I cant sit more than 10-30 mins properly too, depending on pain level.

i have always wondered why im unique about having so much pain while sitting. I mean i met so many patients i never saw anyone as bad as me regarding sitting pain. Just heard 1-2 patients over here. Many doctors found it unusual and told me this is not common to AS.

Frustrating. And very limiting for life.

Now i try not to restrict my life bc of this. my solution is; if i have to go longer than i can endure, my wife drives and i sit behind the car. This way i lay down whenever pain is unendurable.
But even this way i cant go more than 2 hours.

And of course flying is not possible for me. Even with opioids.

Diagnosed at July 2012 after 8 months of pain. HLA-B27 negative.
NSAIDS don't really work. I can't use Anti-TNF because i had tuberculosis years ago.
Wish you all best health, M. Sami Kuzey