Kickas.org Forums Ankylosing Spondylitis General Discussion Highlights in Spondylitis Research CURING AUTOIMMUNE DISEASE

I've given up frying potatos in fat. I found that to be the cause of really bad gas and I'm not sure now about mixing carbs and fats too much. Frying potatos in fat makes them hyper desirable. Just sticking to boiled with gravy poured all over them typically. (Gravy made with Potato Starch for thickener now).

Seeing as your starting sbo's soon. This has some interesting info on probiotic combos for better efficacy. Their methods are pretty complex but I'm going to start making do with what I've got.
http://www.hindawi.com/journals/bmri/2011/981214/

I read on freetheanimal about Lactobacillus reuteri. Found this article;
http://www.ncbi.nlm.nih.gov/pubmed/24852566

I know we don't have NEC but the whole thing feels familiar.

Pig heaven is right! You seem to be tolerating them really well so why not enjoy it. A lot of the improvements you listed are described in the PHD book as benefits of adding "safe starches."

I'm freshly medicated and eating starchy foods as well. 1 cup of rice per day for the last two days and wonder if damage is still being done unknowingly. When I did eat 3 yams in a day, I definitely felt it. And that was fresh after a shot of enbrel. You have an opinion on the possible numbed damage being done, one way or another?

Did you buy your coconut milk ice cream or make it yourself?

Thanks for those links. Maybe I should read the PHD book. Glad to hear you are eating some starches and doing ok. My take on damage is that it's done by inflammation. I could be wrong...but that's what it believe. Control the inflammation and control the damage. Ultimately I'm hoping eating resistant starch and eventually adding in more beneficial bacteria produces TREG cells to keep the T cells in check.

And lack of movement for damage too. I find you have to control the inflammation...to be able to keep yourself moving. I'm at my worst when I'm inactive.

Yes. Keep as active as you can - crucial. Move it or loose it, as they say ! And, inflammation is the agent of damage. Hence the use of the antiinflammatories, IF you can stomach em (I can't). The LDN keeps the inflammation in check for me, and I use pain meds for any breakthrough pain : Paracetamol / codeine. But oinly rarely need to touch em. LDN and care re diet keeps problems in reasonable control. Neck, lower spine, SIs and peripheral neuropathy are the worst areas. Could be worse <smile>.

Oh yeah, Icecream....i make my own. Real easy. The recipe I use is.

1 x can of coconut milk (50% stuff not the full fat cream).
4 x eggs (yolks and white separated)
125 grams of dark chocolate
1 x tablespoon of sugar (just sugar to your preference really)
1 x teaspoon Vanilla essence
3 x tablespoons of Vodka (not for taste, but to help stop it from overfreezing to rock hard)

Melt the chocolate.
Tip it into a bowl with the coconut milk
Add in the egg yolks, vanilla and vodka.
Give it all a good beating with electric beater until mixed
In another bowl, whip up the egg whites with your sugar until stiff frothy mixture. Fold it into your chocolate coconut milk mix until nicely mixed.

Then at that point I put it in a cheap icecream maker and let it churn for 20 - 30 mins.

If you don't have an icecream maker, just pour it directly into whatever you are going to keep it in, and put in the freezer.

When I want to eat it, I take it out of the freezer about 30 -50 mins before I want to eat it. It freezes quite hard and needs softening.

PHD is my favorite health related book. It touches on auto immunity and cancer. Two birds, one book.
When you say 'adding in more beneficial bacteria' do you mean the pro-b's?
I'm glad I'm handling starchy foods, too! 1 cup of rice and 1 small yam yesterday(body weight exercise day)

That article you posted, Molly, explains the faster speed of ankylosis from inflammation really well.
https://www.kickas.org/ubbthreads/ubbthreads.php?ubb=showflat&Number=503364#Post503364

Wether or not we induce calcification faster by eating trigger foods that no longer present symptoms is a question that will be answered in the years to come, I guess.

I couldn't agree more about inactivity being a big factor in AS inflammation. I want a recliner for that reason. It's impossible to find a position I can be in for too long with my current couch. Exercise has to fit in the Goldilocks zone for myself.

LDN, two birds, one drug. Started last night. I don't think it had any effect but I was happy to have slept like a log after reading that one of the only side effects is sleeplessness. My dream is to retire in Thailand and farm out my days in the sun on a tropical island where my Wife is from.(on a very low budget) Our family has tons of land and all the seafood I can eat. I don't foresee that being a possibility whilst having to pay 1600$ per month for bio's. I could cut down the intervals and eventually they have to come down in price but still. My hope is that LDN along with diet/exercise/OTC pain killers will be enough. The LDN package came from Thailand. I'm sure I can find it myself over there.

Remember those kids in elementary who when you simply whispered in their direction they would start sneezing, get watery eyes, a runny nose, develop a rash and get a nose bleed? I kind of feel like one of those kids when I saw your recipe for coconut ice cream. That sounds super delicious and would be a relatively healthy treat for 99% of the population but I have MAJOR problems with chocolate and egg whites. I might just eliminate all ingredients except coconut milk and vodka but only smirnoff red label, gluten free and hope that I don't have/develop corn issues ;(

Yes by beneficial gut bacteria I mean pro-b's. I'm even contemplating eating some mud. In fact the other week, I took some muddy beet skins that my wife had peeled and put them in a glass of potato starch and water. Hoping any bugs in the mud on the skins would attach to the starch (which I read they would do fast) and then downed that drink.......it was err gritty.

Last night was carb night for me too. 450 grams of Potato and this time I added 150 grams of white long grain rice too. Then followed up with 2 coconut biscuits again, big bowl of my icecream, and green banana and blueberries. I hate carb night

I'm still amazed I can eat this stuff now. I'm eating increasing amounts of those starchy carbs and going overboard because 1. I want the calories for my build muscle experiment and I can't get them by eating clean and intermittent fasting all the time....it just too filling, and 2. I want to see they knock me over.

Muddy beat and potato starch juice... yum! Just to one up you I've been collecting ancient well-circulated coins and suck on them like tic tacs Is it odd that my breath still stinks?

New RS info over at drbg and FTA.

Yuck old coins! That a step too far for me! Yeah read those articles. I've added flax seed back in and tomorrow night I'm making my old favourite....chilli con carne and I'm putting the red kidney bean IN.