So I did the weed and seed protocol diligently for just over a year. I guess that would have been about 6 or 7 rounds. After that I just took the probiotic for about 6-8 months, as I was feeling really good and enjoying much improved starch tolerance.
Then this last Xmas came and I was super, outrageously, cheaty and was back in enough pain that it was time to do it again. I'm now on round 2 of berberine and feeling pretty good. If I still feel good once I switch back to the probiotic and stay good with my diet, I will probably not do another round for awhile and just stick to daily probiotic. To be clear, I never got back to square one: I can still eat grapes and carrots and apples and other low starch foods that were completely out to the question for the first 6-8 months, when a strict NSD was necessary.
The timing is really just about how I'm feeling (and is ultimately driven by how faithful I've been to eating low starch).
Suspected USpA. HLA B27, xray, u/sound, blood tests all -ve. Ancient history of plantar fasciitis, SI joint pain, knee arthritis. Recent history of tendinitis, neck pain, debilitating finger pain and stiffness (especially mornings). No diagnosis, no meds.
2010 - stopped eating dairy
2012 - stopped eating wheat
2014 - stopped eating all grains
Jan 2017 - discovered NSD - 98% improvement in symptoms, continually amazed by my results, wish I'd found kickAS sooner
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