Hi Guys!

This isn't AS related although by the time it is over I should be in another full flare..lol

Some of you know I have a darling daughter Victoria (Tori) who is 10. She came to me and her Dad last wednesday night with what looked like a little sore on her hip.

I said sweetie could be a heat bump, or a zit..she was like "A ZIT" I said don't worry about it, although I could see around it was red about the size of a dime.

I kept an eye on it, and by friday morning it was looking bad. I told my husband after school on friday if it isn't looking any better, I am taking her to our Dr.

Needless to say by friday afternoon she could hardly walk and it looked HORRIBLE, I could tell just by looking at it that it was probly in her blood by now.

I love her Dr. she has been Tori's Dr. since her birth.

She took one look at it and said it was a staph infection. She measured it and it measured 4 inches by 8 inches (that was the red around it) It was hot to the tough which I knew it had fever in it.

By then Tori had started running a fever. We got her started on Minocin. The Dr. drew with ink around it and told me Tori needed to rest this weekend. No running or physical activity. She said if it traveled past the ink line very far that we would be putting her in the hospital.

Well, I am not one to get excited to quick raising 4 children and doing in home daycare for 15 years, but this has really shaken me up.

Tonight was her 5th pill she still has 15 to go, the sore is looking better although it has traveled past the ink. We go back tomorrow so the Dr. can look at it again. What is worrying me is that she is staying very dizzy and I am not sure she isn't getting an allergic reaction to the medicine.

The Dr. told me that these infections are called super bugs like STAPH and they are getting harder and harder to kill out. She told Tori...don't share anything with your family or friends even though most times it is ok that is how bacteria is spread, even though 1 person may not be sick they can have the bacteria and give it to someone else.

Another reason I am so scared is about 2 years ago we went thru the exact same thing with my husband..it was called Millicent Resistant Staphyllococus Aureus (probly not the correct spelling) With my husband they started the same way...we were like Ewww you have a zit, they were like on his side and traveled up his arm. His got so bad that even after like 3 rounds of potent antibiotics he still ended up in the hospital deathly sick and had to have surgery to have like 5 of them cut out. The Drs. said it wasn't the flesh eating bacteria but you could have fooled me. It was so bad that he had open holes left after surgery and the Dr. wasn't sure at one point if he might have to remove one of his armpits.

Even after the surgery when he came home he was on IV Vancomycin for 30 days. It was a nightmare I don't EVER care to repeat. It was hard enough seeing my husband go thru it, I can't imagine one of my babies.

It is 2 in the morning here and I keep going to her room and checking on her. My sweetheart has rarely ever been sick, she has thank goodness been given most of my husbands immune system.

Have you guys or anyone you know ever gone thru anything like this??? I am scared to death. Should I ask her Dr. tomorrow to do a blood test just to make sure the infection is clearing out? I know I am probly just being paranoid, but I could not live if something happened to one of my babies.

This month March is the 1 year anniversary of losing my Mom and it has really been a horrible year for me. I just pray she is going to be ok.

Please, Please guys offer some prayers and good thoughts her way.

I will find a picture of my angel so you guys can see her.

Some days just knowing you guys are here and reading your thoughts and kind words keeps me going.

Thanks so much for being here for me,

Lisa

Lisa,

I seem to be like you, not one thing but runs of them....I certainly know how you feel about the little one, I realy hope that this clears up quick.

My brother had one in his neck from the engineering oil he was playing with it took some time to heal and packing wounds etc but it did heal......

All you can do is monitor the little one and visit the Dr as required.....at least you have prior experience and know something, but the worst thing is waiting.....and not worrying too much!

You on DMARDs Steroids etc, be careful about you not catching it!

David

David,

Thank you so much!

I didn't even think about it until you said that.

I seem to catch everything else...OMG!!!

