Kickas.org Forums Ankylosing Spondylitis General Discussion Highlights in Spondylitis Research CURING AUTOIMMUNE DISEASE

That makes sense to me about our immune systems being in overdrive. It's tough in my case bcuz a conversation with my rheumy seems pointless regarding enbrel and probiotics/pstarch.

I just noticed so many similarities between Dr. B. G's recs. for curing SIBO and general gut repair from free the animal etc. and wondered if we are more prone to having SIBO.

For the last couple days, I was feeling like a bout of iritis was just about to kick in. I couldn't figure out what it could be until I noticed that potato starch heated past 130 degrees completely alters the rs. I made a meatloaf using pstarch. Tasted great but I'm thinking that might have been the culprit. Koopa, you didn't seem to have any issues when you made the cookies though, right?

Cookies? What cookies? I just drink mine in water.

Oh. I wrongfully assumed(and was pretty envious about it) that you used potato starch to make cookies with that probiotic chocolate.
I'm switching up my rs routine a bit based on heisenbug's fat with probiotics article as well as Dr. BG's recc. of using psyllium and ORAC powder. #4. Version B
http://drbganimalpharm.blogspot.ca/search?updated-max=2013-11-30T16:20:00-08:00&max-results=7

Is your stomach any better yet?

Today is the end of my 3rd day on Potato starch. 1st day = 1 tablespoon, 2nd day = 2 tablespoons and today was 3 tablespoons (distributed throughout the day with meals usually). Inflammation seems to have reduced. Best its been in 4 weeks, however tricky to know for sure because I'm still taking Dyclofenac after 6 weeks off the damn things (inflammation slowly increased until I couldn't exercise anymore so back on them to get it under control). If by the end of tomorrow I still feel good, I'm going back off the dyclofenac. I'm actually really surprised I haven't keeled over since I was sure any starch and especially resistant starch would feed Klebsiella. If it is feeding Klebsiella (and I believe it would), it doesn't appear to be having a major impact as yet. I have previously had problems with the starch in cooked zucchini so consider myself very starch sensitive. I was able to deadlift yesterday and felt stronger than I have in many weeks and today whilst not exercising, I feel great to the point I want to exercise. I don't have an irritable gut, add maybe a slight increase in gas. Promising so far for me and I'm quite excited about this because I've almost come to the conclusion that no starch isn't the full story. I'm rapidly coming to the conclusion (after reading Art's postings) that resistant starch might be the missing bit to the low carb, high fat, moderate protein diet I eat. I have pretty much eaten a diet consistent with Art's "anti inflammatory" diet for the last 2 years (except for the resistant starch) which has mostly worked, but I haven't been able to kick the dyclofenac out of my diet for any decent length of time. Art's theories ring true for me. My AS got started with a violent episode of food poisoning in 2000. Gut flora and bio film would certainly have been cleared out and possibly never repopulated properly. I also ate a very high starch high grain diet back then.

Your story is very similar to mine. My AS started right after I contracted chlamydia trachomatis. I also had multiple stints of severe food poisoning while travelling around south east asia. My diet was probably about 90% grains. Minimal veggies and rarely fruit. Typical lunch for me was two grilled cheese sandwiches(white bread of course), doused and fried in margarine, ramen noodles and a hearty serving of sour cream and onion pringles. Whenever I was traveling, I would always fall back on my western "comfort foods" that consisted of pizza hut, mcd's, burger king and so on.
Really happy to hear that you're doing well. Nice to get back in the gym? I shared your apprehension before my first dose of pstarch. Once bitten, twice shy. I'm hoping it works out for us.
Anybody tried soaked grains and lived to tell about it? I'm nowhere near that point yet but I'd like to eventually add a variety of resistant starches and see how I react.

Mark Sisson had another RS article the other day;
http://www.marksdailyapple.com/resistant-starch-your-questions-answered/#axzz2xzZ10lgf

Haha! Wish I was having cookies, the GI Revive and and 100% chocolate is about the sweetest thing I've had in a year.

