Kickas.org Forums Ankylosing Spondylitis General Discussion Highlights in Spondylitis Research CURING AUTOIMMUNE DISEASE

I'm going to start hopping on the green banana and cocnut milk smoothie routine.

Trying to determine triggers is so annoying isn't it? Just when we think we had a great day or two, we go and do the same things for another two days and end up with different levels of pain. Or like u said, something as simple as over eating can do us in. Or was it the workout;) ? Or was it the position of my seat in the car and the fact that I sat in it for too long on the way back from the gym bcuz I had to pick up my Wife? It's a constant learning curve but well worth paying attention to.
I agree, I'm completely sold on the RS in general. I just picked up a few fifferent prebiotics based on the gastalreality write up. Glucomannan – from konjac root, Mannan-oligosaccharides (MOS), Larch Arabinogalactan and pectins. They're unproven and under studied but I'm willing to give them a go. Nice and cheap too.

I forgot until you mentioned it but when I frst started taking the boron supplement, I woke up two nights in a row from a SERIOUS splitting headache. They only lasted about 5 mins each time but I remember questioning at the time wether it was that or something else?

Crappy deal about your Dad. Sorry to hear that but glad to hear he's getting a bit of help from your recs. My Mom has hodgekins lymphoma. She's beaten it once and has been an absolute soldier throughout. I REALLY hope your Dad is able to regain his health!

You seem to be the bravest of the bunch here, Dlee. If you run into a kind of cooked and cooled starchy/RS food that definitely doesn't bother you, I'd love to know what it is. I'm feelig in control of my symptoms at the moment and might start venturing out again into the big bad world of starchy foods. I'm thinking a big batch of cooked carrot and broccoli mash. Yep, I'm pretty rebellious, livin' life on the edge

Hey Guys
It sounds like things are going well for you on the whole. Really pleased for you all. I'm down to pain levels of 0-1 out of 10 (feel a bit nervy writing that, don't want to jinx things) and potato starch at 2tbsp a day. Can't quite believe it. I've somehow missed the talk about borax - what's the deal with that?

Yeah I intend on giving soil based probiotics a go in near future as well. I've been eating some natural sauerkraut (proper stuff although not home made) so hopefully that has been adding some bacteria. I'm half tempted to go put my hands in the garden soil and give them a good lick afterwards

I've increased my Borax intake recently and should be getting about 24 mg a day now of Boron. I haven't taken an NSAID for 3 days, pain increased a little after first 24 hours, then it ended up subsiding so haven't felt the need for another yet. Pain levels good at around 1. Even with eating green banana last night. Mind you, yesterday I ended up on an unintended 20 hour fast as I had a call-out to problem at work and missed lunch (I don't eat breakfasts) so maybe that has something to do with it. Managed to maintain stable energy all through it though. Didn't really get overly hungry either.

Borax Conspiracy - http://www.health-science-spirit.com/borax.htm

Basically Borax contains an essential mineral called Boron which we could be deficient in. Its cheap and easy to try so thought I'd give that a go as well.

So far I can't say I've noticed any negative effects except for possibly a bit of pain in the first 24 hours. But that could have been caused by other things as well.

Boron is a good fungicide that people also use to treat Candida.

Just a quick update. It must've been nearly a month since I started taking Potato starch. I've been off my NSAID's about 5 days or possibly more now. Inflammation rises a little overnight but generally disappears over the course of the morning. Its not unbearable at its worst.

I'm typically eating a 200 gram Potato with dinner every 2nd night, and now rice every other night and green banana maybe 3 times per week on any given day. And 4 tablespoons per day of raw unmodified potato starch.

I increased my dose of Borax 3 or 4 days ago to give me about 30 grams of Boron per day (taken throughout the day). Interesting....I slept badly every night of higher dose and gas from Potato starch dropped off. I'm suspecting this dose acts like an antibiotic (Borax/Boron is anti fungal/microbial) and kills of gut bacteria. I took none yesterday and back to a good nights sleep (and more gas). So appears to be a relationship at this early stage. I'm back on low dose now.

I'm going to try a real high dose of Borax soon as others have done. I'm guessing I will kill a lot of bacteria (good and bad) and wipe a lot out, but I'm going to reintroduce them with pro bio-tics both natural and pharmaceutical. The aim being to wipe out bad bacteria, and reintroduce good bacteria quickly which will hopefully establish a healthier gut biomass. All just theory and experimentation though.

Potatoes or rice almost every night of the week!? I'd say your efforts have been worth it!
I've been having a few issues with my lower back and eye just recently. I didn't want to be too bothered by it all so I avoided this site and researching to think about it as little as possible.
I added way too many things at once. Banana starch, few diffrent prebiotics and a bunch of different probiotics.

