Kickas.org Forums Treatments, Drugs and Alternatives AS Pharmacy GLOSSARY: DRUGS THAT ARE USED TO TREAT AS

Sherry, have you seen a pain management Specialist? They have a lot of tricks in their bag of things they can do to help with the pain. Many people here see them. They can help with steroid shots into painful areas that GP and Rheumys can't do. There are other things that they can help with also, like a Tens units, PT referrals and such.

Don't let yourself get down when you have just scratched the surface. You have a right to good pain control, it's not your fault that others abuse narcotics. You have to insist. The squeaky wheel gets the grease.

Rebecka,There are all kind of pain meds. Please don't think that just because you start on one that you will never get off. Look into some of the milder meds, such as Tramadol.

When you are in pain, all kind of bad things happen. Your muscles get tight, your blood pressure goes up and you set yourself up for the pain to get worse. It is best to treat pain before it gets out of control. Please talk to your Dr. about some kind of pain management.

Hello everyone,

Although I've been finding solace in reading comments on this site, this is my first time writing... In pain for 4 years now (but only diagnosed with AS 2 years ago), I've recently left France and moved to the U.K. In France, with the AS diagnosis, I was taking Cebutid 200mg (Flurbiprofene) and I was able to manage the pain, but that isn't available here in the U.K. where the doctor prescribed Naxproxen 500mg. Only when I looked through all my old prescription did I realize that I had already tried Naxproxen, but I hoped my body would react better this time. However, here I am at 4am, with pain preventing me from sleeping and I don't stay in bed to toss and turn because then my husband can't sleep either.

Are there any U.K. people out there who are familiar with the NHS. Does Cebutid really not exist here or did the doctor just prescribe me something cheaper, hoping it would work as well as Cebutid? Is there anything better than Naxproxen in the U.K.?

And, the Omeprazole 20mg prescribed with the Naxproxen made me vomit, like Eupantol Pantoprazole 20mg, Inexium Esomeprazole 20mg and Cytotec Misoprostol 200ug. I was able to take the Cytotec Misoprostol the longest (3 days) without vomiting. Does anyone have any advice on these stomach protectors?

Disclaimer: I will see a doctor, but I'm just hoping to go armed with some information that would help me find something that would allow me to sleep through the night again. How can I be active to keep the inflammation down through exercise if I'm sleep-deprived?!

Thank you!

Lyrica is prescribed for neuropathic pain and for fibromyalgia.

I was using it several years ago but it was too expensive for me to keep using it, but now it is on the Australian PBS so that I can afford to get it on prescription.

What I am finding at the present moment is that the Lyrica will calm down my bladder when it gets a little bit stirred up, but it is not touching the other discomfort. I think that this is a little bit unusual because I used to respond to it very well.

The issue I have is my lower back in the region of the sacroiliac joint. The Lyrica helps to take the edge off the discomfort.

G'day Meagain,
Lyrica nearly sent me broke before it was on the pbs. I got up to a pretty hefty dose but it never helped my problem (painful neuropathy in both legs). I have been tried on Neurontin and endep as well. Nothing much helped. Some of those epilepsy drugs like lyrica and Neurontin can have some severe adverse side effects if you just stop taking them and that can include siesures in extreme cases. At the moment I have a combination of AS ,psoriatic arthritis and nephrotic syndrome. My protein loss was out to 7 grams a day so my rheumatologist and nephrologist agrred that cyclosporine was the best way to go.It can be heapa and nephra toxic so he has me taking a bp med called dilttiazem . It increases the amount of cyclosporine absorbed. I am getting the required trough loading ( bloods taken of a morning before the cyclosporine dose)on 75 mg morning and night. Keeping on lower doses has let me avoid serious side effects so far. It is to slow the progression of the disease ,not for pain. So far for pain I have tried norspan patches ,fentanyl patches and now oxycodone with naxolone. I found the patches a really crappy delivery system. With the controlled release oxy I get an even delivery but whoever decided they control pain for twelve hours was an optomist.The problem with the heavy duty pain relievers is that you are always at the doctors to get another script. I have been told by my nephrologist and gp that I will most likely be on cyclosporine and oxy for the rest of my days or until something more effective comes along. Cheers ron.

IMO, I'd get a second opinion, or find another Dr. I'd start a pain journal to take yo the other Dr. Good luck

I was prescribed Meloxicam (Mobic) to try while I am waiting for my appt with the Rheumy. I felt GREAT the first day but after that I felt so angry, empty and dark is how I explain it. I got off of it but nurse says to try it again at a lower dose. Wondering if any of you have any experience with this?

There are many different meds that you could try in this class. Do not let them fob you off - trust your instincts!! If you felt angry empty and dark and sense it was related to the med, then I'd humbly suggest that don't second guess yourself.

Trust you, and ask them to kindly recommend a different option.

I have had one nsaid affect me like that, and the others were fine.

Hey mwgray32
How long have you been taking Etoricoxib? Have you experienced any side effects? I was diagnosed in 2013 and all was fine till last month when the symptoms flared up. Etoricoxib is truly a godsend. It takes me back to the pre-AS days. I am thinking of taking a 90mg pill every 3 days. How bad are the side effects if they have affected you?

Regards
Aswin

Starting today on Etoricoxib (Arcoxia) at a dose of 60mgs once a day but increasing to a maximum dose of 120mgs daily. Looking forward to comparing results.