Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group I'm Starting A New Oral Biologic!!

Hi Swim2...the nausea is improving but I have to make sure and eat a little something before taking it... I promise that as soon as I get my lab results I'll post them, I'm really looking forward to that!

Oh Lon, I know it must be hard to be so far away from your family, I can't imagine, I'm very fortunate in that regard...that's why I can't leave, even after all the devestation that Mother Nature has thrown our way, unless everyone goes with me, I'm not going! I do admire you for all that you and Lin have had to give up in order to serve others, you're wonderful!

Well...a small bump in the road....it's been a week and a half since my dose was increased and I've been so sick the last week that I lost 8 pounds, I can barely keep anything on my stomach...clear liquids only and I was so sick Wednesday morning that I considered going to the ER, I can't believe that I'm about to say this but.....I hope it's the flu...

I am glad you are having "some" good results. I wish your pain was better. I have been thinking of you.

My husband was put on Methotrexate a couple of years ago and it did nothing for him except clear up his eczema. It hasn't come back at all and he has been off of the MTX for 18 months at least.

I hope it really kicks in for you soon.

Blessings.
Possi

even if its not the flu, maybe the lower dose is better for you,
if it was helping with the AS and not causing side effects.....

i know a little bit of medicine seems to go a long way for me,
a little does exactly what its supposed to do,
and a little more can cause pretty nasty side effects,

i almost never take the recommended amount of anything,
i know this is a trial and you can't do that,
and i know you want to keep taking this med,
so hope it all settles down.

sue

Awww Michelle-belle, I wish this new dose wasn't making you feel so ill. That's just rotten. I will be keeping my fingers crossed that you'll start feeling better very very soon.

I have to say, I love every story your write about your doggies. Even when I don't have time to post you can be sure I am reading and with a smile!


mig

Thanks Possi...how are you feeling? I hope things are looking up....

I really hope that I can keep this dose down, the higher dose is to see if the drug is effective against inflammatory diseases, it would be to all of our benefit if it works....

Oh Mig, I hope that my body adjusts pretty soon....but again, I'm not certain that the medicine is causing this problem, I don't want to give it a bad rap, it could be a virus.....the dogs are great, I've been having a blast watching them do the "spring is coming dance"....my Azaleas are in bloom and it's been spring-like the last couple of weeks, that always makes them silly.... Oh, this nausea and I'm supposed to be riding in the Krewe of Merchants Parade tomorrow, I hope I can make it, I may have to carry my bucket onto the float with me.... The girls attended the Mardi Gras Ball of a young new krewe last weekend....Erica & Adam presented the Duke & Duchess on stage at the ball, they're thinking about joining up, they'll be with the Krewe of Chaos...

Week 20 Update! I woke up yesterday with no back pain!! Woo-Hoo!! I stayed that way until late afternoon, I'm serious, no pain!!! I got so much done, it was great!! I have no idea why I had no pain, but I'm not complaining!! The nausea has completely subsided and I really DON'T think that it was related to the Apremilast and if it was, it only lasted a week...no biggie...this phase of the clinical trial ends in 4 weeks, I've been invited into the next phase, which is long-term and I've decided that I'm going to do it....