Hard to pinpoint what caused my issues but I gave all of the pstarch etc. a rest for roughly a week. I'm back on the pstarch(3tbs) and am only adding tiny amounts of bsatrch. This article is what got me back on the train http://freetheanimal.com/2014/05/resistant-problems-ignorance.html

I thought the same about Borax and it's anti-fungal properties along-side pro/pre biotics and stopped for a bit. Even though I'm really starting to think that I should get in there with the anti-fungals and natural kleb killers BEFORE I go blowing my $ on expensive probiotics that won't stick.
I'm pretty sure it was CRV that posted this elsewhere but they mention k.Phneum specifically where it says,
"Harmful Bacteria Protocol"
http://www.yeastinfectionadvisor.com/harmfulbacteria.html

Any opinions on the biofase listed in the same article?

I've never really heard of Biofase but if I need to later I might look into it. I don't believe I have a Candida problem.

On Friday last week I did a high dose of Borax. About 60 mg for the day. Didn't really notice anything on the day, but the following day after lunch I suffered bad headaches for the rest of the day and was sensitive to light as a result. Haven't had that in a long long time. So I went back to a light dose (6mg per day) Borax over the weekend.

Yesterday I did a carb load day experiment. 200 grams Potatoes with lunch, a green banana smoothie in the afternoon and a big Apple, and another 200 grams of Potatoes with dinner (200 grams is quite a big serve on my plate), and my usual 4 tablespoons of Potato Starch. Its not affecting me. I've managed to stay off Dyclofenac for over a 9 or 10 days as well so nothing is getting masked. I'm not as pain free as I would be if I were to take Dyclofenac.....but its also not affecting anything I do physically. Most of my problems come from sitting for long periods (pain) and I can fix it by getting up and moving. I seem to not be affected by Rice, green bananas or potatoes. I wonder if this is due to Potato Starch since I have only tried these things since taking PS.

My moods have changed. A calmness had descended upon me over everything I do. No anxiety over anything.

I'm eating starchy carbs every night of the week and sometimes for lunch too! Who would have thought. I have less fear about which foods might be affecting me (normally eat 25 - 40 grams of dark chocolate per night which I used to have a question mark over) with the exception that I won't eat processed foods/drink, and I won't touch fruit juices either. I'm continue to eat mostly meats, eggs, fats, veges (broccoli, cauliflower mostly), no dairy and now add in a bit of starchy carbs. Am less concerned about how dark chocolate might affect me (usually eat 25 grams at night) after dinner.

All considered....so far I'm miles away from where I was just 5 weeks ago before I started on PS. I've had some weird dreams too (like last night). I wake up and start doing things (like last night I checked my alarm clock), and then realise I'm not awake....I'm still asleep. Its difficult to know if I'm awake or asleep at this point. My body is asleep but my mind is fully conscious. Other times I wake up from dreams, only to wake up again from another dream. A multi layered dream state if you will.

I can't wait to see what is going to happen when I get hold of some soil based probiotics. So far the only probiotics I've taken is a local natural fermented Sauerkraut.

Anyhow, the benefits are far outweighing any negatives.

I also found this link yesterday which explains things in more plan English and has some good info on volumes of RS in foods.

http://www.gestaltreality.com/2014/02/27/resistant-starch-a-concise-guide/

I should also point out that on the Saturday I had the headaches, I did a spit test to measure my PH which came back a lower than normal and under the desired range. I took some Soda Bicarbonate in water and measured again the same time next day (Sunday) and was back to normal again. Not sure if Borax made me go acidic, or it could have also just been a lack of veges the previous couple of days (more salads instead).

I'm going to take another high dose of Borax today so will see tomorrow.

That's wicked Dlee!!! I'm really excited for you! That sound you just heard was everybody on kickas.org clicking the "buy now" button for bob's red mill PS.
Now let me ride your Coat Tails
Did you generally take all 4 tbs at one time or spread out? empty stomach?with food? Did you have bad reactions to potatoes before you got on PS?
I looked back at your intermittent fasting comment and figured that you might be on, roughly, an 8 hr eating window?
Were you simply following instructions from the borax article or did you venture off and do something different?
My gut is really messed up I think. I keep getting gassy pressure in the same area of my stomach(about 4cm under the rib cage and 3cm to the right of my belly button) I still have really stinky gas but have decided to be ignorantly optimistic and stick with it in the hopes that there's something in that spot that needs fixing. I'll give it a moth and a half more of the ps and pro-b's. If no difference is felt, I'll consider a biofilm disrupting/SIBO protocol and then get back on it.

