocational rehab is supposedly goin to help me find pain management again. i take neurontin for nerve pain, and dolobid for anti inflammitory. they give me muscle relaxers, becuase the pain keeps me up. but if i take them , i sleep really sound, and i wake up so stiff i need help out of bed. so they are useless to me. i dont want a bunch of narcotics every day, i have 5 kids, from toddler to teens, and i have to be awake and aware. but [**BLEEP**], when i over do, or wake up in agony, itr would be nice to have a way to relieve some of the pain. i feel like crawling out of my body, just a break for a few minutes, lol. sometimes it hurts so bad, i feel like ill go nuts. yes, i will find a new doc, because i havent even had any tests or x rays for nearly 2 years. just sittin around suffering. im fed up. and this site is awesome, and a lifesaver for me thus far.thanks for all the feedback

Hey, Day, Diane and Megaby, welcome to Kick AS. This place has become such an important part of my life since I was Dx'd, and I trust you all will find it so as well.

Tim, I have a quick question about the NSD/LSD. Does it seem to have better results for those who are HLA B27+, or does the antigen result make a difference to the success of the diet?