Lisa

Lisa

I am so sorry to hear that Tori is sick. I pray that by the time this is posted, she is doing 100% better. As a mom, I can understand how you feel. There is nothing worse than when one of our babies are sick.
You are all in my thoughts and prayers.


Pam

Pam,

Thank you so much, as you can see it has been a rough night.

I have not been able to sleep.

We will go back to the Dr. today and I will let everyone know when I have some news.

Lisa

I am so sorry to hear that Tori is not feeling well. I hope that she heals fast and feels better soon. Our thoughts are with her and all of your family.

John

Hi Lisa
I'm so sorry to hear little Tori isn't very well. I hope she recovers soon and the infection clears. I don't think I've heard of this before?
Sending you all big
Love
Sue

Hi Lisa,

Sorry to hear Tori is having a rough go of it. Pray that you comes through the treatment good as new.

Do they have any idea how this was contracted?

Tim

I hope Tori is doing better today. Hopefully, she won't have to be hospitalized. But if need be, then it is for the best. I will keep her in my prayers. Let us know how she is doing after her appointment.
Take care,
Cara

Hey Guys,

Just a note, after a rough night the rash is worse and she is now throwing up which she just had her morning pill.

I am getting ready to call the Dr. now and get her in.

Lisa

Hi Lisa,

Sorry to hear your daughter is having such a tough time. I wouldn't hesitate to take her back in to see the doc if you feel the need, especially since you mention it's already moved past the ink line. Docs realise that Mom's can't help but worry and will want to re-check her, if only to ease your fears.

I wish her all the best, and a speedy recovery.
Take good care,

Dear Lisa

Two summers ago, one of my sons had a minor pimple go to a major nasty in about two days. Even after starting the antibiotics, he had fever and nausea. When the doctor heard that he wasnt improving, he got me to bring him in and he surgically drained it. After that, my son got better, but was very tired and weak for several days after.(it wasnt an instant recovery).

Bacterial infections can be sudden and really bad. You did the right thing getting her to the doctor right away. Its the suddenness of seeing your child so sick that hits a parent really hard.

I'm sure your little girl will be better soon. She just might be wobbly for a about a week before she get her normal bounciness back.

take care BlueNorthern

Lisa, I'm so sorry to hear that little Tori isn't well. I am sending white light and love as I type and will continue sending until we hear that she's all healed up.

Please let us know what the doc says today. I know how frightened you are, so here's a hug for you.

Many hugs,

Hi Lisa

As is a part of your life, but it is not your life. Post about what ever you need to post about.

Celebrate with us, cry with us or just chat with us. That is why we are here. We are an extended family.

I know what it is like to have a sick child. I dont have have AS, my son Eric does. He was dx at 9 with AS, and at 13 was dx with crohns.

Eric spent 2 weeks in the hospital last year, and I stayed with him.

I am telling you all of this, because that was the best place for him to be.

If Tori does need to stay in the hospital, it is hard, but it is also for the best.

When our children are sick, we worry and fret. When they get that sick, our hearts break....I know.

Tori will be in our prayers. Please let us know how she makes out.

I know what you are going through, and I know that it is not easy. You will get through it.

Heck....with all of us here pulling for you, how could you not?

Good luck, and may an angel sit on your daughters shoulder to keep her safe.

Hugs
Lori

Hi Lisa 's....sorry to hear about your daugther, Tori ..but it's a blessing to have a mother so devoted as you....for all your care and concern and the goodness behind all you do ,..i'm hoping Tori will/b ok and I will pray that the Lord will continue to bless you and family and brighten your days.. wishing you a pain free day...take care Pat

Hi Guys!

Well, we just got back from the Dr. and we are safe from the hospital for 1 more day.

She has been so sick today..she hasn't been able to keep anything down.

The Dr. prescribed syringes of promethazine for the nausea...you put it on her wrists or abdomen and it makes it where she doesn't feel so sick. We have done the first dose and so far so good.

