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Joined: Jun 2003
Posts: 3,581
Royal_AS_kicker
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OP
Royal_AS_kicker
Joined: Jun 2003
Posts: 3,581 |
Hi,
Following the discovery that remicade was being made available on the Aussie Public Prescription Service, with the recommendation from an advisory committee only for B27 +ves I wondered if there are any of us who have fused and are B27 -ve.
I've read heaps on severity in negative disease I'd just like to consult the people who really know, the patients before I blast off a request for amendment!
David
(Wishing everyone Well)
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Joined: Jul 2001
Posts: 4,728
Supreme_AS_Kicker
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Supreme_AS_Kicker
Joined: Jul 2001
Posts: 4,728 |
Hi David, I'm B-27 negative with no fusion. (Yet?) Loz  " Think like a wise man but communicate in the language of the people." William Butler Yeats (1865 - 1939)
Loz - Life isn't always a matter of holding good cards, but sometimes of playing a poor hand well.
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Joined: Nov 2002
Posts: 203
Second_Degree_AS_Kicker
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Second_Degree_AS_Kicker
Joined: Nov 2002
Posts: 203 |
yes i'm negative for the gene and yes i have multiple fusions.
neck fusion c2-c4 c5-c7
si joints both are fused.
hope this helps you.
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Joined: Sep 2001
Posts: 967
Superior_AS_Kicker
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Superior_AS_Kicker
Joined: Sep 2001
Posts: 967 |
I am B27 neg back neck and ribs are fused with loss of motion in other joints as well.
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Joined: Sep 2003
Posts: 11
New_Member
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New_Member
Joined: Sep 2003
Posts: 11 |
I am B27 neg, back and neck fusion
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Joined: Sep 2001
Posts: 4,231
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Joined: Sep 2001
Posts: 4,231 |
I'm neg too and fused as well from head to toe. John 
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Joined: Apr 2002
Posts: 218
Second_Degree_AS_Kicker
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Second_Degree_AS_Kicker
Joined: Apr 2002
Posts: 218 |
Hello there Davo,
Nice to meet ya, I am negative and I have fusion. I was on Remicade here in the US but stopped because I became pregnant. It helped a BUNCH, made me almost forget about having AS.
Take care and have a good one,
JP
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Joined: Jun 2003
Posts: 3,581
Royal_AS_kicker
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OP
Royal_AS_kicker
Joined: Jun 2003
Posts: 3,581 |
Thankyou everyone,
David
PS going to right a letter!
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Joined: Sep 2001
Posts: 3,252
Imperial_AS_Kicker
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Imperial_AS_Kicker
Joined: Sep 2001
Posts: 3,252 |
Hi David, I am B27 - also and have fusing in my spine and sternum. Because I have major stiffness in other areas I am sure some fusing has happened, but not sure because no xrays have been done lately. Hope this helps, Lisa  
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Joined: Feb 2004
Posts: 336
Fourth_Degree_AS_Kicker
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Fourth_Degree_AS_Kicker
Joined: Feb 2004
Posts: 336 |
HI Dave, I was going to add my 2 cents worth the other day but thought I’d wait until I got copies of my Rhumeys reports (from last two years )
Well I’m still not sure what to tell ya ! Her first letter to my GP dated September 24th, 2002 , states that I’m B27 negative but then in a letter to my GP dated October 25th, 2002 one month later, she states , and I quote " Martin has extensive and advanced HLA:B27 positive ankylosing spondylitis" !!! So maybe something showed up in the second blood test she had done? I don’t know. But whatever the case, I do have fusions. Hope this helps Take care
Keep on Kicking
Martin
"Trying to fly on broken wings"
 <br>"Trying to fly on broken wings"
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