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Joined: Mar 2003
Posts: 9
New_Member
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OP
New_Member
Joined: Mar 2003
Posts: 9 |
Hi everyone!!
My name is Sally and last week I was diagnosed with AS. I would be really greatful for any suggestions especially on how to start the day when you're in so much pain.
I live in Perth Western Australia and was wondering if anyone knew of any support groups in WA.
Thanks heaps,
Sal
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Joined: Sep 2001
Posts: 6,179 Likes: 23
AS Czar
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AS Czar
Joined: Sep 2001
Posts: 6,179 Likes: 23 |
Welcome, Sal:
I hope that you will visit the NSD forum. For the majority of those doing this diet, getting started in the mornings is much easier.
Best to You,
John
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Joined: Jan 2003
Posts: 2,049
Major_AS_Kicker
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Major_AS_Kicker
Joined: Jan 2003
Posts: 2,049 |
Hi Sal! Welcome to the best support site for AS you'll ever find  I know you'll get lots of great help here. The people here are simply amazing! I think John's suggestion is a great way to start. My advice may sound trivial but the first thing I do in the morning is to take a real hot shower to loosen up all those painful, stiff muscles and joints and then I find something to laugh about everyday and often as I can. Humor has really kept my sanity (or insanity  ) in check over the years, especially during my most painful times. Good luck to you in your search for better health  peace Kathy "The most beautiful stones have been tossed by the wind and washed by the waters and polished to brilliance by life's strongest storms."
![[Linked Image]](https://www.kickas.org/images/upload/sigfiles/earthwoman_bull.gif) People will forget what you say People will forget what you do But people will never forget, how you made them feel - Maya Angelou -
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Joined: Oct 2002
Posts: 123
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
Joined: Oct 2002
Posts: 123 |
Hi Sal,
Welcome to the best home of support there is. This is the greatest resource and support going. I have found that all KickASer's are the best friends anyone could ask for.
Happy posting
Ham
May Pain Freeness be with you!!
First Signs 1992
Sacroilitis DIAG 2001
AS DIAG 2002
Now on:
Celebrex, Tramadol, Nexium, Hydrochlorothiazide, Lipitor, Percocet
Previously on:
Sulfasalizide
Methotrexate (Yuck)
Remicade
Embrel
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Joined: Mar 2002
Posts: 114
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
Joined: Mar 2002
Posts: 114 |
Hello Sally,
Welcome to the site. I don't have any advice on getting started in the morning. Stick around, this site is a great wealth of information. There are many warm people who will be able to give you great advice. Welcome again to the site.
Darren
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Joined: Mar 2003
Posts: 23
New_Member
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New_Member
Joined: Mar 2003
Posts: 23 |
Hi Sal
Diet,shower--try the very hot and for the last 2-3 very cold , if you can stand it--stretching exercises, start slow and move up the intensity. i know it's a schlep and it hurts, but its the only way.
I have also found that taking the meds at night helps with the stiffness in the morning.
regards and groete
James
"I think it was a bit of an overreaction," said the serpent. "I mean, first offense and everything. I can't see what's so bad about knowing the difference between good and evil, anyway." Terry Pratchett
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Joined: Mar 2002
Posts: 1,616
Platinum_AS_Kicker
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Platinum_AS_Kicker
Joined: Mar 2002
Posts: 1,616 |
[align center][fuchsia]  I travelled through a strange path to get there... but made it in the end ~ M.C.L.
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Joined: Feb 2003
Posts: 12
New_Member
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New_Member
Joined: Feb 2003
Posts: 12 |
I think we all have different ideas on how we all handle the pain whether it be in the morning or throughout the day or night. This site has alot of wonderful people on it who are always suggesting great ideas. So give them a go and see which one suits you. I know i myself i am rather stiff in the morning  (so to speak) but that doesnt hang around for to long with 2 kids in the house. Basically try to keep moving in the morning i know it hurts  but think of how you feel once you loosen up. Anyway i hope you enjoy this site i know do. take care adii
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Joined: Sep 2001
Posts: 2,920
Presidential_AS_Kicker
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Presidential_AS_Kicker
Joined: Sep 2001
Posts: 2,920 |
Hi Sal (and Adii), and welcome to KA! I live in Perth too, would you believe?? There is a very good support-cum-exercise group held every Monday week at Shenton Park hospital. If you contact the AFWA, also in Shenton Park, they'll give you all the details. There's also a support group called "LINK", which is run through the AFWA for anyone with any sort of arthritis, etc., and it also has regular meetings, as well as a telephone support network. If you want any more info, please feel free to PM me. Best wishes, Sue 
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Joined: Sep 2001
Posts: 6,762
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 6,762 |
Hi, Sally, and welcome to KA! About that morning stiffness, do you take any muscle relaxers? It won't prevent the morning stiffness entirely but may help you get through the night and not be quite so stiff in the morning. I'm on one of the newer disease modifiers so don't have to go through the routine of limbering up, can actually get out of bed instead of rolling and yiping, but back in the days before I was on these meds I can remember crab walking around the house until I was stable enough to get in a hot shower, as hot as I could stand. Cheryl  Dogs don't care if the house is clean
My guy
If you can't be kind, at least have the decency to be vague. Author Unknown
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