I asked about the biofase as I believe that most auto immune sufferers have sibo.(interphase plus is cheaper an widely recommended) I also think that a good majority of those with sibo have biofilms. Actually, I'm confused as to wether or not there is a difference between the two as the treatment looks the same.

http://chriskresser.com/treating-sibo-cold-thermogenisis-and-when-to-take-probiotics

http://scdlifestyle.com/2014/01/everythi...ial-overgrowth/

http://perfecthealthdiet.com/2010/07/bowel-disease-part-iv-restoring-healthful-gut-flora/

http://www.advancedhealing.com/dr-ettingers-biofilm-protocol-for-lyme-and-gut-pathogens/

http://forums.phoenixrising.me/index.php?threads/candida-biofilms-theory-protocol.25472/

I'm considering ordering some interphase, N acetylcysteine(or Kirkman Biofilm Defense bcuz it doesn't contain egg whites), lactoferrin, Serrapeptase, Nattokinase and lauracidin. Herbals etc. after if needed. Or simply take Rifraximin being described as a narrow spectrum antibiotic if that fails. Has anybody attacked biofilms/sibo in a similar manner before? These articles AGAIN make me wonder if I'm simply feeding the bad bacteria my expensive probiotics. Does anyone see any harm in trying a 1 and a half month protocol of the products listed above?

I still haven't been feeling great recently but am re-energized by your write ups, Copen and Dlee. Keep it going and don't mess it up like I did by adding a bunch of new spices, dark chocolate(which I know crushes me) various forms of RS, pro and prebiotics at the same time. I'm still effected 4 days later but have vowed to be 100% thorough in my future introduction processes because of it.

Normally I have been taking PS twice per day 2 tablespoons at a time usually in the evening. 2 around 4 hours before bed and 2 just before bed. But just this week I have switched to 4 tablespoons once per day 4-5 hours before bed. (I take it before dinner on empty'ish stomach) and soon after followed by main evening meal. The idea is I'm timing it to be in large intestines sometime around the time I go to bed which can take around 5-6 hours I believe. But from what I read it doesn't seem to matter when you take it as the effects last a long time.

No I was too scared to try Potatoes beforehand....or any other starch. I didn't want to go back to the chronic pain I used to have. I went to many lengths to remove all starch from my diet by measuring everything with Iodine and reading all labels. My diet was made up of foods I knew to be safe and I didn't deviate. The NSD worked for me to get get my pain and inflammation under control quite quickly so I stuck with it for the next 2 years. I remember at one point along the elimination of foods journey that I was having problems with the starch in cooked Zucchinis so figured I was fairly sensitive to starch content. Then I eliminated dairy along the journey as well with good results.

I only recently (start of this year) added in the fasting regime off leangains.com which I follow now mainly because it suits me and I find it easy to do. I have always been a fan of fasting. I only eat between 1pm and 9/10pm ish. The rest of the time its water and black coffee only. Basically to extend out the fasting period from sleep and induce a longer period of autophagy each day which requires prolonged periods of no calorie intake. I try to eat as much calories in the 8 hour window as I normally would, but the reality is I find this difficult. I eat big satisfying meals as a result (2 main meals..lunch and dinner) and use a lot of added fats in the form of olive oil on salads (4 tablespoon at a time usually) or big tablespoons dollops of coconut oil spread over veges with dinner. I have been known to skull back a shot glass of olive oil too if I feel my calorie intake has been too low.

An hour before bed I eat a decent serving of coconut cream (high in fat) with big handful of blueberries, raisens, coconut flakes, and maybe some egg white protein powder added for taste and a few nuts. I don't go to bed hungry. It is a big bowl of food.

Daily supplements are Omega 3 salmon fish oil (looking for of 2 g EPA and 1.5 g DHA - usually 7 -10 caps), 500 mg magensium, 1000mg, vit C (taken at night before bed well away from any coffee intake which flushes it out).

My regime is consistent each and every day. Exercise is 3 times per week for 30 - 45 mins at a time (heavy low rep weights for strength training as per lengains.com website) NOT bust a gut with high rep "feel the burn" type training. I'm looking for short intense periods of heavy lifting for each exercise with 5 mins in between to recover and go again.....not long 5 set repetitions of exercises to muscle failure with 30 - 60 seconds pause between each which I end up hating.

e.g. Monday - Squats - 2 x 6-8 reps with 5 mins rest in between each set followed by 2 x 6-8 reps of military shoulder press followed by 2 sets of pull ups (as many as I can do)

Wednesday - 2 x 6-8 of bench press, 2 sets of pull ups, 2 x 6-8 of overhead tricep extensions

Friday - 2 x 5 -7 of deadlifts followed by 2 sets of chin ups (as many as I can do)

My goal is to increase strength... not a cardio burn. I tend to go for a 30 minute walk on Saturday or Sunday if the weather is nice and I feel like it. (good for joint mobility I find).

30 - 45 mins 3 x per week works for me and keeps my motivation.

I think that's the key elements of everything I'm doing at the moment anyhow. Except now I'm experimenting with 1/8 teaspoon of borax in 1 litre of water per day which is giving me headaches so maybe I do have some internal fungus issues to sort out.