Hi CC,

back in 2002, after a rheumy said he was stumped, my physiatrist made the comment that there are lots of known autoimmune diseases and its always possible that i have one that doesn't even have a name yet, but she'd still treat my symptoms the same way regardless of what its called. that worked for awhile.

but then that wasn't good enough. fast forward. still have doctors making similar sorts of statements, could be spondy, could be something even rarer, so let's just try to treat it.

and from what i've been reading, i get the feeling that a lot of the drugs, like LDN, will work no matter which "arthritis" it is.

though knowing would be good because then could be more specific in the treatments (and of course wouldn't have to fight so hard for treatment), if we can do it empirically, trial and error, and find something that works, well, that's better than nothing. and new research is always being done.

still, its all very exhausting.......

but glad that you may be finding things that work for you.
i hope so.


sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)