Kickas.org Forums Treatments, Drugs and Alternatives NSD and diet-related; Frustrating relapse - any advice?

Anyone have an opinion on pork skins aka chicharrones as a no starch snack food? They are fried, but w/o starch, and they show up negative on my iodine test.

Sorry to hear it Exacta.

I'm feeling pretty frustrated myself. After a glorious week and a half of pain at the 0-1 level (my best stretch since I started NSD 4 months ago!) I clearly ate something to set me off. Was it the blanched almonds? The okra? Some under ripe cantaloupe? A small mouthful of deli roast beef that I foolishly didn't test first but stopped eating when I realized it was processed?

Can't say for sure but I was back in the pain zone and went straight into a 36 hour water fast (you and another poster really inspired me!), felt much better, then ate a minimal amount of what I thought was non-starchy carb and had issues again. The stiffness was quite minor, but after getting to experience almost-pain free a worsening of any kind is discouraging.

I also started up another round of goldenseal, peppermint oil and oil of oregano, which I wasn't due to start again for a few more weeks. (I haven't heard of tanalbit or biofilm defense so I will look those up).

I now find myself reluctant to eat any carbs at all. Before I found this site I came across the blog of a person with Crohn's who wrote about his year on a meat-only diet. He successfully resolved all of his symptoms but I remember thinking: whoa that's crazy. Have to say, it's not sounding so crazy anymore...

Well, I am now back to feeling great for the past 3 days. This time feels less 'random' and more like I have been making actual progress. I think my supplement regimen might really be helping to control the Kleb.

I will keep track, and if I make continued progress, I will update this thread with my regimen.

Going back to the sed rate referenced on page 3, I was curious. Is a "normal" non-inflammation number your age divided by 2?

Hello, jackson:


Because ESR should peak at age 40 then decrease, I would not expect the divide by 2 idea to be very realistic. I know for a fact that if my ESR were >32.5, I would be in excruciating PAIN! Fortunately, it has been 9 or below for many years now, but >100 at height of activity.

HEALTH,
John

That's great! Would be good to know your regimen either way, if you're inclined to share. If it's successful it may be useful to others. And if it isn't, then we'll know what not to try :-)

Hi Exacta,

Curious to know about your supplement regimen for the benefit of the members, including me.

Jay

I didn't have an opinion but thanks to you I tried them! They appear to have a tiny amount of carbohydrate but I seem to tolerate them just fine. I'm not much for junk food but I have missed treats like popcorn and dark chocolate, which are both a no go on NSD. Pork rinds are definitely helping fill that void, so many thanks for the post.

My next snack test will be roasted seaweed. Nori seems to be free of starch but I actually haven't tried it yet to see how I react.

On the sweet side of things, I've been experimenting with homemade jello and gummies. I seem to tolerate them but I'm still working on my gelatin ratios and flavours. Does anyone have any fruit juices that they have been ok with? So far apple juice and tart cherry juice have turned out starchy though pomegranate was fine.

Awesome! Thanks for the idea! I love pork rinds. Go for it especially if you know exactly what is in it or is homemade and you know what is in it.

My naturopath advized me to try a new food item for at least three meals in a row to see if there is a reaction during or within three days after the last serving.

Might there be a difference in ESR or CRP values when a patient is either on or of the NSD/LSD?