Kickas.org Forums Ankylosing Spondylitis General Discussion Highlights in Spondylitis Research CURING AUTOIMMUNE DISEASE

Yeah while Briggs makes quite a few more recommendations, the base of the advice seems quite similar to Art Ayer's. I've seen glutathione thrown around in a number of recommendations as well. [correction to my earlier post, I said Briggs was a PHD in microbiology, but in reality it's physics] Chris Kresser's got some good thoughts on it.

I've considered picking up some colostrum as well, but it seems hard to find to best source of this. I've seen varying recommendations about sourcing and various forms. And I've also read the best source is actually human colostrum which is BANANAS expensive from the tiny bit of Googling I did.

I used to eat quite a bit of veggies, but my diet slowly slid away from them as I didn't notice any benefit from eating them. If I had to hypothesize, I'd guess it was the mix of the probitiocs + RS + veggies causing the discomfort, but there's a lot of things at play. Could even be the helminths, but it would be rather late in their life cycle to start causing gastrointestinal symptoms (though not an uncommon side effect at all).

Nah, haven't tried introducing others foods while on the AIP. They weren't foods I was particularly interested in, and I (perhaps wrongly) assumed the cons of reintroducing them outweighed the cons.

Yeah, I'd say that describes me fairly well AIP + strict avoidance of starch - the veggies more recently (but like I said - just reintroduced so anyone following along doesn't get confused). As well as daily intermittent fasting (usually 1 meal a day, i.e. the warrior diet). When I ate more veggies, I ate avocados daily without issue.

For better or worse, I'm going to pretend for now that the stomach pain is a side effect of increased fermentation that my stomach isn't used to. With the potato starch + probiotics + fermented veggies + regular veggies + dark chocolate I feel like I'm bombing my system with new bacteria and bacteria food. Imma stay the course for the time being.

This is somewhat of an aside, but I'm also justifying the chocolate because of this too http://mrheisenbug.wordpress.com/2014/03/28/probiotics-survive-better-with-some-fat-its-the-ph/. I don't eat any meals until dinner, so I figure having some dark chocolate with my first serving of PS gives me some of the fat it may need.

Yeah, I'm sure genetics has it's role, but if I had to guess I'm inclined to believe the biggest factor for me was the 5+ years I was on antibiotics I was on for acne (smh at my dermatologist. Quack city, population him). I can't remember exactly when I stopped taking them, but I *think* it may have been right before my first symptom appeared.

I hear ya' about telling me it's incurable! Not looking forward to the day where I feel I've exhausted my options, but I think that's a ways away!

I found this video about T regulatory cells pretty good: https://www.youtube.com/watch?v=PYHvVj2qaDE

It's geared more towards their function in transplantation as opposed to autoimmunity, but there's a good bit of talk about AI as well. He talks about mouse studies where T1 diabetes was induced by creating an immune system deficient in Tregs, and also studies putting it into remission by supplementing Tregs into the immune system. (I think that was in there, it could have just been preventing the onset, but I believe it induced remission)

Lotta great links in this thread. Loved these two videos (h/t to lool for both these), even if they don't have a ton of actionable info:
https://www.youtube.com/watch?v=myBACBRxyq0
https://www.youtube.com/watch?v=NdkVDKWrmOQ

Haven't finished the second, but the first raises more questions than it answers, but great to see this research being done and and the findings being talked about. The link between gum disease and RA is fascinating.

I studied business in college, but like so many I haven't put my degree to good use (is there any real good use for a business degree?), and now I design video games haha.

I listened to that Kresser podcast. So I'm getting that it's best to get glutathione from diet ie. undenatured, grass-fed, organic whey protein is good followed by other foods followed by an expensive S-Acetyl Glutathione.
I found these on GSH( I really don't like curezone but it has some interesting "facts" regarding antibacterial and antiviral activity)
http://www.ncbi.nlm.nih.gov/pubmed/3443453
http://curezone.org/forums/am.asp?i=1243481

I wonder if the cheaper milk derived colustrum is still effective?

You're not alone in your antibiotic onslaught. I used to pop antibiotics like candy. I used to avoid the hospitals and ask for a diagnosis(an fix) at the local privately owned pharmacies all over South East Asia. I always think back to a time in Cambodia when I was sick and getting antib's while a western customer said to me, "You know those are serious drugs, right?" I probably said something cheeky or rolled my eyes. Even worse is when I got checked for tb pre enbrel. I tested a very questionable positive. They said that I should just take the 6 months worth of ab's just in case. Not even a mention of pro/prebiotics or gut health.

I love info like the probiotics with fats article. I take/eat both already. Why not do it at the right times with the right foods? It's nice to have proof behind a more efficient way to do what we already do

I went to go see Dr. Blainey from one of those links. I weighed out all the people for Marshall protocol vs. against. More people against and I couldn't afford to see him as often as I needed to.

I'm gonna hop into those treg vids later today.

You seem to grasp all of this info really well. That's why I asked what you studied. I was playing poker for my income but have recently stopped. I stopped since my last case of iritis as I'm s*#@ scared it'll come back. I was playing for quite biggish stakes before then and it might have contributed to my onset(along with holiday pig out fests) Not making $ is a bit stressful as well What games are you working on at the moment? Flash game type or PS/nintendo type?

Update re Pstarch. Up to 2 tbs and had two BM's yesterday. Not sure if it would've happened regarless but hey, I'll take it. I slipped a potato starch micky into my Wife's smoothie this morn. I though it would be fair to equip her with retaliatory ammo. You're up to 4-6. Any added pain from it do you think?

