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Joined: Oct 2008
Posts: 360
Fifth_Degree_AS_Kicker
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OP
Fifth_Degree_AS_Kicker
Joined: Oct 2008
Posts: 360 |
Does anyone know if bone marrow edema always turns to osteophytes/syndesmeophytes or can that be stopped? I'm suppose to have a colonoscopy but I'm afraid to make things worse right now(terrified would actually be a better word). Cause I'm pretty sure that anaesthesia is gonna do a number. The other thing is is I bet my colon is wreck and my small bowel is definitely more inflamed(not sure if there will be lesions seen with the colonoscope though, knowing my luck with tests). I've had a ct miss my ibd and an MRI pick it up but we thought the MRI radiologist was good. I just really don't have faith in tests because I have major scars in my left eye and practically no huge signs like that in my right but my right is almost as bad. But besides that possibility I'm more worried about creating new deeper well established pathways  And I'm in real bad shape ATM even though I do well with lifestyle. Probably gonna start a long fast to go with the exercise starting tomorrow to try and stop anything new from coming in. Any ideas?
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Joined: Nov 2002
Posts: 6,928 Likes: 3
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2002
Posts: 6,928 Likes: 3 |
My idea....Have a wonderful day!! 
![[Linked Image]](https://www.kickas.org/images/flowers/Smilingsun.gif) Possi ********************************************************* RUN WHEN YOU CAN, WALK IF YOU HAVE TO, CRAWL IF YOU MUST, JUST NEVER EVER GIVE UP! "A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS." "A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
Find a gastroenterologist that you trust and get the colonoscopy.
Due to being on LDN, they used propofol instead of the usual mix of drugs, and it was very easy. I also never had problems with the other mix of drugs either.
Why exactly do you think a colonoscopy will make you worse?
I hate the prep, but other than that, its good for them to see what is going on down there. If you've been having GI issues, I think its even more important for them to take a look.
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Oct 2008
Posts: 360
Fifth_Degree_AS_Kicker
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OP
Fifth_Degree_AS_Kicker
Joined: Oct 2008
Posts: 360 |
It is highly inflammatory, especially that 1.
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Joined: Oct 2008
Posts: 360
Fifth_Degree_AS_Kicker
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OP
Fifth_Degree_AS_Kicker
Joined: Oct 2008
Posts: 360 |
They wanted me to have this done, so I'm going to do it.
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Joined: Oct 2008
Posts: 360
Fifth_Degree_AS_Kicker
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OP
Fifth_Degree_AS_Kicker
Joined: Oct 2008
Posts: 360 |
Possi - Thank you, sweetheart. Hope you are doing well, mentally, if nothing else! I should find out my prognosis soon. There is an infection at work here, I'm positive. But so far no one has found out which 1(s). I hope the scope tells us something.
Last edited by Tnate; 07/31/14 05:24 AM. Reason: Cause this has been the poppa of all flares(ever)
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Joined: Jan 2009
Posts: 4,501 Likes: 1
Supreme_AS_Kicker
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Supreme_AS_Kicker
Joined: Jan 2009
Posts: 4,501 Likes: 1 |
Bone marrow edema has more causes than from AS/spondy. I fell on an outstretched arm and had an impaction fracture of the humerus. Bone marrow edema along 2/3 of the shaft. Hurt a lot for a couple of months, then less over the course of a year of healing. Depends on what it's from and which bone(s) it is in. Where do you have the bone marrow edema? Some causes include: osteoarthritis, sports injuries, stress fractures, cancer, infection.
Good luck with the scoping. Hope it goes well. They are no fun, but a necessary evil, sometimes. Gentle hugs.
DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9
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Joined: Oct 2008
Posts: 360
Fifth_Degree_AS_Kicker
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OP
Fifth_Degree_AS_Kicker
Joined: Oct 2008
Posts: 360 |
The propofol was a nice deviation from reality for the 2 seconds it was knocking me out and the 5 minutes when waking up. It did still do a number.
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
The propofol was a nice deviation from reality for the 2 seconds it was knocking me out and the 5 minutes when waking up. It did still do a number. Sorry you have side effects to it. Hope the procedure went well and you have the info you need
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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