Regarding the stomach, still be up and down. I should probably back off the 5tbsp of PS I've been doing a day. I've also been doing 2 bigger servings instead of broken up more (there was some comment somewhere that led me to do this, don't think it's of any significant importance though). I might try more smaller servings.

I thought about trying BG's little mix recommendation. But decided instead to just try my veggie smoothie. The number of ingredients on the ORAC powder scared me off (and it has peppermint flavor, which *may* affect hookworms). Did you look into any others besides Amazing Grass? What'd you get for psyllium?

I'm with you dlee, I was on a VERY restrictive diet, but adding in PS has at least mentally broken down a barrier where I feel like I can try other healthy foods (dark chocolate, berries, egg yolks, more veggies - haven't tried the last 3, but I'm considering it haha).

Hello Dlee from another Aucklander. It sounds like so far so good with the potato starch. Where did you get it and what brand is it? Any other dietary modifications e.g. no dairy, nuts, etc?
And I too became symptomatic after a severe bout of food poisoning - Indonesia 2012.

I worry about the ingredients in that ORAC too. I didn't look into other brands but probably should have. For psyllium, I just ordered this one http://www.allstarhealth.com/f/now-whole_psyllium_husks_certified_organic.htm
as I'm not sure wether I should use the whole husk or blend it into powder?(I find allstarhealth to be the cheapest place for most supplements and even cheaper with its flat rate shipping) I don't know about psyllium but pomegranate seeds only test positive for starch when I crack open the seed. And again I'm not sure how well these seeds or husks are broken down by our guts. Is that why you are hesitant to try berries? Or is it for another reason? As per PHD's reccs., I also ordered some dextrose powder hoping to build up my daily carb intake, my tolerance to them and to help with post exercise carb loading.
The more the merrier, Copen. If you end up trying any of this, please keep us posted on what you're doing and how you're feeling.
It's tough for us as we seem to be the only auto immune issue with restrictions on starch! Tons of great sources indicate that a large portion of our diets should come from starchy vegetables and foods. It seems that starch is really beneficial to the human gut microbiome but as for those of us with AS...?

Hi Copen,
This place (http://www.naturallyorganic.co.nz)appears to normally have the normal "Bobs Red Mill" that seems popular. But their website is showing "out of stock" so I got another one from "Farrow Fresh". They have a Japanese one (hope its not made from radioactive potatoes). There is not much English on it.
http://www.an-maeda.co.jp. Or "Maedakatakuriko". Says 100% Potato Starch.

I'm forever tinkering with my diet to try and eliminate the last little bit of inflammation. I don't eat many nuts. Maybe in total it would be half a handful per day if that. I've eliminated dairy after I found full fat natural Yoghurt to be the cause of annoying but minor headaches. I eat lots of Coconut Cream instead. Removing dairy helped reduce inflammation for sure but I still eat dairy cream in cooked dishes once per week. e.g. Buttered chicken or mushroom cream sauce on my steaks. It doesn't seem to affect me too much if at all. And when I do eat it I eat a lot. I lap up cream sauce's basically.... its like gold. I might reintroduce butter back into my coffee again. I used to eat a LOT of butter. I don't eat much fruit. Probably 1 piece per day. I eat blueberries every night though. I also fast every day now. For the last 2 months I've been following http://leangains.com protocols for fasting and exercise. I eat between 1pm and 10pm only. Breakfast is black coffee only and lots of water. I was doing full 24 hours fasts once per week, but have cut back on those whilst I now do the shorter ones daily. My daily calories is around 1500 - 2000. I tried eating over 3000 per day but it was uncomfortable eating that much in a 8 hour window and seems to have provided no additional benefit.

Oh yeah, I also eat 7-10 capsules of fish oil per day depending on brand. I'm targeting 2 mg of EPA and 1.5 of DHA for anti inflammatory effects so I just read the label on each brand and see how many I need to eat. Eat all at once on an empty stomach and wait 20 mins before eating anything else. Fibre interferes with uptake apparently of fish oil. I read that Omega 3 in high quantities can displace inflammatory Omega 6 receptors in cells. Since I've taken these I think its helped a fair amount as well but hard to know for sure.