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After talking with others, it's starting to sound like it's not RLS after all. Sounds more like peripheral neuropathy, but I won't get in to see a specialist for testing for months at the earliest. Laa la laaaa... around and around we go. lol Great fun.



hi megan,

hope it turns out to be the less serious neuritis instead of neuropathy.
at one point last summer, my doctors suspected neuropathy (and they were going to do the tests for that, fortunately there is a test to rule it in or out).

but for me it turned out to be peripheral neuritis. for me its a combination of inflamed tendons pressing on nerves, spasming muscles pressing on nerves, and when i was told (by the podiatrist) that i had peripheral neuritis, it was fluid retention pressing on the nerves (or so the doctor told me). but for me the fluid retention was drug related, so i stopped the drug, and that got better.

let us know what they find out.

sue