Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Long Term Groin Pain

Welcome to KA!

It took years to get a correct diagnosis. I always had pain in my hips with intermittent pain on either side of my buttocks. My back didn't hurt that much even though I have degenerative disc disease. After AS was diagnosed doctors concluded that my hip pain was actually referred pain from my back. I now experience mild groin pain along with upper leg pain. I do get back pain when I drive and have to put on the seat heater, even in the middle of winter. I have had epidurals, four at a time in my SI joints but that doesn't help anymore. Things seem to have settled down, with chronic pain but no heavy duty flares since using Enbrel.

I would think by what you say that it is indeed referred pain from AS. Hope you find answers.

I get sciatica on the L side (from L5-S1) and on the right I get pain that is arising from the L1-L2-L3 area. It is felt in the right groin area and in the upper/inner thigh. If you Google a 'dermatome map', you may find where your pain comes from.

When the pain arising from sciatic nerve started up, I really thought I had pulled a muscle around my thigh/knee area, though there really was no way that could have happened. Finally, after 2-3 weeks of this nagging pain, I got to thinking about referred pain that my pain mgmt doc had mentioned in the past. Looked up a dermatome map (and made a copy of it to save) and saw how it fit perfectly. Same thing happened when the R side started hurting. Thought I had pulled a muscle, then remembered the 'referred pain' problem.

Yes, it can come as a result of the AS. Doc also told me that sometimes the disks can bulge for a while and give you symptoms, but they can shrink back a little and not necessarily show up on MRI. Pain in groin probably isn't from SI, though.

PT = physiotherapy

from groin pain to aortitis--silent killer!

can only be a DS post

this from WIKIPEDIA........Aortitis is the inflammation of the aortic wall. The disorder is potentially life-threatening and rare. It is reported that there are only 1-3 new cases of aortitis per year per million people in the United States and Europe.[1] Aortitis is found in a wide range of ages spanning from 10 to 40 years of age.[1]

one to three new cases per million people!!

the DS thinks it's worth mentioning.....just in case

what is this...the lets scare folk to death site?

HI

I do also remember in the early years of A/S having both SI pain and groin pain, and it must of been coming from my back

Janet

What do you do for a job, Bill?

As a physio reading this without the benefit of being able to ask specific questions or examine your movements, I would be sitting on the fence 50:50 for pain coming from either a tight iliopsoas muscle or your back.

Find a good musculoskeletal physiotherapist (what Sue terms PT) and get them to check you out.

Hi inkyfingers

To answer your question, I am a photographer. Lugging a bag of fairly heavy kit is problematic, but the large amount of driving seems to bother it more. Especially when I am rushing and need to drive more swiftly! I have aggravated it numerous times when i have had to put my foot down to get on the motorway. I can always feel something there, and sometimes something seems to give and it gets really painful. Sometimes it calms down after a day or two other times, weeks or longer.

Forgot to say that the doctors told me that if it was either nerve damage or a pulled muscle/ ligament etc that it would have sorted itself out by now. Does that sound right?

Seems like a pulled muscle could have sorted itself out by now, but if it's still going on, my bet would be on it coming from your spine--i.e. nerve damage. Hope you can get a physio/PT to look at it.

I've had a lot of tendon and ligament tears, pulls, itises.

They take longer to heal for us than for others, that constant inflammation makes the healing process slow way down.

My husband tore a ligament and a week on ibuprofen and his hand in a brace and its already doing a lot better.

For me it took 6-12 months and in one case 2-3 years.

So if it is tendon or ligament, it could take a while to heal. PT can be really helpful at sorting it out and getting it to improve.

I had a rotator cuff problem that wasn't too bad but for months and months it dragged on. On the Humira and its finally going away. But without that it just seemed to linger in the background.