She also prescribed sulfamethoprim which I did NOT know is generic for Bactrim. Bactrim makes me horribly sick and my oldest daughter too. In fact I have never known anyone that has been able to tolerate it.

She is not going to start it until tomorrow, if she can not tolerate this drug she may have to go to the hospital for IV antibiotics.

Keep your fingers crossed, I am praying for a good result.

Will let you know later how she is doing, looks like she might get a 2 week spring break..lol

Lisa

Sorry to hear that Tori is so sick...I hope it improves quickly for her.....we will keep her in our thoughts and send well wishes.

Dan

Thinking of you and Tori. I'm sure she will be OK, sounds like you are keeping a close eye on her, what a good mum!

Hope things improve soon.
Chelsea

I am so sorry to hear of Tori's situation. Just know that she will be in my daily
prayers for a speedy recovery.
I know you will make sure she follows the doctors instructions. It is so hard for
a child of this age to keep quiet.

Take care,
Doreen

Lisa!
I went through this just three months ago...I got "zits, boils, etc", on my neck...under my jaw and on my neck...so everyone could see them!!! I thought my shavers were blunt and aggravating the skin...and these were boil like acne that I have had in the past on my back from AS flare ups...(I'm pretty sure)...

So, I go to my dermatologist, who says, "you have a staph infection", and gives me antibiotics that somewhat cured it (still some scarring and lumps)..but get THIS...my dad read about a type of antibiotic resistant staph bug that is transmitted through GYMS AND SPAS.....and I had been going to a gym since August, for the first time in ten years or so....hmmmmmm...apparently football players were getting bruised on the field, then going into the locker room, and getting infected...a whole team got the drug resistant staph...

check it out...and hang in there...wash hands with antibacterial soap every chance you get, use Purel or others when at work, etc...

Peace
Linc

Hi Lisa,

It's been a long time since my kids were young but for the last year I have been blessed by living with my daughter and 4 grandchildren. To experience, once again, the joy of seeing a young child at play has been like a gift from God. So it's no wonder to me that I lost it when I read your post. No matter what the problem is, with a child, it's major. I pray your daughter gets better real soon and NEVER has to go through anything like this again in life. In my world the bad things that happen would happen only to adults. We deserve it, children don't!

God Bless,

Hi Lisa,

My babies are grown but I haven't forgotten how it feels when they are sick. I hope the nausea goes away for Tori and the sulfamethoprim helps her. She will be in my prayers.

Hi,

just asking, how's it going?

David

Hi Lisa, aloha

my friend carolyn would chastise me severly if i didn't ask...' your doctor LOOKED at the red spot and said
'staph'...did he test for ANYTHING ? ...did he run a western blot for Lyme Disease ?

your profile doesn't say where you live, but if your daughter is an out of doors girl, rather than house girl;
and you live in an area with woods and deer...a red spot in an area normally covered by clothing...and the
red spot grows in size...you need a test for Lyme while the infiltration is new...

Lyme can be horribly debilitating, does not always get cleared up by the standard treatments...and is
pathetically under diagnosed outside of the northeast...please ask you doctor about this ? and
'oh, you're just being silly is not a good answer' from him.

oh and systemic arthitis is a frequent 'fringe benefit' for Lyme disease.

all the best, hope you're well, good luck wishes for tori
aloha Ben

Hi All,

Ok, today is the day!

She just had her first dose of her new medicine.

We put the anti nausea cream on and are hoping for the best. I will tell you that stuff is truly a miracle.

In answer to Aloha Ben, I so appreciate the heads up with Lymes. We live in Oklahoma right in the middle of the suberbs, not that she couldn't get bitten, but I am REALLY good about checking the kids over during bath time. She is more of a girly girl and is not much on outside, but that still could have been a possibility. Thanks so much!

After I told the Dr. about the same situation with my husband about 2 years ago that peaked her interest. I feel like she is staying right on top of this. And I have NO problem voicing my concerns or what I want with my kids.

