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Joined: Jun 2003
Posts: 483
Warrior_AS_Kicker
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OP
Warrior_AS_Kicker
Joined: Jun 2003
Posts: 483 |
Tomorrow it is seven months since I started Humira, and I have been in remission pretty much ever since!
Can sleep as long as I please, no morning stiffness, no painful back spasms anymore. No gross night sweats and fevers either. No more sliding backwards out of the bed and crawling to the chair. The crutches are in the closet and I don’t plan on using them anytime soon. Haven’t been well for this long since high school; had an allergic reaction to Remicade, and Enbrel didn’t hold things back after a while. Rest of these 7 years I've been in a constant flare, so 7 good months is a big deal to me.
Bloodwork is very unimpressive nowadays – ESR 15 from having been over 100 before Humira, and CRP isn’t even detectable with the highly sensitive assay. Earlier this year, they were really high and didn’t budge much even with numerous cortisone injections and pred tapers. In a while, we’ll try tapering MTX a few steps since Humira is working so well. It’s helping both the spine as well as peripheral joints and inflammatory non-AS-things, so it is really working overtime.
Pain is minimal unless I do some really stupid stuff.
Thank goodness for the biologicals and for great rheumies!
Nina
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Joined: Jul 2001
Posts: 4,728
Supreme_AS_Kicker
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Supreme_AS_Kicker
Joined: Jul 2001
Posts: 4,728 |
I'm so glad for you Nina  Wonderful news, and long may it continue! Loz  " Think like a wise man but communicate in the language of the people." William Butler Yeats (1865 - 1939)
Loz - Life isn't always a matter of holding good cards, but sometimes of playing a poor hand well.
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Joined: Jul 2004
Posts: 773
Magical_AS_Kicker
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Magical_AS_Kicker
Joined: Jul 2004
Posts: 773 |
Great news Nina,
These are the results we all hope for. Sounds like you almost forget you have AS at times. Hope it lasts forever.
Klem
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
Nina, how lovely to hear that one of our family is responding to treatment so well. I do hope that this continues for you.  Good luck cutting back on the MTX. Hugs, Kat "A life lived in fear is a life half lived." - Strictly Ballroom
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
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Joined: Nov 2002
Posts: 6,928 Likes: 3
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2002
Posts: 6,928 Likes: 3 |
I am so happy for you. May it continue forever.
Joyce
![[Linked Image]](https://www.kickas.org/images/flowers/Smilingsun.gif) Possi ********************************************************* RUN WHEN YOU CAN, WALK IF YOU HAVE TO, CRAWL IF YOU MUST, JUST NEVER EVER GIVE UP! "A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS." "A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."
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Joined: Feb 2002
Posts: 756
Magical_AS_Kicker
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Magical_AS_Kicker
Joined: Feb 2002
Posts: 756 |
Hi Nina, This is the best news I've heard for ages. I am impressed by how successful Humira has been for you. It's also wonderful to hear that you have a good rheumy. Please keep us posted with your progress, Nina. I'm hoping you stay in remission for ages ... how are your studies going ? I imagine it's much easier studying when you aren't in constant pain. Absolutely delightful... Cat xo
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Joined: Jun 2003
Posts: 3,581
Royal_AS_kicker
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Royal_AS_kicker
Joined: Jun 2003
Posts: 3,581 |
Nina,
Hip Hip Hurray, great news............It's a big lift when you et great fantastic news!
David
IBD=It's Been Dreadful
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Joined: Jul 2004
Posts: 249
Second_Degree_AS_Kicker
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Second_Degree_AS_Kicker
Joined: Jul 2004
Posts: 249 |
Nina,
From one "biologic miracle" to another, congratulations on having made it thus far...
And let us share prayers that our respective biologics (ENBREL for me) continue to be the miracles that they have been.
I'm going on four months with ENBREL now. Four amazing months of being a healthy young man for the first time in my life. An amazing feeling it is. Haven't touched prednisone since mid-July and I hope I never have to go back!
Yeah, I get a bit achy from time to time, but doesn't everyone?
Lordy, I hope I never have to be that sick again.
___________________________________________
-Mike
Certified Mad Doctor (in training)
___________________________________________
-Mike
Certified Mad Doctor
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Joined: Feb 2002
Posts: 942
Senior_AS_Kicker
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Senior_AS_Kicker
Joined: Feb 2002
Posts: 942 |
In reply to:
Lordy, I hope I never have to be that sick again.
From your lips to God's ear.
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Joined: Jun 2003
Posts: 483
Warrior_AS_Kicker
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OP
Warrior_AS_Kicker
Joined: Jun 2003
Posts: 483 |
Thanks Loz!
Humira is likely to be approved for AS here in EU within the next year or so. Hopefully many others will then have as wonderful experiences with Humira as I have.
Nina
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