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Nov 2nd, 2025
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Joined: Nov 2002
Posts: 6,928 Likes: 3
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2002
Posts: 6,928 Likes: 3 |
Just letting you know why I am not here much at the moment. I am really having eye problems from the Lupus acting up. I can't be here but a few moments at a time. If I have missed your birthday or encouraging you, I am sorry. I think of all of you every day and am so thankful for your friendship and encouragement. Hope to get through this eventually. There is increased pressure, pain, inflammation and muscle problems where my eyelids just clamp shut and no amount of effort will open them. A steroid shot helped a couple of months ago. Guess I need to call the Rheumy again. I am going to the Eye Clinic also. Just been a hard summer.  Blessings All!! Possi 
![[Linked Image]](https://www.kickas.org/images/flowers/Smilingsun.gif) Possi ********************************************************* RUN WHEN YOU CAN, WALK IF YOU HAVE TO, CRAWL IF YOU MUST, JUST NEVER EVER GIVE UP! "A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS." "A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."
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Joined: Jan 2009
Posts: 4,501 Likes: 1
Supreme_AS_Kicker
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Supreme_AS_Kicker
Joined: Jan 2009
Posts: 4,501 Likes: 1 |
Wasn't it a nice cool weekend? Hope you are feeling better soon. Hope the eye people can help you again. Big, gentle hugs to you. 
DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9
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Joined: Feb 2010
Posts: 2,190
Major_AS_Kicker
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Major_AS_Kicker
Joined: Feb 2010
Posts: 2,190 |
I am so sorry that your eyes are giving you so much pain and trouble. I sure hope things get better.
We have been missing you
Donna
Cherish your yesterdays,
Dream your tomorrows,
But live your todays.
Do the very best you can
leave the rest to God.
God Bless,
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
Always good to see you again!  Sorry to hear about your eyes  and don't worry about what you can or can not do for people here, everyone understands that sometimes we are the ones giving support and sometimes we are the ones needing the support. Like any relationship, its not always 50:50, but rather sometimes its 70:30 and other times 30:70 or whatever, but always balances itself out over the long haul. You've always been there for others for so long. Just keep praying for all of us. That's a big help and don't need to be on a computer for that 
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Nov 2003
Posts: 8,190
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2003
Posts: 8,190 |
Praying for you to feel better!
Miss you!
Hugs!
Speak kindly, Live simply, Care deeply, Love generously, and BLAH, HA, HA, LOUDLY! every chance you get.
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Joined: Jun 2011
Posts: 343
Fourth_Degree_AS_Kicker
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Fourth_Degree_AS_Kicker
Joined: Jun 2011
Posts: 343 |
Don't you dare feel bad for "missing a few posts, or birthdays". We ALL know how it is. Sometimes you are too worn down to think about anything else but yourself, sometimes the disease stops you, and sometimes we just need to live a little outside KickAS. Doesnt mean we dont care or love all you guys anymore
Diagnosis:
Multiple Sclerosis
Psoriasis
Herniated disc L5/S1
Herniated disc C6/C7
bone marrow edema jaw joint
Vitamin D defficiency
Stomach ulcer
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Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
Oh Joyce - What a stinkie.  Pray your poor eyes can be given relief from this monster. Don't know how you cope - you sure 'are' a huge encouragement and inspiration to everyone. Blessings my dear friend - many Molly
MollyC1i - Riding OutAS
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Joined: Nov 2002
Posts: 6,928 Likes: 3
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2002
Posts: 6,928 Likes: 3 |
Oh it was wonderful! We had a nice shower this a.m. It has been hot today but it is supposed to get better. I hope we get more rain out of it.
Hope you are doing ok.
Hugs.
Joyce
Possi ********************************************************* RUN WHEN YOU CAN, WALK IF YOU HAVE TO, CRAWL IF YOU MUST, JUST NEVER EVER GIVE UP! "A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS." "A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."
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Joined: Nov 2002
Posts: 6,928 Likes: 3
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2002
Posts: 6,928 Likes: 3 |
Thank you Donna.
I dropped in for just a minute earlier; just long enough to answer a post that I saw hasn't been answered. This Lupus flare has been ugly fighting my eyes and my kidneys. Hopefully I am heading toward getting it under control.
How are you? Hope you have had a good day.
Hugs and Blessings.
Joyce
Possi ********************************************************* RUN WHEN YOU CAN, WALK IF YOU HAVE TO, CRAWL IF YOU MUST, JUST NEVER EVER GIVE UP! "A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS." "A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."
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Joined: Nov 2002
Posts: 6,928 Likes: 3
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2002
Posts: 6,928 Likes: 3 |
Sue, you are right about the 70/30 thing. Kind of like marriage. We always have felt that it was 100/100. We both just give all we can and it is different at different times. The 70/30 is probably a good thought.
This just has to be the best, most caring group of people that I have ever known. I appreciate your support so much.
Hope you are having a good week Sue.
You are a good friend.
Hugs.
Joyce
Possi ********************************************************* RUN WHEN YOU CAN, WALK IF YOU HAVE TO, CRAWL IF YOU MUST, JUST NEVER EVER GIVE UP! "A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS." "A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."
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