I guess that can be a personal question? I was just curious what has point black worked for you. Do you grin and bear it? Does a TNF work by itself for you? NSD? Anti inflamms? Narcotics?
I am tired of the rollercoaster ride I have been on lately. I am a 12 year auto mechanic, that also works on my own car projects and family/friends cars too. I was diagnosed about 3-4 years ago with AS. Also have bad gastro issues, and lots of tendonitis according to the rheum dr. I am 30, and symptoms set in heavy starting about 22 or so. My pain has been pretty ridiculous lately. I am currently on Remicade, Arthrotec, and Oxycodone.
I have noticed the remicade working. Just not the pain free feeling I was hoping for. Anti inflamms seem to do nothing?
Long story short, I know the Oxy's are not a fix, but a short vacation stay away from the pain land. I am starting to rely upon them more than I would like to admit. I have an awesome rheumy dr! He doesn't mind prescribing them, but we have talked about my use and he and myself are working on a plan to cut most of them out. I have been completely honest with him, and my whole family about the use.
As most of you know it's he%% going off of them. Even tapered. I'll get fed up with my behavior quit for 2 weeks or more, but will wind up calling the dr after a bad pain day. I am taking 2-3 more pills a day than I should, so I run out a little sooner than I should.
I know my job is terrible for me, and is on my mind constantly. I am married with 2 young children and I am the only paycheck and health insurance so there is a lot riding on me to be around and be consistent. My rheumy suggested I am progressing at a rate fast enough that I should start my disability paperwork, but I need money now too?
I guess I am rambling, but open to any and all suggestions. Thanks, Jason.
