Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Most of what has been happening

Hi all,

Thanks for all the responses. I want to answer each one but for now I am going to make a general post about what has been happening.

This year has been very hard. In May 2 days after my birthday I was at the hospital. They were going to have to put a tube in mt collapsed lung. I had been having test after test done...why was I throwing up all the time? After the surgery they noticed that something was wrong. My family, minus soon to be ex-husband, were with me the whole time.

My local hospital is good but I had to be sent to a specialized hospital for help. I was flown up North to Stanford, CA where they realized that I had suffered a stroke and it wasn't known if I would survive. My soon to be ex was even allowed to ride up with me on the flight but did not. He even told my family that he would drive up the next day but didn't.

I was not conscience at all. They were giving me meds so I would not remember the awful stuff. They found out that the stroke hit in the middle of my brain. It hit the area where emotions are kept. I was at Stanford for two weeks. My Mom & Step-Dad, Aunt & Uncle and Brother were at Stanford. Soon to be ex never showed. I was flown home to my local hospital again.

I was very emotional and do not remember much of anything until I "woke up" in a different local hospital the middle of July. I still have big holes in my memory...especially the past few years.

I found out that my ex had been doing all sorts of things except visit me. He set up a password at one of the hospitals and didn't give it to my family. He somehow set up his cell phone that even the hospital could not get a hold of him. All the decisions were having to be made by my family. It was upsetting to my family to see what I was going through. I was crying for him and begging everyone to call the ex. I would come to for moments during the day and then fade back out.

When the ex came to see me in July I knew that he didn't want me to come home. I started asking my family about things too. There were a lot of things that the ex had done in the past to my family...they didn't want to hurt me by letting me know what was going on. I told my ex to get an attorney and start the divorce. I waited a bit before telling my family. I knew it was the right thing to do. The ex doesn't love me and I knew that I wouldn't be living with him again.

So here I am living with my Mom and Step-Dad. My poor Step-Dad lost his Father two days after my stroke. I am still recovering from the stroke. I have been told that I am a miracle. My Drs are in complete shock still. It has only been 4 months and I read, write, do work, some math, have good short term memory and my quick sense of humor back.

I will write some more again soon. It is not easy to get to their computers so I have to plan things out a bit.

Take care and hugggggggggggggggs,
Lisa

KickAS is more than a support group...it is a family!

Well Lisa, I'm glad to hear that you are on the road to recovery.

If I may put in a light hearted note here - when I was going through a very bitter divorce, a friend sent me a card. It read
" Divorce is like Thanksgiving - You're better off when the Turkey is gone "
and guess what - it was soooooo true.

I hope you continue to improve and feel up to posting more soon.

Maggie

Hi! So sad to here of everything going on in your life. But you are a miracle and God has plans for you I think. It sounds like your husband has lost alot more, he has lost you and probably doesnt even know what he had. Glad to here you are doing so well and keep up the good work. I really believe in miracles, my 2 grandsons 3 and 8 years old were in horrible accidents and really should have been dead but doctors said they were truly miracles to be alive. They both are doing well now and I thank God every day. Take care>>>Connie

Lisa, I cannot begin to imagine what it's been like for you this past six months or so. To say that nobody deserves it less, would be an understatement. I'm just so glad that you are here to tell us about it, and that you are freeing yourself from what sounds like a very mean man. Thank you for taking the time to update us. I appreciate the effort it must have taken. That you have progressed far enough to write this post is a very good indicator of why your docs. are in shock over your progress in the past four months.

Good for you, Lisa!! I think I can safely speak for all your KA family when I say that we are so proud of you. And we're rooting for you 100%.

Lisa, YOU ROCK!!



Hugs,

Kat