Forums33
Topics44,174
Posts519,810
Members14,039
|
Most Online1,931 Jan 16th, 2023
|
|
Administrator/owner:
John (Dragonslayer)
Administrator:
Melinda (mig)
WebAdmin:
Timo (Timo)
Administrator:
Brad (wolverinefan)
Moderators:
· Tim (Dotyisle)
· Chelsea (Kiwi)
· Megan (Megan)
· Wendy (WendyR)
· John (Cheerful)
· Chris (fyrfytr187)
|
|
If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
|
|
|
Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
|
OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Hi Swim2...the nausea is improving but I have to make sure and eat a little something before taking it... I promise that as soon as I get my lab results I'll post them, I'm really looking forward to that!
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
|
|
|
|
Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
|
OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Oh Lon, I know it must be hard to be so far away from your family, I can't imagine, I'm very fortunate in that regard...that's why I can't leave, even after all the devestation that Mother Nature has thrown our way, unless everyone goes with me, I'm not going! I do admire you for all that you and Lin have had to give up in order to serve others, you're wonderful!
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
|
|
|
|
Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
|
OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Well...a small bump in the road....it's been a week and a half since my dose was increased and I've been so sick the last week that I lost 8 pounds, I can barely keep anything on my stomach...clear liquids only and I was so sick Wednesday morning that I considered going to the ER, I can't believe that I'm about to say this but.....I hope it's the flu...
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
|
|
|
|
Joined: Nov 2002
Posts: 6,928 Likes: 3
Addicted_to_AS_Kickin
|
Addicted_to_AS_Kickin
Joined: Nov 2002
Posts: 6,928 Likes: 3 |
I am glad you are having "some" good results. I wish your pain was better. I have been thinking of you. My husband was put on Methotrexate a couple of years ago and it did nothing for him except clear up his eczema. It hasn't come back at all and he has been off of the MTX for 18 months at least. I hope it really kicks in for you soon. Blessings. Possi
Possi ********************************************************* RUN WHEN YOU CAN, WALK IF YOU HAVE TO, CRAWL IF YOU MUST, JUST NEVER EVER GIVE UP! "A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS." "A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."
|
|
|
|
Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
|
Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
even if its not the flu, maybe the lower dose is better for you, if it was helping with the AS and not causing side effects.....
i know a little bit of medicine seems to go a long way for me, a little does exactly what its supposed to do, and a little more can cause pretty nasty side effects,
i almost never take the recommended amount of anything, i know this is a trial and you can't do that, and i know you want to keep taking this med, so hope it all settles down.
sue
|
|
|
|
Joined: Apr 2002
Posts: 12,465
|
Joined: Apr 2002
Posts: 12,465 |
Awww Michelle-belle, I wish this new dose wasn't making you feel so ill. That's just rotten. I will be keeping my fingers crossed that you'll start feeling better very very soon. I have to say, I love every story your write about your doggies. Even when I don't have time to post you can be sure I am reading and with a smile! mig
|
|
|
|
Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
|
OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Thanks Possi...how are you feeling? I hope things are looking up....
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
|
|
|
|
Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
|
OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
I really hope that I can keep this dose down, the higher dose is to see if the drug is effective against inflammatory diseases, it would be to all of our benefit if it works....
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
|
|
|
|
Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
|
OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Oh Mig, I hope that my body adjusts pretty soon....but again, I'm not certain that the medicine is causing this problem, I don't want to give it a bad rap, it could be a virus.....the dogs are great, I've been having a blast watching them do the "spring is coming dance"....my Azaleas are in bloom and it's been spring-like the last couple of weeks, that always makes them silly.... Oh, this nausea and I'm supposed to be riding in the Krewe of Merchants Parade tomorrow, I hope I can make it, I may have to carry my bucket onto the float with me.... The girls attended the Mardi Gras Ball of a young new krewe last weekend....Erica & Adam presented the Duke & Duchess on stage at the ball, they're thinking about joining up, they'll be with the Krewe of Chaos...
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
|
|
|
|
Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
|
OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Week 20 Update! I woke up yesterday with no back pain!! Woo-Hoo!! I stayed that way until late afternoon, I'm serious, no pain!!! I got so much done, it was great!! I have no idea why I had no pain, but I'm not complaining!! The nausea has completely subsided and I really DON'T think that it was related to the Apremilast and if it was, it only lasted a week...no biggie...this phase of the clinical trial ends in 4 weeks, I've been invited into the next phase, which is long-term and I've decided that I'm going to do it....
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
|
|
|
1 members (light),
75
guests, and
90
robots. |
Key:
Admin,
Global Mod,
Mod
|
|
|
|