Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group What a waste of time!!!!!!

I must apologise for my outburst. After all this is a support grop and mayhap my churlishness was out of place here.

I withdraw my observations but am grateful for the comments of those who did support the work of their doctors, thank you.

Yes Loz it is me. Maestro as was. I didn't go very far away, but seems i have blotted my copybook again.

Alan Greaves.Ineptwill---Inept = Silly---Will= Billy==thus as ever SillyBilly

Hello SinO. Mrs K, Shugs, Lord Simpo,GA Susan, and all my old sparring partners

X

Dear Alan,

I am glad that you are delighted with your doctors and if you take the time to read around this site then you will see that there are many here that are perfectly happy too.

Unfortunately not everyone has a good Rheumy and not everyone has the means to do anything about it. It is easy in the UK to look around and get second opinions, and at the end of the day all you (or I) have to fork out for is a few prescription charges, and what with exemption or pre-payment certificates then the most you have to pay is what?£93.60 a year?? (I pay even less than that). We don't have to pay for blood tests, huge amounts for drugs, investigations, physiotherapy. Whatever we get is basically free. Some people on this site would just CRY to read that.

Now I think that you should show a little bit more appreciation for people here who do not have that privilidge. Having to pay medical insurance is a nightmare that you or I have little concept of. Being stuck with some bummer insurance policy that questions every blood test you have and restricts access to the best (most expensive) meds must be hideous. Just look at the info here about Enbrel (Etanercept) and what an impact it has had. It looks likely that NICE will be assesssing it's use for AS patients here and given that it has already been approved for RA it looks likely that before much longer we could be getting this amazingly effective treatment for NOTHING. What the hell chance do you think people restriced by insurance will have? For God's sake, show a little respect!!!

BTW I note you live in Nottingham, not particularly a problem area for medical staffing, is it? You will have good access to decent Consultants as well as GP's. Don't forget it is GP's that do the referring to Rheumatologists and having had the experience of a crap GP when I lived in the North East I know damn well that what got me referred to a good Rheumy was (a) being a nurse and (b) losing the plot. I dread to think how many others had been told the only thing they needed was a endless sick note (I could barely walk). At least I got to see a Rheumy. At least I got to see the GOOD Rheumy.

The people here (me included) have found a common bond in spirit and support. We are well aware that there are no miracle cures. What does matter is to be treated by an up-to-date, knowledgeable, caring doc who knows the disease and knows the person behind the disease. Someone who is doing the very best for us.

What's so wrong about that????

Jan

Jan,
I really appreciate your comments and understanding of those of us who are having a hard time with insurance companies and even finding a doctor.
I haven't had the opportunity to either praise or complain about a Rheumy since I moved a couple of months ago...... because I cannot find one who will accept the insurance I have, and I can't afford to purchase a different plan. The closest place I could go to see one who will accept my insurance is Seattle Washington.... only 276 miles away I thought moving to a bigger city would be beneficial for medical care, but am finding that is not always the case. So I just take one day at a time, and if I get to the point I can't take the pain any longer I head for the emergency room and pray there is a doc there who doesn't say "anky...what?" (that happened the last time )
Thankyou again,
Hope you have a great day

Pam

"Just like moons and like suns, with the certainty of tides. Just like hopes springing high, Still I'll rise." Maya Angelou

Pam,

I am sorry to hear that you have not found a Rheumy close to your town. What about an Orthopaedist that has knowledge of AS? I live in a small town too and I started with an Ortho that specialized in low back pain. Just a thought.

Take care.
Cara

Cara,
Thankyou for the thought. I hadn't even thought of that option. Any suggestions are always welcomed. I will look into it.
Thanks again,

Have a great day

Pam

"Just like moons and like suns, with the certainty of tides. Just like hopes springing high, Still I'll rise." Maya Angelou

My dear Twisks,

I have spent the last 2 years reading around this site. I am surprised that you seem to know what my treatments cost me.
May I disagree that everything we get is free, it isn't. We have insurance as do others. Ours is enforced and state managed. We cannot control nor change that. I do though fail to see the corrolation between insurance and good or bad doctoring. If it does exist then that, as i said earlier is for the state or whatever governing bodys may exist, to deal with.
We are told that fabulous cures and treatments exist in America for all sorts of ailments, to the point where people from all over the world travel there to be treated. Perhaps then, they just have poor rheumatologists there.Your view seems to be, that Nottingham is the only place in the world that has decent doctors. Well how lucky I am then. And what a lot of bad doctors there must be in the world.

What palpable nonsense that is.

I wont go on with this,other than to say that whilst you demand 'For Gods sake show a little respect' for As sufferers here, I return to my original premise 'For Gods sake show a little respect for the people who are trying to help you- Doctors'.

Thanks for all the support!! It's going to get better.
Alan screw you!!!!!

Bones,
I am glad that you are happy in the support you have received for your negative yet arrogant approach to Doctors and your illness.

I am also pleased that you are happy to consider all opinions in a fair minded manner..!

Your 'Alan screw you' contribution illustrates that delightfully.

May you continue to enjoy your life and the continued dissatisfaction with the medical world ( Which is clearly a sourse of pleasure for you) which your bad manners and rudeness seem to deseve so well.

I remain optimistic that one day you may find a doctor who may come somewhere near to the perfection that you seem to need....as for Screw me........ Well I remain optimistic in that thought too, who knows, ....?


I

Hi Alan. you would make a very good doctor. have you applied for a licenseyet?

Hi Alan!
Heh - Ineptwill/SillyBilly, inspired!

Something about the name was playing in the back of my head but I never got it. I expect if I'd read more of your 5 Ineptwill registered posts the penny would have dropped though. I just read though them, and it's you - oh yes - it's deffinitely you!

I find docs to be a lot like any other group of peole, there's good and there's bad, competent and incompetent, there's even good and evil - when looking at the Dr. Harold Shipman case at least.

My own experiences are mixed. I'm very happy with all my current care providers, and in particular my consultant rheumatologist and diabetologist. This has certainly not always been the case, and I must say I find sweeping generalisations of any kind are rarely, if ever, helpful.

So - fancy popping down for a sausage and to meet some other askickers in June? Check the party planning forum for the date - it's early June - you'd be most welcome, and don't forget it gives you the ideal opportunity to make me look short in the photos!!

 
  Na zdorovje,
        Loz