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Joined: Jan 2003
Posts: 377
Fifth_Degree_AS_Kicker
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OP
Fifth_Degree_AS_Kicker
Joined: Jan 2003
Posts: 377 |
HI Connie,
Thank you so much for telling me your story. I really don't understand the blocks under your hips but I'm just starting with all this. I can use all the input I can get. My husband has been really sturn with me tonight about getting a rheumy that will work with me. I may make an appointment to see my brothers rheumy that diagnosed him with AS this last year. What this web sight has tought me is that I really need to get the right treatment if I have AS. It's also tought me that there are alot of people here that care and that really means alot to me!
Thank you soooooo much you guys!!!
Wendy
Wendy
[image]https://www.kickas.org/images/upload/wendy[1].gif[/image]
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Joined: Sep 2002
Posts: 785
Magical_AS_Kicker
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Magical_AS_Kicker
Joined: Sep 2002
Posts: 785 |
Yes, I agree also. I've had several ESR tests. Practically each time I see my GP or Rheumy. Sometimes I've been in awful pain, with extreme stiffness, but still the result is in normal range. 
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Joined: Dec 2002
Posts: 739
Decorated_AS_Kicker
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Decorated_AS_Kicker
Joined: Dec 2002
Posts: 739 |
Rox
I don't know of any disease that fuses your neck other than AS. What more do you have to suffer before someone dx. you!! Symptoms and especially fusion of the spine are enough criteria in my book to dx. you with AS. I am so sorry that you are suffering so, and you can't get a doc. to listen. It is a TRAGEDY!!
Keep seeking
Simone
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
Hi Wendy, I'm with the others. If you can get in to see your brother's rheumy, by all means, run as fast as you are able to the first available appointment. You are HLA-B27 positive, which by itself isn't enough to warrant a diagnosis of AS. However, you say that your brother has AS and AS often runs in families. So that's two reasons. I don't know you very well, but somebody indicated that your neck is fused???!! Now, I could very easily have misunderstood, but If that's the case, insist on an appointment this week if possible.
Best of luck Wendy. And I'm glad you found us.
Hugs,
Kat
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
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Joined: Sep 2001
Posts: 863
Master_AS_Kicker
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Master_AS_Kicker
Joined: Sep 2001
Posts: 863 |
Sorry I didn't explain that very well, Wendy. Imagine that you are lying on your back with something under your butt on one side. The result is that your pelvis is tilted. Apparently, that gives a better view of the SI's than lying flat. Does that make sense? Connie 
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Joined: Jan 2003
Posts: 377
Fifth_Degree_AS_Kicker
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OP
Fifth_Degree_AS_Kicker
Joined: Jan 2003
Posts: 377 |
Thanks Connie, it makes sense. Maybe I haven't been through the exrays I really need. Hopefully since my Dr. has said that I might know more about this than he does, because of you guys, he will be willing to listen and work with me.
Wendy
Wendy
[image]https://www.kickas.org/images/upload/wendy[1].gif[/image]
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