Yeah when I first came across the Marshall protocol, I was intrigued at first, but at the same time it seemed way too dangerous of a protocol to try for something that's unproven and goes against a lot of current recommendations. Did Blainey seem to have his head on straight? Sometime it's easier to tell in person than online?

WOW, just watching this video from Larry Smarr is AWESOME. At around the 44 minute mark he goes into the detail of his microbiome vs a healthy one (he has IBD). The difference is huge, would love to see if this meshes with what's coming out of uBiome and American Gut project. Cause everything I've seen out of them is relatively small differences. His gut has severe dysbiosis.

I feel like it somewhat contradicts the info that Steven Abramson presented in the Microbiome and Autoimmunity video. While Abramson suggested dysbosis and altered gut microbiome present in AI, not anywhere near the dysbosis Smarr shows evidence of in his video. I can't help but wonder if there's some difference in collection and analysis techniques that would lead to varied results.

Playing poker for the living sounds like the most stressful thing in the world! Wouldn't be surprised if that didn't help, but as with everything who can say for sure. I'm working on mobile games at the moment http://lvl6.com

If it sounds like I know what I'm talking about, rest assured I don't. It's only cause I'm decent bsing my way through things. It got me through college (while I left with one semester left to come out to California, but it got me through 3 and a half years), but I don't know how helpful it'll be in understanding this disease though.

I'd say pains been pretty consistent from before adding potato starch to current levels.

Dropped down to 3tbsp of PS today and skipped the veggies with dinner. Tried to give my stomach a little break.

I still havent had time to check out those vids yet. You've got me excitd about them though.
Maybe when you do eat veg, you might find romaine, celery and cucumbers pretty mild. Not much in there but water but at least there's some nutrition in them as opposed to iceberg. Makes sense to drop it all down anyways.
I got my primal flora and popped two today. One of the best bristol 4's ever! Fingers crossed and hoping they are here to stay.
Three and a half years is still three and a half years more education than I have! I couldn't figure out how to find the games on your site but I did find out that Art Zhou looks like an absolute genius mad scientist!

I grew up always playing competitive sports and really enjoyed the stressful aspect of poker. I guess just bcuz I enjoy something, it doesn't mean it's healthy for me. I think meth addicts really enjoy what they do as well.

I'm gonna stay at 2 tbs for a week or so based on what we've both been feeling. A lot of variables involved for both of us but I'm really glad that I've been willing and able to try this all for myself and that I have you to share and compare with.

Picked up the wahls protocol today!
Dr. Blainey was a nice, patient doctor. I found myself just desperately trying to understand what he was talking about for 50 mins of our hour appointment. He got me on olmatec but I got a fungal rash within a couple days. Maybe due to herxeimer but it costs over $250 to speak with him for 30 mins about it. I realized that I might need to speak with him really often. As you can see, I ask a lot of questions and am secretly referred to on kickas as "the topic crusher." I'm the last commenter(questioner) on about 127 different topics. I was happy to find more than a few reliable sources opposing that protocol and saved myself probably about 8000 in appointment fees. But who knows, maybe I'd be on my way to ridding myself of this condition had I stuck with it?

I'm hoping your cutting back a bit on pstarch and veg helps out. Lemme know how it goes

I'm giving this resistant starch a go as well as of last night after 2 years of no starch and 8 months of low sugar and no dairy. I have been interested in it, but have been too scared to try it as I came to the conclusion that Klebsiella would feed on it. However I've just had to go back on the Dyclofenac after I managed to go 6 weeks without them for the first time in 14 years but the insidious "freezing" up of the lower spine crept in making it a hard job to put my socks on in the morning let alone do some Deadlifts! So I might as well give it a go. A little pain is ok to deal with here and there I guess. I also found little info specific to Klebsiella, resistant starch and HLA-B27 so the only option is to try and see. I took a tablespoon of Potato Starch last night and some sauerkraut after dinner. So far nothing...no gas, no bloating....no aches....nothing. I'm not sure if this is a good thing or a bad thing yet but I'm happy that I don't have any additional pain. I guess the coming weeks will be interesting.

Hi, I skimmed through this post looking for his published research but might have missed it? Seems this is about diet & alternatives? Does he conduct/publish research (especially as this is titled a Cure)? Just wondering as I double checked thinking I clicked on the wrong forum

Good to have another n=1 in this experiment dlee. Keep us updated on your progress!


You're definitely right snowshoe, absolutely a theory as opposed to research. His bio says he's held research positions, but this is certainly not formal research at all.

As for myself, still getting stomach pain a decent amount of the time about an hour after high dose probiotics (4-6 pills + sauerkraut) and 2tbsp PS.

This was a good video, but a lot of it went over my head https://www.youtube.com/watch?v=KifDCTbj3cA

What is your guys' take on healing SIBO? I've noticed this a couple times throughout Dr. B. G.'s write ups "3. Soil-based probiotic 1-2 daily if not severely immune compromised (Bacillus licheniformis, Clostridium butyricum, etc)"

http://drbganimalpharm.blogspot.ca/search?updated-max=2013-11-30T16:20:00-08:00&max-results=7

I assume all of us on kickas are severely immune compromised.

Good luck dlee and I hope you don't feel any negative effects. If you have any good exercise or stretch vids/info, I'm always looking for more.

I haven't done much looking into SIBO, so I'm not of much use there.

It's my understanding that we're actually the opposite of immune compromised where our immune systems are in overdrive. That being said, you're on a TNF inhibitor which could put you in a more immune compromised state.