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Joined: Mar 2012
Posts: 59
Active_Member
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OP
Active_Member
Joined: Mar 2012
Posts: 59 |
Ive mentioned something about this before... But I got sed rates checked again and its a a 2.. So hardly any inflamation.. C reactive protein also perfect. The doc wrote "I am pleased to see that everything turned out normal, including Sed rate and C- reactive protein which measure inflamation in the blood".. Would one still get the effect out of Anti TNF if there is no inflamation?! Does this mean the AS is quiet, and my pain is caused my mechanical damage? AHHHH sooo much fun 
Last edited by BodSquad; 03/13/13 04:41 PM.
HLA-B27 Positive 2012.. Have always had low back pain. Disease rapidly infested itself after an accute Weight lifting accident..
Pain from SI joints all the way through neck. Rib cage extreamly tender
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Joined: Oct 2008
Posts: 895
Master_AS_Kicker
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Master_AS_Kicker
Joined: Oct 2008
Posts: 895 |
For me, my sed rate has never correlated to my AS pain levels. Even at my worst times, my sed rate would show normal. And Enbrel worked great for me, to the point where it seemed I didn't even have AS.
--Greg
AS symptoms started 1991. Official dx in 2006 with HLA-B27+, fused SIJ, bone spurs in back, extreme rib/hip pain, and other family with SpA. Started Enbrel in 2006 with good results, but stopped in 2010 due to nerve damage (MS) from it. Getting good results with no-starch diet since 2011.
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Joined: Feb 2012
Posts: 126
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
Joined: Feb 2012
Posts: 126 |
BodSquad....I can relate....that is exactly where I sit right now....I don,t know the answer...My Rheumy said my pain doesn't relate to "active inflammation"...thinks it's an overlapping generalized rheumatic condition....See u in 6 mos. It was my first appointment and I haven't had an MRI since diagnosed in 2007...I am working up the courage to book another appointment and request a new MRI...
good luck, let me know what you find out for yourself.
Diagnosed with AS in 2007 Hx of episodic back pain since I was 13.
Fibromyalgia Diagnosed Feb. 2013
methotrexate and Enbrel
Started LSD Feb 2012
Vit B,C,D, fish oil, folic acid, 5HTP, Gabba,Magnessium.
I am so much more then my symptoms:)
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Joined: Jan 2013
Posts: 121
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
Joined: Jan 2013
Posts: 121 |
I am the same as Greg, my levels never show what my inflammation, and pain is, but I am starting to feel much better on Simponi, one " good day " a week is better then no day a week, and I've hit the point where I know each shot forward will help a little more and more each time. Hang in there Bodsquad, eventually there will be true help for us all, and not .. well what we have now.
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Joined: Mar 2012
Posts: 59
Active_Member
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OP
Active_Member
Joined: Mar 2012
Posts: 59 |
Hopefully I will respond to enbrel!
HLA-B27 Positive 2012.. Have always had low back pain. Disease rapidly infested itself after an accute Weight lifting accident..
Pain from SI joints all the way through neck. Rib cage extreamly tender
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Joined: Feb 2012
Posts: 126
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
Joined: Feb 2012
Posts: 126 |
Good luck Bodsquad!...It should definitely improve things...especially your SI joint pain....It has cut out all my extreme flares in the SI joints...No more need for help to get out of bed and no more days and days of dreadful pain when your dragging one leg!
For me it's the low back pain and periphery pain that it hasn't helped...but it might for you!
Take care.
Diagnosed with AS in 2007 Hx of episodic back pain since I was 13.
Fibromyalgia Diagnosed Feb. 2013
methotrexate and Enbrel
Started LSD Feb 2012
Vit B,C,D, fish oil, folic acid, 5HTP, Gabba,Magnessium.
I am so much more then my symptoms:)
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