You guys don't know how much I appreciate all of your thoughts, prayers and concern for us during this trying week. I have not been able to sleep much the last 3 or 4 days, so getting on the computer and seeing kind words have been a God send for me.

I would imagine here in 3 or 4 hours I will know if this medicine will stay down or not. They are 800mg pills, so I halved them so we can try 1 after breakfast, 1 after lunch, 1 after supper, and 1 at bedtime. I don't like that, but I feel this is the best way for her to try and tolerate it.

She is resting on the couch with her Mr. Ryan (kitty) and I think I am going to go lay beside her and try to rest for a bit.

I will get back on in a bit and hopefully have some good news.

Thanks to all,

Lisa

PS. Tori was so excited when I told her that my fellow AS'rs were concerned. She was excited and said to tell everyone Thank you for being so sweet to her.

Hi Lisa,

I'm so sorry Tori is ill, I hope that she can tolerate the pills and she starts to get better. I'm thinking of you all,

louisa

Lisa,

I have somehow missed your post. I hope Tori gets well soon!! I know you are worried sick!!

I wish I could do more than just send you prayers and hugs!!! Know that I am thinking of you and your family!!!!

All my fairy dust to Tori!
Holly

Ok My Precious Friends,

It is midnight here and all is quiet.

Tori took her last 1/2 of her pill at about 8.

She was having a little nausea, and I asked her if she wanted some of the nausea cream, but she said no.

The sore itself does look much, much better although pushing on it, it is still really hard.

I just hope that it will completely go away.

If she does well thru the night I think we may try school tomorrow.

I am keeping my fingers crossed as we could still have a setback.

I can't help feeling like a bad Mom, like I could have done something to protect her or prevent this.

I know that it has nothing to do with grooming or cleanliness, but it makes me want to just go thru the whole house and clean and wash and throw stuff away.

I have been so worried and high strung that I am running on fumes. I go to bed and I have that restless leg thing. Then I think well crud, I might as well just get up..lol

I will write in the morning and let you know if my little Angel was well enough to go to school.

Thank-you so much again for your thoughts and prayers and kind words.

I have a notebook that is Tori's that I am printing and putting your emails in for her. She has the ones in there from when her kitty (Ryan) went missing and she was so upset.

Tonight I have you all wrapped in my arms with love and hoping for better days for all of us.

Lisa

Angelmom, You, and your whole family,especially Tori is in our famly's prayers. Like moonbees said, wish we could do more than prayers, yet I believe this is very powerfull!

You'll be blessed very soon, a gift from God, I do so believe it. Just watch! Lay your hands on Tori and just bless her, and believe, believe in the Powers to heal.

May she get better sooner than you think.

Warm greetings

Many healing thoughts and prayers headed your way.

I was relieved to hear she's managing a bit better. Please take care of yourself too as I know this has been a rough period for you. The added stress of the wee ones infection, that you so dutifully paid prompt attention too (kudos) must to kept to a minimum as much as possible.

best to you all,
Klem

Lisa:I will include your family in my prayers tonight.I have a ten year old boy myself.
kev

Hi Lisa,
Sorry I missed this post. Would have liked to have been here for you from the beginning, but it looks like you have been well taken care of by the rest of the gang. They are such a caring bunch and I am sure all their prayers are helping Tori to get better. I am adding mine and hopefully she will continue to improve.
Please don't beat yourself up over this. You are a caring, loving mom who I can tell does everything to protect her child. Thankfully you have a great doctor who you can trust to do all she can to make Tori better and it sounds like she is doing all the right things.
My children are grown, but I remember going through all that you are now when they were sick. Not being able to just fix it all and make them better was heart breaking.
Please tell Tori I said Hi and I hope she gets better really soon.
And please keep us posted as to how she is doing and how you are too.
Big hugs,
Lisa

You and your daughter are definitely in my prayers.